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Association of Physician Orders for Life-Sustaining Treatment With ICU Admission Among Patients Hospitalized Near the End of Life.

Lee RY, Brumback LC, Sathitratanacheewin S, Lober WB, Modes ME, Lynch YT, Ambrose CI, Sibley J, Vranas KC, Sullivan DR, Engelberg RA, Curtis JR, Kross EK.

JAMA. 2020 Feb 16. doi: 10.1001/jama.2019.22523. [Epub ahead of print]


The Patient and Family Member Experience of Financial Stress Related to Critical Illness.

Khandelwal N, Engelberg RA, Hough CL, Cox CE, Curtis JR.

J Palliat Med. 2020 Jan 2. doi: 10.1089/jpm.2019.0369. [Epub ahead of print]


Authors' Response to: Novel Data Linkage for Quality Improvement in Palliative and End-of-Life Care.

McDermott CL, Engelberg RA, Curtis JR.

J Pain Symptom Manage. 2019 Dec 27. pii: S0885-3924(19)31077-2. doi: 10.1016/j.jpainsymman.2019.12.363. [Epub ahead of print] No abstract available.


Postdoctoral Research Training in Palliative Care: Lessons Learned From a T32 Program.

Kross EK, Rosenberg AR, Engelberg RA, Curtis JR.

J Pain Symptom Manage. 2020 Mar;59(3):750-760.e8. doi: 10.1016/j.jpainsymman.2019.11.013. Epub 2019 Nov 24.


Family ratings of ICU care. Is there concordance within families?

Jensen HI, Downey L, Koopmans M, Curtis JR, Engelberg RA, Gerritsen RT.

J Crit Care. 2020 Feb;55:108-115. doi: 10.1016/j.jcrc.2019.10.011. Epub 2019 Oct 31.


Experiences of US Nephrologists in the Delivery of Conservative Care to Patients With Advanced Kidney Disease: A National Qualitative Study.

Wong SPY, Boyapati S, Engelberg RA, Thorsteinsdottir B, Taylor JS, O'Hare AM.

Am J Kidney Dis. 2020 Feb;75(2):167-176. doi: 10.1053/j.ajkd.2019.07.006. Epub 2019 Sep 27.


Novel Data Linkages to Characterize Palliative and End-Of-Life Care: Challenges and Considerations.

McDermott CL, Engelberg RA, Woo C, Li L, Fedorenko C, Ramsey SD, Curtis JR.

J Pain Symptom Manage. 2019 Nov;58(5):851-856. doi: 10.1016/j.jpainsymman.2019.07.017. Epub 2019 Jul 23.


Predictors of Advance Care Planning Documentation in Patients With Underlying Chronic Illness Who Died of Traumatic Injury.

Kim J, Engelberg RA, Downey L, Lee RY, Powelson E, Sibley J, Lober WB, Curtis JR, Khandelwal N.

J Pain Symptom Manage. 2019 Nov;58(5):857-863.e1. doi: 10.1016/j.jpainsymman.2019.07.015. Epub 2019 Jul 23.


Agreement With Consensus Statements on End-of-Life Care: A Description of Variability at the Level of the Provider, Hospital, and Country.

Long AC, Brumback LC, Curtis JR, Avidan A, Baras M, De Robertis E, Efferen L, Engelberg RA, Kross EK, Michalsen A, Mularski RA, Sprung CL; Worldwide End-of-Life Practice for Patients in ICUs (WELPICUS) Investigators.

Crit Care Med. 2019 Oct;47(10):1396-1401. doi: 10.1097/CCM.0000000000003922.


Assessment of Self-reported Prognostic Expectations of People Undergoing Dialysis: United States Renal Data System Study of Treatment Preferences (USTATE).

O'Hare AM, Kurella Tamura M, Lavallee DC, Vig EK, Taylor JS, Hall YN, Katz R, Curtis JR, Engelberg RA.

