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Items: 1 to 50 of 83

1.

HOw Patients view Extended half-life products: Impressions from real-world experience (The HOPE study).

Khair K, Pollard D, Harrison C, Hook S, O'Driscoll M, Holland M.

Haemophilia. 2019 Sep;25(5):814-820. doi: 10.1111/hae.13803. Epub 2019 Jun 10.

PMID:
31365176
2.
3.

Burden on parents of children with haemophilia: The impact of sociodemographic and child's medical condition.

Myrin Westesson L, Sparud-Lundin C, Baghaei F, Khair K, von Mackensen S, Acuña Mora M, Wallengren C.

J Clin Nurs. 2019 Nov;28(21-22):4077-4086. doi: 10.1111/jocn.15003. Epub 2019 Sep 3.

PMID:
31328340
4.

The top 10 research priorities in bleeding disorders: a James Lind Alliance Priority Setting Partnership.

Shapiro S, Stephensen D, Camp C, Carroll L, Collins P, Elston D, Gallagher P, Khair K, McKeown W, O'Hara J, Stanworth S, Waterman A, Woollard L, Upadhyaya S, Laffan M.

Br J Haematol. 2019 Aug;186(4):e98-e100. doi: 10.1111/bjh.15928. Epub 2019 Apr 23. No abstract available.

PMID:
31016727
5.

The impact of psychosocial determinants on caregivers' burden of children with haemophilia (results of the BBC study).

von Mackensen S, Myrin Westesson L, Kavakli K, Klukowska A, Escuriola C, Uitslager N, Santoro C, Holland M, Khair K.

Haemophilia. 2019 May;25(3):424-432. doi: 10.1111/hae.13684. Epub 2019 Apr 11.

PMID:
30974034
6.

The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study).

Khair K, Klukowska A, Myrin Westesson L, Kavakli K, Escuriola C, Uitslager N, Santoro C, Holland M, von Mackensen S.

Haemophilia. 2019 May;25(3):416-423. doi: 10.1111/hae.13736. Epub 2019 Mar 29.

PMID:
30925018
7.

Education needs of nurses in thrombosis and hemostasis: An international, mixed-methods study.

Lazure P, Munn J, Labbé S, Murray S, Butler R, Khair K, Lambing A, Malone M, Reiser T, Newall F.

Res Pract Thromb Haemost. 2018 Nov 1;3(1):99-108. doi: 10.1002/rth2.12155. eCollection 2019 Jan.

8.

Obesity in the global haemophilia population: prevalence, implications and expert opinions for weight management.

Wilding J, Zourikian N, Di Minno M, Khair K, Marquardt N, Benson G, Ozelo M, Hermans C.

Obes Rev. 2018 Nov;19(11):1569-1584. doi: 10.1111/obr.12746. Epub 2018 Sep 6. Review.

PMID:
30188610
9.

The Kids' immune thrombocytopenia Tool is not suitable for assessing quality of life in children with platelet function disorders.

Khair K, Holland M.

Haemophilia. 2018 Jul;24(4):e259-e261. doi: 10.1111/hae.13528. Epub 2018 Aug 2. No abstract available.

PMID:
30070432
10.

Validation of the Haemophilia & Exercise Project-Test-Questionnaire (HEP-Test-Q)-An instrument for the assessment of subjective physical functioning in children with haemophilia.

von Mackensen S, Hilberg T, Valentino LA, Kurnik K, Khair K.

Haemophilia. 2018 Nov;24(6):888-895. doi: 10.1111/hae.13533. Epub 2018 Jul 13.

PMID:
30004619
11.

Prophylactic bypassing agent use before and during immune tolerance induction in patients with haemophilia A and inhibitors to FVIII.

Carpenter SL, Khair K, Gringeri A, Valentino LA.

Haemophilia. 2018 Jul;24(4):570-577. doi: 10.1111/hae.13534. Epub 2018 Jun 14. Review.

PMID:
29901839
12.

Spirituality Experiences in Hemophilia Patients: A Phenomenological Study.

Rambod M, Sharif F, Molazem Z, Khair K.

