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Predicting outcomes following holistic breathlessness services: A pooled analysis of individual patient data.

Brighton LJ, Gao W, Farquhar M, Booth S, Bajwah S, Man WD, Reilly CC, Yi D, Higginson IJ, Maddocks M.

Palliat Med. 2019 Feb 15:269216319830299. doi: 10.1177/0269216319830299. [Epub ahead of print]


The views and experiences of older people with conservatively managed renal failure: a qualitative study of communication, information and decision-making.

Selman LE, Bristowe K, Higginson IJ, Murtagh FEM.

BMC Nephrol. 2019 Feb 4;20(1):38. doi: 10.1186/s12882-019-1230-4.


Invisible and intangible illness: a qualitative interview study of patients' experiences and understandings of conservatively managed end-stage kidney disease.

Bristowe K, Selman LE, Higginson IJ, Murtagh FEM.

Ann Palliat Med. 2019 Jan 3. pii: apm.2018.12.06. doi: 10.21037/apm.2018.12.06. [Epub ahead of print]


In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'.

Hepgul N, Sleeman KE, Firth AM, Johnston A, Teo JTH, Bernal W, Dobson RJB, Higginson IJ.

J Med Ethics. 2019 Jan 7. pii: medethics-2018-105271. doi: 10.1136/medethics-2018-105271. [Epub ahead of print]


Mirtazapine for chronic breathlessness? A review of mechanistic insights and therapeutic potential.

Lovell N, Wilcock A, Bajwah S, Etkind SN, Jolley CJ, Maddocks M, Higginson IJ.

Expert Rev Respir Med. 2019 Feb;13(2):173-180. doi: 10.1080/17476348.2019.1563486. Epub 2018 Dec 30.


Finding a 'new normal' following acute illness: A qualitative study of influences on frail older people's care preferences.

Etkind SN, Lovell N, Nicholson CJ, Higginson IJ, Murtagh FE.

Palliat Med. 2019 Mar;33(3):301-311. doi: 10.1177/0269216318817706. Epub 2018 Dec 7.


Holistic services for people with advanced disease and chronic breathlessness: a systematic review and meta-analysis.

Brighton LJ, Miller S, Farquhar M, Booth S, Yi D, Gao W, Bajwah S, Man WD, Higginson IJ, Maddocks M.

Thorax. 2019 Mar;74(3):270-281. doi: 10.1136/thoraxjnl-2018-211589. Epub 2018 Nov 29.


A Rasch Analysis of the Integrated Palliative Care Outcome Scale.

Sandham MH, Medvedev ON, Hedgecock E, Higginson IJ, Siegert RJ.

J Pain Symptom Manage. 2019 Feb;57(2):290-296. doi: 10.1016/j.jpainsymman.2018.11.019. Epub 2018 Nov 26.


Factors associated with older people's emergency department attendance towards the end of life: a systematic review.

Bone AE, Evans CJ, Etkind SN, Sleeman KE, Gomes B, Aldridge M, Keep J, Verne J, Higginson IJ.

Eur J Public Health. 2019 Feb 1;29(1):67-74. doi: 10.1093/eurpub/cky241.


Place of death and factors associated with hospital death in patients who have died from liver disease in England: a national population-based study.

Peng JK, Higginson IJ, Gao W.

Lancet Gastroenterol Hepatol. 2019 Jan;4(1):52-62. doi: 10.1016/S2468-1253(18)30379-0. Epub 2018 Nov 22.


Symptoms and Concerns Among Children and Young People with Life-Limiting and Life-Threatening Conditions: A Systematic Review Highlighting Meaningful Health Outcomes.

Namisango E, Bristowe K, Allsop MJ, Murtagh FEM, Abas M, Higginson IJ, Downing J, Harding R.

Patient. 2019 Feb;12(1):15-55. doi: 10.1007/s40271-018-0333-5. Review.


Developing an integrated rehabilitation model for thoracic cancer services: views of patients, informal carers and clinicians.

Bayly J, Edwards BM, Peat N, Warwick G, Hennig IM, Arora A, Wilcock A, Higginson IJ, Maddocks M.

Pilot Feasibility Stud. 2018 Oct 18;4:160. doi: 10.1186/s40814-018-0350-0. eCollection 2018.


Symptom prevalence and quality of life of patients with end-stage liver disease: A systematic review and meta-analysis.

Peng JK, Hepgul N, Higginson IJ, Gao W.

Palliat Med. 2019 Jan;33(1):24-36. doi: 10.1177/0269216318807051. Epub 2018 Oct 22.


