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The effect of early and systematic integration of palliative care in oncology on quality of life and health care use near the end of life: A randomised controlled trial.

Vanbutsele G, Van Belle S, Surmont V, De Laat M, Colman R, Eecloo K, Naert E, De Man M, Geboes K, Deliens L, Pardon K.

Eur J Cancer. 2019 Dec 5;124:186-193. doi: 10.1016/j.ejca.2019.11.009. [Epub ahead of print]


The involvement of volunteers in palliative care and their collaboration with healthcare professionals: A cross-sectional volunteer survey across the Flemish healthcare system (Belgium).

Vanderstichelen S, Cohen J, Van Wesemael Y, Deliens L, Chambaere K.

Health Soc Care Community. 2019 Dec 5. doi: 10.1111/hsc.12905. [Epub ahead of print]


Psychological support in end-of-life decision-making in neonatal intensive care units: Full population survey among neonatologists and neonatal nurses.

Dombrecht L, Cohen J, Cools F, Deliens L, Goossens L, Naulaers G, Beernaert K, Chambaere K; NICU consortium.

Palliat Med. 2019 Nov 19:269216319888986. doi: 10.1177/0269216319888986. [Epub ahead of print]


Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial.

Van den Block L, Honinx E, Pivodic L, Miranda R, Onwuteaka-Philipsen BD, van Hout H, Pasman HRW, Oosterveld-Vlug M, Ten Koppel M, Piers R, Van Den Noortgate N, Engels Y, Vernooij-Dassen M, Hockley J, Froggatt K, Payne S, Szczerbinska K, Kylänen M, Gambassi G, Pautex S, Bassal C, De Buysser S, Deliens L, Smets T; PACE trial group.

JAMA Intern Med. 2019 Nov 11:1-10. doi: 10.1001/jamainternmed.2019.5349. [Epub ahead of print]


Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial.

Zwakman M, Pollock K, Bulli F, Caswell G, Červ B, van Delden JJM, Deliens L, van der Heide A, Jabbarian LJ, Koba-Čeh H, Lunder U, Miccinesi G, Arnfeldt CAM, Seymour J, Toccafondi A, Verkissen MN, Kars MC; ACTION consortium.

BMC Cancer. 2019 Oct 31;19(1):1026. doi: 10.1186/s12885-019-6170-7.


Coping strategies of patients with advanced lung or colorectal cancer in six European countries: Insights from the ACTION Study.

Jabbarian LJ, Korfage IJ, Červ B, van Delden JJM, Deliens L, Miccinesi G, Payne S, Thit Johnsen A, Verkissen MN, Wilcock A, van der Heide A, Rietjens JAC; ACTION consortium.

Psychooncology. 2019 Oct 29. doi: 10.1002/pon.5259. [Epub ahead of print]


Barriers to and facilitators of end-of-life decision-making by neonatologists and neonatal nurses in neonates: a qualitative study.

Dombrecht L, Piette V, Deliens L, Cools F, Chambaere K, Goossens L, Naulaers G, Cornette L, Beernaert K, Cohen J; NICU consortium.

J Pain Symptom Manage. 2019 Oct 19. pii: S0885-3924(19)30596-2. doi: 10.1016/j.jpainsymman.2019.10.007. [Epub ahead of print]


Implementing advance care planning in routine nursing home care: The development of the theory-based ACP+ program.

Gilissen J, Pivodic L, Wendrich-van Dael A, Gastmans C, Vander Stichele R, Van Humbeeck L, Deliens L, Van den Block L.

PLoS One. 2019 Oct 17;14(10):e0223586. doi: 10.1371/journal.pone.0223586. eCollection 2019.


Primary palliative care for older people in three European countries: a mortality follow-back quality study.

de Nooijer K, Pivodic L, Deliens L, Miccinesi G, Vega Alonso T, Moreels S, Van den Block L.

BMJ Support Palliat Care. 2019 Oct 16. pii: bmjspcare-2019-001967. doi: 10.1136/bmjspcare-2019-001967. [Epub ahead of print]


Early-Integrated Palliative home care and standard care for end-stage COPD (EPIC): A Phase II pilot RCT testing feasibility, acceptability and effectiveness.

Scheerens C, Pype P, Van Cauwenberg J, Vanbutsele G, Eecloo K, Derom E, Van Belle S, Joos G, Deliens L, Chambaere K.

J Pain Symptom Manage. 2019 Oct 9. pii: S0885-3924(19)30532-9. doi: 10.1016/j.jpainsymman.2019.09.012. [Epub ahead of print]


Quality of life and symptom intensity over time in people with cancer receiving palliative care: Results from the international European Palliative Care Cancer Symptom study.

Verkissen MN, Hjermstad MJ, Van Belle S, Kaasa S, Deliens L, Pardon K.

PLoS One. 2019 Oct 9;14(10):e0222988. doi: 10.1371/journal.pone.0222988. eCollection 2019.


Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study.