JAMA Intern Med. 2019 Jul 8. doi: 10.1001/jamainternmed.2019.2879. [Epub ahead of print]


Toward Understanding the Relationship Between Prioritized Values and Preferences for Cardiopulmonary Resuscitation Among Seriously Ill Adults.

Modes ME, Engelberg RA, Downey L, Nielsen EL, Lee RY, Curtis JR, Kross EK.

J Pain Symptom Manage. 2019 Oct;58(4):567-577.e1. doi: 10.1016/j.jpainsymman.2019.06.011. Epub 2019 Jun 19.


Global Health-related Training Opportunities. A National Survey of Pulmonary and Critical Care Medicine Fellowship Programs.

North CM, Attia EF, Rudd KE, Siddharthan T, Papali A, Çoruh B, Carter EJ, Christiani DC, Richards JB, Huang L, Engelberg R, Checkley W, West TE.

Ann Am Thorac Soc. 2019 Sep;16(9):1171-1178. doi: 10.1513/AnnalsATS.201812-856OC.


Pragmatic methods to avoid intensive care unit admission when it does not align with patient and family goals.

Khandelwal N, Long AC, Lee RY, McDermott CL, Engelberg RA, Curtis JR.

Lancet Respir Med. 2019 Jul;7(7):613-625. doi: 10.1016/S2213-2600(19)30170-5. Epub 2019 May 20. Review.


Goals-of-Care Decisions by Hospitalized Patients With Advanced Cancer: Missed Clinician Opportunities for Facilitating Shared Decision-Making.

Sharma RK, Cameron KA, Zech JM, Jones SF, Curtis JR, Engelberg RA.

J Pain Symptom Manage. 2019 Aug;58(2):216-223. doi: 10.1016/j.jpainsymman.2019.05.002. Epub 2019 May 14.


Addressing lung transplant with adults with cystic fibrosis: A qualitative analysis of patients' perspectives and experiences.

Ramos KJ, Hobler MR, Engelberg RA, Curtis JR, Zander MI, Howard SS, Goss CH, Aitken ML.

J Cyst Fibros. 2019 May;18(3):416-419. doi: 10.1016/j.jcf.2019.04.007. Epub 2019 Apr 17.


Novel Risk Factors for Posttraumatic Stress Disorder Symptoms in Family Members of Acute Respiratory Distress Syndrome Survivors.

Lee RY, Engelberg RA, Curtis JR, Hough CL, Kross EK.

Crit Care Med. 2019 Jul;47(7):934-941. doi: 10.1097/CCM.0000000000003774.


The Influence of Multimorbidity on Health Care Utilization at the End of Life for Patients with Chronic Conditions.

Wagner E, Patrick DL, Khandelwal N, Brumback L, Starks H, Fausto J, Dunlap BS, Lober W, Sibley J, Loggers ET, Curtis JR, Engelberg RA.

J Palliat Med. 2019 Oct;22(10):1260-1265. doi: 10.1089/jpm.2018.0349. Epub 2019 Apr 9.


Did a Goals-of-Care Discussion Happen? Differences in the Occurrence of Goals-of-Care Discussions as Reported by Patients, Clinicians, and in the Electronic Health Record.

Modes ME, Engelberg RA, Downey L, Nielsen EL, Curtis JR, Kross EK.

J Pain Symptom Manage. 2019 Feb;57(2):251-259. doi: 10.1016/j.jpainsymman.2018.10.507. Epub 2018 Nov 1.


Identifying improvement opportunities for patient- and family-centered care in the ICU: Using qualitative methods to understand family perspectives.

Ågård AS, Hofhuis JGM, Koopmans M, Gerritsen RT, Spronk PE, Engelberg RA, Randall Curtis J, Zijlstra JG, Jensen HI.

J Crit Care. 2019 Feb;49:33-37. doi: 10.1016/j.jcrc.2018.10.008. Epub 2018 Oct 12.


Risks of Benzodiazepines in Chronic Obstructive Pulmonary Disease with Comorbid Posttraumatic Stress Disorder.