J Relig Health. 2019 Jun;58(3):992-1002. doi: 10.1007/s10943-018-0621-3.

PMID:
29667073
13.

Health-Related Quality of Life and Psychological Aspects of Adults With Hemophilia in Iran.

Rambod M, Sharif F, Molazem Z, Khair K, von Mackensen S.

Clin Appl Thromb Hemost. 2018 Oct;24(7):1073-1081. doi: 10.1177/1076029618758954. Epub 2018 Mar 26.

14.

Pattern of bleeding in a large prospective cohort of haemophilia A patients: A three-year follow-up of the AHEAD (Advate in HaEmophilia A outcome Database) study.

Khair K, Mazzucconi MG, Parra R, Santagostino E, Tsakiris DA, Hermans C, Oldenburg J, Spotts G, Steinitz-Trost K, Gringeri A.

Haemophilia. 2018 Jan;24(1):85-96. doi: 10.1111/hae.13361. Epub 2017 Oct 17.

PMID:
29044825
15.

Study of physical function in adolescents with haemophilia: The SO-FIT study.

Khair K, Holland M, Bladen M, Griffioen A, McLaughlin P, von Mackensen S; SO-FIT Study Group.

Haemophilia. 2017 Nov;23(6):918-925. doi: 10.1111/hae.13323. Epub 2017 Aug 14.

PMID:
28806864
16.

The impact of clinical practice on the outcome of central venous access devices in children with haemophilia.

Khair K, Ranta S, Thomas A, Lindvall K; PedNet study group.

Haemophilia. 2017 Jul;23(4):e276-e281. doi: 10.1111/hae.13241. Epub 2017 May 24.

PMID:
28544163
17.

Treatment burden, haemostatic strategies and real world inhibitor screening practice in non-severe haemophilia A.

Batty P, Austin SK, Khair K, Millar CM, Palmer B, Rangarajan S, Stümpel JP, Thanigaikumar M, Yee TT, Hart DP.

Br J Haematol. 2017 Mar;176(5):796-804. doi: 10.1111/bjh.14543. Epub 2017 Feb 15.

18.

Pharmacokinetics, Safety, and Efficacy of Recombinant Factor VIII Fc Fusion Protein: A Practical Review.

Schafer K, Munn J, Khair K, Thukral N, Tom A, McAlister S.

J Infus Nurs. 2017 Jan/Feb;40(1):65-75. doi: 10.1097/NAN.0000000000000205. Review.

PMID:
28030484
19.

Pain Experience in Hemophilia Patients: A Hermeneutic Phenomenological Study.

Rambod M PhD, Sharif F PhD, Molazem Z PhD, Khair K PhD.

Int J Community Based Nurs Midwifery. 2016 Oct;4(4):309-319.

20.

The impact of sport on health status, psychological well-being and physical performance of adults with haemophilia.

von Mackensen S, Harrington C, Tuddenham E, Littley A, Will A, Fareh M, Hay CR, Khair K.

Haemophilia. 2016 Jul;22(4):521-30. doi: 10.1111/hae.12912. Epub 2016 May 24.

PMID:
27216698
21.

The incidence, risk and functional outcomes of intracranial haemorrhage in children with inherited bleeding disorders at one haemophilia center.

Bladen M, Main E, Khair K, Hubert N, Koutoumanou E, Liesner R.

Haemophilia. 2016 Jul;22(4):556-63. doi: 10.1111/hae.12938. Epub 2016 May 19.

PMID:
27194592
22.

Assessment and management of pain in children and adolescents with bleeding disorders: a cross-sectional study from three haemophilia centres.

Rambod M, Forsyth K, Sharif F, Khair K.

Haemophilia. 2016 Jan;22(1):65-71. doi: 10.1111/hae.12765. Epub 2015 Jul 20.

PMID:
26193989
23.

Inhibitors in nonsevere haemophilia A: outcome and eradication strategies.

van Velzen AS, Eckhardt CL, Hart DP, Peters M, Rangarajan S, Mancuso ME, Smiers FJ, Khair K, Petrini P, Jiménez-Yuste V, Hay CR, van der Bom JG, Yee TT, Fijnvandraat K; INSIGHT study group.