Barańska I, Kijowska V, Engels Y, Finne-Soveri H, Froggatt K, Gambassi G, Hammar T, Oosterveld-Vlug M, Payne S, Van Den Noortgate N, Smets T, Deliens L, Van den Block L, Szczerbińska K; PACE.

J Am Med Dir Assoc. 2019 Sep 11. pii: S1525-8610(19)30578-X. doi: 10.1016/j.jamda.2019.07.018. [Epub ahead of print]


Healthcare utilization at the end of life in people dying from amyotrophic lateral sclerosis: A retrospective cohort study using linked administrative data.

Maetens A, Deliens L, De Bleecker J, Caraceni A, De Ridder M, Beernaert K, Cohen J.

J Neurol Sci. 2019 Nov 15;406:116444. doi: 10.1016/j.jns.2019.116444. Epub 2019 Aug 31.


Communal responsibility: a history of health collectives in Australia.

Grant MP, Philip JAM, Deliens L, Komesaroff PA.

Intern Med J. 2019 Sep;49(9):1177-1180. doi: 10.1111/imj.14426.


Dying in long-term care facilities in Europe: the PACE epidemiological study of deceased residents in six countries.

Honinx E, van Dop N, Smets T, Deliens L, Van Den Noortgate N, Froggatt K, Gambassi G, Kylänen M, Onwuteaka-Philipsen B, Szczerbińska K, Van den Block L; PACE.

BMC Public Health. 2019 Aug 30;19(1):1199. doi: 10.1186/s12889-019-7532-4.


Consensus on treatment for residents in long-term care facilities: perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries.

Ten Koppel M, Pasman HRW, van der Steen JT, van Hout HPJ, Kylänen M, Van den Block L, Smets T, Deliens L, Gambassi G, Froggatt K, Szczerbińska K, Onwuteaka-Philipsen BD; PACE.

BMC Palliat Care. 2019 Aug 29;18(1):73. doi: 10.1186/s12904-019-0459-9.


Is the bereavement grief intensity of survivors linked with their perception of death quality?

Wilson DM, Cohen J, Eliason C, Deliens L, Macleod R, Hewitt JA, Houttekier D.

Int J Palliat Nurs. 2019 Aug 2;25(8):398-405. doi: 10.12968/ijpn.2019.25.8.398.


Restricting conversations about voluntary assisted dying: implications for clinical practice.

Willmott L, White B, Ko D, Downar J, Deliens L.

BMJ Support Palliat Care. 2019 Aug 7. pii: bmjspcare-2019-001887. doi: 10.1136/bmjspcare-2019-001887. [Epub ahead of print]


Agreement of Nursing Home Staff With Palliative Care Principles: A PACE Cross-sectional Study Among Nurses and Care Assistants in Five European Countries.

Honinx E, Smets T, Piers R, Deliens L, Payne S, Kylänen M, Barańska I, Pasman HRW, Gambassi G, Van den Block L; PACE; European Association for Palliative Care vzw; European Forum For Primary Care; Age Platform Europe, and Alzheimer Europe.

J Pain Symptom Manage. 2019 Nov;58(5):824-834. doi: 10.1016/j.jpainsymman.2019.06.015. Epub 2019 Jul 31.


Commonalities and differences in legal euthanasia and physician-assisted suicide in three countries: a population-level comparison.

Dierickx S, Onwuteaka-Philipsen B, Penders Y, Cohen J, van der Heide A, Puhan MA, Ziegler S, Bosshard G, Deliens L, Chambaere K.

Int J Public Health. 2019 Jul 11. doi: 10.1007/s00038-019-01281-6. [Epub ahead of print]


Influence of health interventions on quality of life in seriously ill children at the end of life: a systematic review protocol.

Piette VE, Cohen J, Deliens L, Pauwels N, van der Werff Ten Bosch J, Beernaert K.

Syst Rev. 2019 Jul 11;8(1):165. doi: 10.1186/s13643-019-1059-8.


Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention: insights gained from the ACTION trial.

Zwakman M, van Delden JJM, Caswell G, Deliens L, Ingravallo F, Jabbarian LJ, Johnsen AT, Korfage IJ, Mimić A, Arnfeldt CM, Preston NJ, Kars MC; ACTION consortium.

Support Care Cancer. 2019 Jul 5. doi: 10.1007/s00520-019-04956-1. [Epub ahead of print]


Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study.

Barańska I, Kijowska V, Engels Y, Finne-Soveri H, Froggatt K, Gambassi G, Hammar T, Oosterveld-Vlug M, Payne S, Van Den Noortgate N, Smets T, Deliens L, Van den Block L, Szczerbińska K; PACE.

J Am Med Dir Assoc. 2019 Jul 1. pii: S1525-8610(19)30402-5. doi: 10.1016/j.jamda.2019.05.003. [Epub ahead of print]


Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE).

Ten Koppel M, Onwuteaka-Philipsen BD, Van den Block L, Deliens L, Gambassi G, Heymans MW, Kylänen M, Oosterveld-Vlug MG, Pasman HRW, Payne S, Smets T, Szczerbińska K, Twisk JW, van der Steen JT; PACE.