Integration of oncology and palliative care: a Lancet Oncology Commission.

Kaasa S, Loge JH, Aapro M, Albreht T, Anderson R, Bruera E, Brunelli C, Caraceni A, Cervantes A, Currow DC, Deliens L, Fallon M, Gómez-Batiste X, Grotmol KS, Hannon B, Haugen DF, Higginson IJ, Hjermstad MJ, Hui D, Jordan K, Kurita GP, Larkin PJ, Miccinesi G, Nauck F, Pribakovic R, Rodin G, Sjøgren P, Stone P, Zimmermann C, Lundeby T.

Lancet Oncol. 2018 Nov;19(11):e588-e653. doi: 10.1016/S1470-2045(18)30415-7. Epub 2018 Oct 18. Review.


Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study.

Pinto C, Bristowe K, Witt J, Davies JM, de Wolf-Linder S, Dawkins M, Guo P, Higginson IJ, Daveson B, Murtagh FEM.

Ann Palliat Med. 2018 Oct;7(Suppl 3):S137-S150. doi: 10.21037/apm.2018.09.02.


Control and Context Are Central for People With Advanced Illness Experiencing Breathlessness: A Systematic Review and Thematic Synthesis.

Lovell N, Etkind SN, Bajwah S, Maddocks M, Higginson IJ.

J Pain Symptom Manage. 2019 Jan;57(1):140-155.e2. doi: 10.1016/j.jpainsymman.2018.09.021. Epub 2018 Oct 4. Review.


The future of end-of-life care.

Bone AE, Evans CJ, Higginson IJ.

Lancet. 2018 Sep 15;392(10151):915-916. doi: 10.1016/S0140-6736(18)31823-3. No abstract available.


A Population-Based Conceptual Framework for Evaluating the Role of Healthcare Services in Place of Death.

Gao W, Huque S, Morgan M, Higginson IJ.

Healthcare (Basel). 2018 Aug 30;6(3). pii: E107. doi: 10.3390/healthcare6030107.


Outcome measurement-a scoping review of the literature and future developments in palliative care clinical practice.

Antunes B, Rodrigues PP, Higginson IJ, Ferreira PL.

Ann Palliat Med. 2018 Oct;7(Suppl 3):S196-S206. doi: 10.21037/apm.2018.07.03. Epub 2018 Jul 26. Review.


Exercise Deficiency Diseases of Ageing: The Primacy of Exercise and Muscle Strengthening as First-Line Therapeutic Agents to Combat Frailty.

Lazarus NR, Izquierdo M, Higginson IJ, Harridge SDR.

J Am Med Dir Assoc. 2018 Sep;19(9):741-743. doi: 10.1016/j.jamda.2018.04.014. No abstract available.


Use of mirtazapine in patients with chronic breathlessness: A case series.

Lovell N, Bajwah S, Maddocks M, Wilcock A, Higginson IJ.

Palliat Med. 2018 Oct;32(9):1518-1521. doi: 10.1177/0269216318787450. Epub 2018 Jul 20.


Is end-of-life care a priority for policymakers? Qualitative documentary analysis of health care strategies.

Sleeman KE, Leniz J, Higginson IJ, Bristowe K.

Palliat Med. 2018 Oct;32(9):1474-1486. doi: 10.1177/0269216318786333. Epub 2018 Jul 17.


How can a measure improve assessment and management of symptoms and concerns for people with dementia in care homes? A mixed-methods feasibility and process evaluation of IPOS-Dem.

Ellis-Smith C, Higginson IJ, Daveson BA, Henson LA, Evans CJ; BuildCARE.

PLoS One. 2018 Jul 11;13(7):e0200240. doi: 10.1371/journal.pone.0200240. eCollection 2018.


Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis.

Wakefield D, Bayly J, Selman LE, Firth AM, Higginson IJ, Murtagh FE.

Palliat Med. 2018 Sep;32(8):1288-1304. doi: 10.1177/0269216318783919. Epub 2018 Jun 29.


Effect of participation in a randomised controlled trial of an integrated palliative care intervention on HIV-associated stigma.

Lowther K, Harding R, Simms V, Gikaara N, Ahmed A, Ali Z, Kariuki H, Sherr L, Higginson IJ, Selman L.

AIDS Care. 2018 Sep;30(9):1180-1188. doi: 10.1080/09540121.2018.1465176. Epub 2018 Apr 17.


Implementing Outcome Measures in Palliative Care.

Guo P, Gao W, Higginson IJ, Harding R.

J Palliat Med. 2018 Apr;21(4):414. doi: 10.1089/jpm.2017.0674. No abstract available.