Thromb Haemost. 2015 Jul;114(1):46-55. doi: 10.1160/TH14-11-0940. Epub 2015 Apr 16.

PMID:
25879247
24.
25.

Compliance, concordance and adherence: what are we talking about?

Khair K.

Haemophilia. 2014 Sep;20(5):601-3. doi: 10.1111/hae.12499. Epub 2014 Aug 12.

PMID:
25113162
26.

Wilate use in 47 children with von Willebrand disease: the North London paediatric haemophilia network experience.

Khair K, Batty P, Riat R, Bowles L, Burgess C, Chen YH, Hart D, Platton S, Pasi J, Liesner R.

Haemophilia. 2015 Jan;21(1):e44-50. doi: 10.1111/hae.12497. Epub 2014 Aug 12.

PMID:
25112927
27.

Increased burden on caregivers of having a child with haemophilia complicated by inhibitors.

Lindvall K, von Mackensen S, Elmståhl S, Khair K, Stain AM, Ljung R, Berntorp E.

Pediatr Blood Cancer. 2014 Apr;61(4):706-11. doi: 10.1002/pbc.24856. Epub 2013 Nov 26.

PMID:
24277475
28.

Supporting adherence and improving quality of life in haemophilia care.

Khair K.

Br J Nurs. 2013 Jun 27-Jul 10;22(12):692. No abstract available.

PMID:
24151707
29.

Multimethodology research with boys with severe haemophilia.

Khair K, Collier C, Meerabeau L, Gibson F.

Nurse Res. 2013 Jul;20(6):40-4.

PMID:
23909111
30.

Haemophilia part 1: an introduction.

Khair K.

Br J Nurs. 2013 Jun 13-26;22(11):620. No abstract available.

PMID:
23899729
31.

Self-management and skills acquisition in boys with haemophilia.

Khair K, Meerabeau L, Gibson F.

Health Expect. 2015 Oct;18(5):1105-13. doi: 10.1111/hex.12083. Epub 2013 May 27.

32.

The experience of girls and young women with inherited bleeding disorders.

Khair K, Holland M, Pollard D.

Haemophilia. 2013 Sep;19(5):e276-81. doi: 10.1111/hae.12155. Epub 2013 Apr 22.

PMID:
23607927
33.

Potential for development of haemophilia link nurse role within UK hospitals.

Forrester C, Bielby H, Johns S, Efford J, Holland M, Khair K; United Kingdom Haemophilia Nurse's Association.

Haemophilia. 2013 Jul;19(4):578-82. doi: 10.1111/hae.12144. Epub 2013 Apr 8.

PMID:
23560696
34.

Factors affecting the Haemophilia Joint Health Score in children with severe haemophilia.

Bladen M, Main E, Hubert N, Koutoumanou E, Liesner R, Khair K.

Haemophilia. 2013 Jul;19(4):626-31. doi: 10.1111/hae.12108. Epub 2013 Mar 28.

PMID:
23534671
35.

Management of surgical procedures in children with severe FV deficiency: experience of 13 surgeries.

Mathias M, Tunstall O, Khair K, Liesner R.

Haemophilia. 2013 Mar;19(2):256-8. doi: 10.1111/hae.12053. Epub 2012 Nov 23.

PMID:
23173600
36.

An action research study to explore the nature of the nurse consultant role in the care of children and young people.

Gregorowski A, Brennan E, Chapman S, Gibson F, Khair K, May L, Lindsay-Waters A.

J Clin Nurs. 2013 Jan;22(1-2):201-10. doi: 10.1111/j.1365-2702.2012.04140.x. Epub 2012 Jul 27.

PMID:
22845495
37.

The impact of sport on children with haemophilia.

Khair K, Littley A, Will A, von Mackensen S.

Haemophilia. 2012 Nov;18(6):898-905. doi: 10.1111/j.1365-2516.2012.02857.x. Epub 2012 May 28.

