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Nurs Child Young People. 2019 Nov 7;31(6):39-41. doi: 10.7748/ncyp.2019.e1205. Epub 2019 Sep 4.

A position statement about predictive genetic testing among children.

Author information

1
Faculty of Nursing, The Hashemite University, Zarqa, Jordan.
2
Royal Medical Services, Jordan.
3
College of Nursing, Sultan Qaboos University, Muscat, Oman.
4
Faculty of Nursing, The Hashemite University, Zarqa, Jordan and in Muscat, Oman.

Abstract

Genetic testing of children to predict their future risk of illness is controversial. When parents make the decision to test their children, they deprive them of their autonomy. Furthermore, while genetic testing to predict the onset of treatable illnesses is welcomed, healthcare providers argue that it is of no benefit for untreatable disorders, such as certain types of cancer. The authors believe that the benefits of predictive genetic testing of children outweigh the concerns and that it should be encouraged. This article provides a position statement of many healthcare providers and researchers in Jordan. It intends to encourage the development of a policy for the genetic testing of children in Jordan as well as other countries where these policies are lacking.

KEYWORDS:

child health; ethical issues; genetic testing; genetics

PMID:
31544373
DOI:
10.7748/ncyp.2019.e1205

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