Donovan LM, Malte CA, Spece LJ, Griffith MF, Feemster LC, Engelberg RA, Au DH, Hawkins EJ.

Ann Am Thorac Soc. 2019 Jan;16(1):82-90. doi: 10.1513/AnnalsATS.201802-145OC.


Hospital resource utilization and presence of advance directives at the end of life for adults with congenital heart disease.

Steiner JM, Kirkpatrick JN, Heckbert SR, Sibley J, Fausto JA, Engelberg RA, Randall Curtis J.

Congenit Heart Dis. 2018 Sep;13(5):721-727. doi: 10.1111/chd.12638. Epub 2018 Sep 19.


Quality of Communication and Trust in Patients With Serious Illness: An Exploratory Study of the Relationships of Race/Ethnicity, Socioeconomic Status, and Religiosity.

Coats H, Downey L, Sharma RK, Curtis JR, Engelberg RA.

J Pain Symptom Manage. 2018 Oct;56(4):530-540.e6. doi: 10.1016/j.jpainsymman.2018.07.005. Epub 2018 Jul 17.


Creation of a drug-sensitive reporter strain of Pseudomonas aeruginosa as a tool for the rapid screening of antimicrobial products.

Engelberg R, Danielson A, Wang S, Singh M, Wai A, Sorensen J, Duan K, Hausner G, Kumar A.

J Microbiol Methods. 2018 Sep;152:1-6. doi: 10.1016/j.mimet.2018.07.001. Epub 2018 Jul 7.


Intensity of End-of-Life Care for Patients with Hematologic Malignancies and the Role of Race/Ethnicity.

Kirtane K, Downey L, Lee SJ, Curtis JR, Engelberg RA.

J Palliat Med. 2018 Oct;21(10):1466-1471. doi: 10.1089/jpm.2018.0152. Epub 2018 Jul 5.


Race/Ethnicity, Socioeconomic Status, and Healthcare Intensity at the End of Life.

Brown CE, Engelberg RA, Sharma R, Downey L, Fausto JA, Sibley J, Lober W, Khandelwal N, Loggers ET, Curtis JR.

J Palliat Med. 2018 Sep;21(9):1308-1316. doi: 10.1089/jpm.2018.0011. Epub 2018 Jun 12.


Effect of a Patient and Clinician Communication-Priming Intervention on Patient-Reported Goals-of-Care Discussions Between Patients With Serious Illness and Clinicians: A Randomized Clinical Trial.

Curtis JR, Downey L, Back AL, Nielsen EL, Paul S, Lahdya AZ, Treece PD, Armstrong P, Peck R, Engelberg RA.

JAMA Intern Med. 2018 Jul 1;178(7):930-940. doi: 10.1001/jamainternmed.2018.2317.


Prevalence, Risk Factors, and Outcomes of Financial Stress in Survivors of Critical Illness.

Khandelwal N, Hough CL, Downey L, Engelberg RA, Carson SS, White DB, Kahn JM, Jones DM, Key MD, Reagan W, Porter LS, Curtis JR, Cox CE.

Crit Care Med. 2018 Jun;46(6):e530-e539. doi: 10.1097/CCM.0000000000003076.


Structured Direct Supervision of Medication Management Visits at an Outpatient Psychiatry Training Clinic: a Pilot Model.

Focht A, Engelberg R, Kimmel RJ.

Acad Psychiatry. 2018 Aug;42(4):567-571. doi: 10.1007/s40596-017-0873-3. Epub 2018 Jan 4. No abstract available.


Exploring Opportunities for Primary Outpatient Palliative Care for Adults with Cystic Fibrosis: A Mixed-Methods Study of Patients' Needs.

Hobler MR, Engelberg RA, Curtis JR, Ramos KJ, Zander MI, Howard SS, Goss CH, Aitken ML.

J Palliat Med. 2018 Apr;21(4):513-521. doi: 10.1089/jpm.2017.0259. Epub 2018 Jan 3.