PMID:
22630612
38.

Symptomatic overlap in patients with diarrhea predominant irritable bowel syndrome and microscopic colitis in a sub group of Bangladeshi population.

Rahman MA, Raihan AS, Ahamed DS, Masud H, Safiullah AB, Khair KB, Salimullah AS, Islam MM.

Bangladesh Med Res Counc Bull. 2012 Apr;38(1):33-8.

PMID:
22545349
39.

Early diagnosis of neonatal septicemia by hematologic scoring system, C-reactive protein and serum haptoglobin.

Khair KB, Rahman MA, Sultana T, Roy CK, Rahman MQ, Ahmed AN.

Mymensingh Med J. 2012 Jan;21(1):85-92.

PMID:
22314460
40.

Why don't haemophilia nurses do research?

Khair K, Holland M, Vidler V, Loran C, Harrington C.

Haemophilia. 2012 Jul;18(4):540-3. doi: 10.1111/j.1365-2516.2012.02749.x. Epub 2012 Jan 30.

PMID:
22288558
41.

Social networking for adolescents with severe haemophilia.

Khair K, Holland M, Carrington S.

Haemophilia. 2012 May;18(3):e290-6. doi: 10.1111/j.1365-2516.2011.02689.x. Epub 2011 Nov 8.

PMID:
22059884
42.

The benefits of prophylaxis: views of adolescents with severe haemophilia.

Khair K, Gibson F, Meerabeau L.

Haemophilia. 2012 May;18(3):e286-9. doi: 10.1111/j.1365-2516.2011.02644.x. Epub 2011 Sep 12.

PMID:
21910789
43.

'Just an unfortunate coincidence': children's understanding of haemophilia genetics and inheritance.

Khair K, Gibson F, Meerabeau L.

Haemophilia. 2011 May;17(3):470-5. doi: 10.1111/j.1365-2516.2010.02448.x. Epub 2011 Feb 21.

PMID:
21332889
44.

Purpura fulminans: recognition, diagnosis and management.

Chalmers E, Cooper P, Forman K, Grimley C, Khair K, Minford A, Morgan M, Mumford AD.

Arch Dis Child. 2011 Nov;96(11):1066-71. doi: 10.1136/adc.2010.199919. Epub 2011 Jan 12. Review.

PMID:
21233082
45.

Minimizing joint damage: the role of nurses in promoting adherence to hemophilia treatment.

Khair K.

Orthop Nurs. 2010 May-Jun;29(3):193-200; quiz 201-2. doi: 10.1097/NOR.0b013e3181db53e8. Review.

PMID:
20505489
46.

Prophylaxis with prothrombin complex concentrate in four children with severe congenital factor X deficiency.

Bowles L, Baker K, Khair K, Mathias M, Liesner R.

Haemophilia. 2009 Jan;15(1):401-3. doi: 10.1111/j.1365-2516.2008.01878.x. No abstract available.

PMID:
19149864
47.

Therapeutic use of arteriovenous fistula in children with haemophilia.

Khair K, Baker K.

Br J Nurs. 2008 Dec 11-2009 Jan 7;17(22):1396-400.

PMID:
19057498
48.

Children's preferences of transfer devices for reconstitution of factors VIII and IX for the treatment of haemophilia.

Khair K.

Haemophilia. 2009 Jan;15(1):159-67. doi: 10.1111/j.1365-2516.2008.01925.x. Epub 2008 Nov 10.

PMID:
19016902
49.

Long-term consequences of intracranial haemorrhage in children with haemophilia.

Bladen M, Khair K, Liesner R, Main E.

Haemophilia. 2009 Jan;15(1):184-92. doi: 10.1111/j.1365-2516.2008.01815.x. Epub 2008 Aug 13.

PMID:
18702617
50.

Assessment of treatment practice patterns for severe hemophilia A: a global nurse perspective.

Khair K, Lawrence K, Butler R, O'Shea E, Christie BA.

Acta Haematol. 2008;119(2):115-23. doi: 10.1159/000121828. Epub 2008 Mar 27.

PMID:
18367832

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