Development and validation of a casemix classification to predict costs of specialist palliative care provision across inpatient hospice, hospital and community settings in the UK: a study protocol.

Guo P, Dzingina M, Firth AM, Davies JM, Douiri A, O'Brien SM, Pinto C, Pask S, Higginson IJ, Eagar K, Murtagh FEM.

BMJ Open. 2018 Mar 17;8(3):e020071. doi: 10.1136/bmjopen-2017-020071.


Influences on Care Preferences of Older People with Advanced Illness: A Systematic Review and Thematic Synthesis.

Etkind SN, Bone AE, Lovell N, Higginson IJ, Murtagh FEM.

J Am Geriatr Soc. 2018 May;66(5):1031-1039. doi: 10.1111/jgs.15272. Epub 2018 Mar 7. Review.


Changing health behaviour with rehabilitation in thoracic cancer: A systematic review and synthesis.

Bayly J, Wakefield D, Hepgul N, Wilcock A, Higginson IJ, Maddocks M.

Psychooncology. 2018 Jul;27(7):1675-1694. doi: 10.1002/pon.4684. Epub 2018 Apr 2.


A framework for complexity in palliative care: A qualitative study with patients, family carers and professionals.

Pask S, Pinto C, Bristowe K, van Vliet L, Nicholson C, Evans CJ, George R, Bailey K, Davies JM, Guo P, Daveson BA, Higginson IJ, Murtagh FE.

Palliat Med. 2018 Jun;32(6):1078-1090. doi: 10.1177/0269216318757622. Epub 2018 Feb 19.


Active ingredients of a person-centred intervention for people on HIV treatment: analysis of mixed methods trial data.

Lowther K, Harding R, Simms V, Ahmed A, Ali Z, Gikaara N, Sherr L, Kariuki H, Higginson IJ, Selman LE.

BMC Infect Dis. 2018 Jan 10;18(1):27. doi: 10.1186/s12879-017-2900-0.


"Keep All Thee 'Til the End": Reclaiming the Lifeworld for Patients in the Hospice Setting.

West E, Onwuteaka-Philipsen B, Philipsen H, Higginson IJ, Pasman HRW.

Omega (Westport). 2017 Jan 1:30222817697040. doi: 10.1177/0030222817697040. [Epub ahead of print]


Palliative care needs of heart failure patients in China: putting people first.

Guo P, Harding R, Higginson IJ.

Curr Opin Support Palliat Care. 2018 Mar;12(1):10-15. doi: 10.1097/SPC.0000000000000315.


Social and clinical determinants of preferences and their achievement at the end of life: prospective cohort study of older adults receiving palliative care in three countries.

Higginson IJ, Daveson BA, Morrison RS, Yi D, Meier D, Smith M, Ryan K, McQuillan R, Johnston BM, Normand C; BuildCARE.

BMC Geriatr. 2017 Nov 23;17(1):271. doi: 10.1186/s12877-017-0648-4.


Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study.

Kane PM, Ellis-Smith CI, Daveson BA, Ryan K, Mahon NG, McAdam B, McQuillan R, Tracey C, Howley C, O'Gara G, Raleigh C, Higginson IJ, Murtagh FE, Koffman J; BuildCARE.

Palliat Med. 2018 Jan;32(1):143-155. doi: 10.1177/0269216317738161. Epub 2017 Nov 20.


Disability in activities of daily living among adults with cancer: A systematic review and meta-analysis.

Neo J, Fettes L, Gao W, Higginson IJ, Maddocks M.

Cancer Treat Rev. 2017 Dec;61:94-106. doi: 10.1016/j.ctrv.2017.10.006. Epub 2017 Oct 28. Review.


Universal coverage for palliative care in respiratory disease and critical care.

Maddocks M, Higginson IJ.

Lancet Respir Med. 2017 Dec;5(12):915-916. doi: 10.1016/S2213-2600(17)30384-3. Epub 2017 Oct 13. Review. No abstract available.


Alleviating the access abyss in palliative care and pain relief-an imperative of universal health coverage: the Lancet Commission report.

Knaul FM, Farmer PE, Krakauer EL, De Lima L, Bhadelia A, Jiang Kwete X, Arreola-Ornelas H, Gómez-Dantés O, Rodriguez NM, Alleyne GAO, Connor SR, Hunter DJ, Lohman D, Radbruch L, Del Rocío Sáenz Madrigal M, Atun R, Foley KM, Frenk J, Jamison DT, Rajagopal MR; Lancet Commission on Palliative Care and Pain Relief Study Group.