Quality of dying and death in the ICU. The euroQ2 project.

Gerritsen RT, Jensen HI, Koopmans M, Curtis JR, Downey L, Hofhuis JGM, Engelberg RA, Spronk PE, Zijlstra JG.

J Crit Care. 2018 Apr;44:376-382. doi: 10.1016/j.jcrc.2017.12.015. Epub 2017 Dec 26.


Accountability for Community-Based Programs for the Seriously Ill.

Teno JM, Montgomery R, Valuck T, Corrigan J, Meier DE, Kelley A, Curtis JR, Engelberg R.

J Palliat Med. 2018 Mar;21(S2):S81-S87. doi: 10.1089/jpm.2017.0583. Epub 2017 Dec 1.


Using Electronic Health Records for Quality Measurement and Accountability in Care of the Seriously Ill: Opportunities and Challenges.

Curtis JR, Sathitratanacheewin S, Starks H, Lee RY, Kross EK, Downey L, Sibley J, Lober W, Loggers ET, Fausto JA, Lindvall C, Engelberg RA.

J Palliat Med. 2018 Mar;21(S2):S52-S60. doi: 10.1089/jpm.2017.0542. Epub 2017 Nov 28.


Predictors of Death in the Hospital for Patients with Chronic Serious Illness.

Hicks K, Downey L, Engelberg RA, Fausto JA, Starks H, Dunlap B, Sibley J, Lober W, Khandelwal N, Loggers ET, Curtis JR.

J Palliat Med. 2018 Mar;21(3):307-314. doi: 10.1089/jpm.2017.0127. Epub 2017 Sep 19.


Temporal Trends Between 2010 and 2015 in Intensity of Care at End-of-Life for Patients With Chronic Illness: Influence of Age Under vs. Over 65 Years.

Sathitratanacheewin S, Engelberg RA, Downey L, Lee RY, Fausto JA, Starks H, Dunlap B, Sibley J, Lober W, Loggers ET, Khandelwal N, Curtis JR.

J Pain Symptom Manage. 2018 Jan;55(1):75-81. doi: 10.1016/j.jpainsymman.2017.08.032. Epub 2017 Sep 5.


Satisfaction with quality of ICU care for patients and families: the euroQ2 project.

Jensen HI, Gerritsen RT, Koopmans M, Downey L, Engelberg RA, Curtis JR, Spronk PE, Zijlstra JG, Ørding H.

Crit Care. 2017 Sep 7;21(1):239. doi: 10.1186/s13054-017-1826-7.


Palliative Care Needs Assessment in the Neuro-ICU: Effect on Family.

Creutzfeldt CJ, Hanna MG, Cheever CS, Lele AV, Spiekerman C, Engelberg RA, Curtis JR.

Neurocrit Care. 2017 Oct;27(2):163-172. doi: 10.1007/s12028-017-0426-3.


How Often Is End-of-Life Care in the United States Inconsistent with Patients' Goals of Care?

Khandelwal N, Curtis JR, Freedman VA, Kasper JD, Gozalo P, Engelberg RA, Teno JM.

J Palliat Med. 2017 Dec;20(12):1400-1404. doi: 10.1089/jpm.2017.0065. Epub 2017 Jun 30.


Understanding Response Rates to Surveys About Family Members' Psychological Symptoms After Patients' Critical Illness.

Long AC, Downey L, Engelberg RA, Nielsen E, Ciechanowski P, Curtis JR.

J Pain Symptom Manage. 2017 Jul;54(1):96-104. doi: 10.1016/j.jpainsymman.2017.02.019. Epub 2017 May 26.


Effect of Psychiatric Illness on Acute Care Utilization at End of Life From Serious Medical Illness.

Lavin K, Davydow DS, Downey L, Engelberg RA, Dunlap B, Sibley J, Lober WB, Okimoto K, Khandelwal N, Loggers ET, Teno JM, Curtis JR.

J Pain Symptom Manage. 2017 Aug;54(2):176-185.e1. doi: 10.1016/j.jpainsymman.2017.04.003. Epub 2017 May 9.


Strategies for Enhancing Family Participation in Research in the ICU: Findings From a Qualitative Study.

Dotolo D, Nielsen EL, Curtis JR, Engelberg RA.

J Pain Symptom Manage. 2017 Aug;54(2):226-230.e1. doi: 10.1016/j.jpainsymman.2017.03.004. Epub 2017 Apr 22.


Observational study of Interleukin-21 (IL-21) does not distinguish Kawasaki disease from other causes of fever in children.

Engelberg R, Martin M, Wrotniak BH, Hicar MD.

Pediatr Rheumatol Online J. 2017 Apr 20;15(1):32. doi: 10.1186/s12969-017-0163-3.


Patterns of Cost for Patients Dying in the Intensive Care Unit and Implications for Cost Savings of Palliative Care Interventions.

Khandelwal N, Benkeser D, Coe NB, Engelberg RA, Teno JM, Curtis JR.

J Palliat Med. 2016 Nov;19(11):1171-1178. Epub 2016 Jul 20.


Is There Hope? Is She There? How Families and Clinicians Experience Severe Acute Brain Injury.

Schutz RE, Coats HL, Engelberg RA, Curtis JR, Creutzfeldt CJ.

J Palliat Med. 2017 Feb;20(2):170-176. doi: 10.1089/jpm.2016.0286. Epub 2016 Oct 20.


Association of Increasing Use of Mechanical Ventilation Among Nursing Home Residents With Advanced Dementia and Intensive Care Unit Beds.

Teno JM, Gozalo P, Khandelwal N, Curtis JR, Meltzer D, Engelberg R, Mor V.

JAMA Intern Med. 2016 Dec 1;176(12):1809-1816. doi: 10.1001/jamainternmed.2016.5964.


Economic Feasibility of Staffing the Intensive Care Unit with a Communication Facilitator.

Khandelwal N, Benkeser D, Coe NB, Engelberg RA, Curtis JR.

Ann Am Thorac Soc. 2016 Dec;13(12):2190-2196.


Comparing Quality of Dying and Death Perceived by Family Members and Nurses for Patients Dying in US and Dutch ICUs.

Gerritsen RT, Koopmans M, Hofhuis JG, Curtis JR, Jensen HI, Zijlstra JG, Engelberg RA, Spronk PE.

Chest. 2017 Feb;151(2):298-307. doi: 10.1016/j.chest.2016.09.003. Epub 2016 Sep 19.


Factors Affecting Patients' Preferences for and Actual Discussions About End-of-Life Care.

Fakhri S, Engelberg RA, Downey L, Nielsen EL, Paul S, Lahdya AZ, Treece PD, Curtis JR.

J Pain Symptom Manage. 2016 Sep;52(3):386-94. doi: 10.1016/j.jpainsymman.2016.03.012. Epub 2016 Jun 3.


The importance and challenge of measuring family experience with end-of-life care in the ICU.

Curtis JR, Downey L, Engelberg RA.

Intensive Care Med. 2016 Jul;42(7):1179-81. doi: 10.1007/s00134-016-4346-z. Epub 2016 Apr 7. No abstract available.


Understanding variability of end-of-life care in the ICU for the elderly.

Curtis JR, Engelberg RA, Teno JM.

Intensive Care Med. 2017 Jan;43(1):94-96. doi: 10.1007/s00134-016-4340-5. Epub 2016 Mar 31. No abstract available.


Physicians' and Nurse Practitioners' Level of Pessimism About End-of-Life Care During Training: Does It Change Over Time?

Long AC, Downey L, Engelberg RA, Ford DW, Back AL, Curtis JR.

J Pain Symptom Manage. 2016 May;51(5):890-897.e1. doi: 10.1016/j.jpainsymman.2015.11.024. Epub 2016 Jan 28.

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