Lancet. 2018 Apr 7;391(10128):1391-1454. doi: 10.1016/S0140-6736(17)32513-8. Epub 2017 Oct 12. Review. No abstract available. Erratum in: Lancet. 2018 Mar 9;:.


What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death.

Bone AE, Gomes B, Etkind SN, Verne J, Murtagh FEM, Evans CJ, Higginson IJ.

Palliat Med. 2018 Feb;32(2):329-336. doi: 10.1177/0269216317734435. Epub 2017 Oct 10.


Palliative care and management of troublesome symptoms for people with chronic obstructive pulmonary disease.

Maddocks M, Lovell N, Booth S, Man WD, Higginson IJ.

Lancet. 2017 Sep 2;390(10098):988-1002. doi: 10.1016/S0140-6736(17)32127-X. Review.


Feasibility and acceptability of a patient-reported outcome intervention in chronic heart failure.

Kane PM, Daveson BA, Ryan K, Ellis-Smith CI, Mahon NG, McAdam B, McQuilllan R, Tracey C, Howley C, O'Gara G, Raleigh C, Higginson IJ, Koffman J, Murtagh FEM; BuildCARE.

BMJ Support Palliat Care. 2017 Dec;7(4):470-479. doi: 10.1136/bmjspcare-2017-001355. Epub 2017 Sep 1.


Predictors of emergency department attendance by people with dementia in their last year of life: Retrospective cohort study using linked clinical and administrative data.

Sleeman KE, Perera G, Stewart R, Higginson IJ.

Alzheimers Dement. 2018 Jan;14(1):20-27. doi: 10.1016/j.jalz.2017.06.2267. Epub 2017 Aug 22.


Valuing Attributes of Home Palliative Care With Service Users: A Pilot Discrete Choice Experiment.

Gomes B, de Brito M, Sarmento VP, Yi D, Soares D, Fernandes J, Fonseca B, Gonçalves E, Ferreira PL, Higginson IJ.

J Pain Symptom Manage. 2017 Dec;54(6):973-985. doi: 10.1016/j.jpainsymman.2017.05.005. Epub 2017 Aug 8.



Higginson IJ.

Palliat Med. 2017 Sep;31(8):681-683. doi: 10.1177/0269216317726199. No abstract available.


A Systematic Review of End-of-Life Care Communication Skills Training for Generalist Palliative Care Providers: Research Quality and Reporting Guidance.

Brighton LJ, Koffman J, Hawkins A, McDonald C, O'Brien S, Robinson V, Khan SA, George R, Higginson IJ, Selman LE.

J Pain Symptom Manage. 2017 Sep;54(3):417-425. doi: 10.1016/j.jpainsymman.2017.04.008. Epub 2017 Aug 4. Review.


The Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic Review and Meta-analysis.

Selman LE, Brighton LJ, Hawkins A, McDonald C, O'Brien S, Robinson V, Khan SA, George R, Ramsenthaler C, Higginson IJ, Koffman J.

J Pain Symptom Manage. 2017 Sep;54(3):404-416.e5. doi: 10.1016/j.jpainsymman.2017.04.007. Epub 2017 Aug 1. Review.


Integrating palliative care into neurology services: what do the professionals say?

Hepgul N, Gao W, Evans CJ, Jackson D, van Vliet LM, Byrne A, Crosby V, Groves KE, Lindsay F, Higginson IJ; OPTCARE Neuro.

BMJ Support Palliat Care. 2018 Mar;8(1):41-44. doi: 10.1136/bmjspcare-2017-001354. Epub 2017 Aug 3.


Longitudinal validity and reliability of the Myeloma Patient Outcome Scale (MyPOS) was established using traditional, generalizability and Rasch psychometric methods.

Ramsenthaler C, Gao W, Siegert RJ, Schey SA, Edmonds PM, Higginson IJ.

Qual Life Res. 2017 Nov;26(11):2931-2947. doi: 10.1007/s11136-017-1660-z. Epub 2017 Jul 27.


Strategies used in improving and assessing the level of reporting of implementation fidelity in randomised controlled trials of palliative care complex interventions: A systematic review.

Ang K, Hepgul N, Gao W, Higginson IJ.

Palliat Med. 2018 Feb;32(2):500-516. doi: 10.1177/0269216317717369. Epub 2017 Jul 10.


What factors influence emergency department visits by patients with cancer at the end of life? Analysis of a 124,030 patient cohort.

Henson LA, Higginson IJ, Gao W; BuildCARE.

Palliat Med. 2018 Feb;32(2):426-438. doi: 10.1177/0269216317713428. Epub 2017 Jun 20.


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