Palliat Med. 2019 Oct;33(9):1176-1188. doi: 10.1177/0269216319861229. Epub 2019 Jul 1.


Family carer support in home and hospital: a cross-sectional survey of specialised palliative care.

Vermorgen M, De Vleminck A, Leemans K, Van den Block L, Van Audenhove C, Deliens L, Cohen J.

BMJ Support Palliat Care. 2019 Jun 26. pii: bmjspcare-2019-001795. doi: 10.1136/bmjspcare-2019-001795. [Epub ahead of print]


End-of-Life Decision Making for People Who Died of Dementia: A Mortality Follow-Back Study Comparing 1998, 2007, and 2013 in Flanders, Belgium.

Wendrich-van Dael AE, Pivodic L, Cohen J, Deliens L, Van den Block L, Chambaere K.

J Am Med Dir Assoc. 2019 Oct;20(10):1347-1349. doi: 10.1016/j.jamda.2019.04.004. Epub 2019 May 27. No abstract available.


Advance directives in European long-term care facilities: a cross-sectional survey.

Andreasen P, Finne-Soveri UH, Deliens L, Van den Block L, Payne S, Gambassi G, Onwuteaka-Philipsen BD, Smets T, Lilja E, Kijowska V, Szczerbińska K; PACE consortium.

BMJ Support Palliat Care. 2019 May 21. pii: bmjspcare-2018-001743. doi: 10.1136/bmjspcare-2018-001743. [Epub ahead of print]


Phase 0-1 early palliative home care cancer treatment intervention study.

Dhollander N, Smets T, De Vleminck A, Van Belle S, Deliens L, Pardon K.

BMJ Support Palliat Care. 2019 May 8. pii: bmjspcare-2018-001716. doi: 10.1136/bmjspcare-2018-001716. [Epub ahead of print]


Perspectives on Volunteer-Professional Collaboration in Palliative Care: A Qualitative Study Among Volunteers, Patients, Family Carers, and Health Care Professionals.

Vanderstichelen S, Cohen J, Van Wesemael Y, Deliens L, Chambaere K.

J Pain Symptom Manage. 2019 Aug;58(2):198-207.e7. doi: 10.1016/j.jpainsymman.2019.04.016. Epub 2019 Apr 25.


Are We Evolving Toward Greater and Earlier Use of Palliative Home Care Support? A Trend Analysis Using Population-Level Data From 2010 to 2015.

Maetens A, Deliens L, Van den Block L, Beernaert K, Cohen J.

J Pain Symptom Manage. 2019 Jul;58(1):19-28.e10. doi: 10.1016/j.jpainsymman.2019.04.008. Epub 2019 Apr 18.


Integrated Palliative Care for Nursing Home Residents: Exploring the Challenges in the Collaboration between Nursing Homes, Home Care and Hospitals.

Hermans S, Sevenants A, Declercq A, Van Broeck N, Deliens L, Cohen J, Van Audenhove C.

Int J Integr Care. 2019 Apr 3;19(2):3. doi: 10.5334/ijic.4186.


Spiritual care provided by nursing home physicians: a nationwide survey.

Gijsberts MHE, van der Steen JT, Hertogh CMPM, Deliens L.

BMJ Support Palliat Care. 2019 Apr 4. pii: bmjspcare-2018-001756. doi: 10.1136/bmjspcare-2018-001756. [Epub ahead of print]


Neonatologists and neonatal nurses have positive attitudes towards perinatal end-of-life decisions, a nationwide survey.

Dombrecht L, Deliens L, Chambaere K, Baes S, Cools F, Goossens L, Naulaers G, Roets E, Piette V, Cohen J, Beernaert K; NICU consortium.

Acta Paediatr. 2019 Mar 28. doi: 10.1111/apa.14797. [Epub ahead of print]


Who finds the road to palliative home care support? A nationwide analysis on the use of supportive measures for palliative home care using linked administrative databases.

Maetens A, Beernaert K, Deliens L, Gielen B, Cohen J.

PLoS One. 2019 Mar 12;14(3):e0213731. doi: 10.1371/journal.pone.0213731. eCollection 2019.


Balancing medication use in nursing home residents with life-limiting disease.

Paque K, Elseviers M, Vander Stichele R, Pardon K, Vinkeroye C, Deliens L, Christiaens T, Dilles T.

Eur J Clin Pharmacol. 2019 Jul;75(7):969-977. doi: 10.1007/s00228-019-02649-6. Epub 2019 Mar 4.


Care staff's self-efficacy regarding end-of-life communication in the long-term care setting: Results of the PACE cross-sectional study in six European countries.

Ten Koppel M, Onwuteaka-Philipsen BD, van der Steen JT, Kylänen M, Van den Block L, Smets T, Deliens L, Gambassi G, Collingridge Moore D, Szczerbińska K, Pasman HRW; PACE.

Int J Nurs Stud. 2019 Apr;92:135-143. doi: 10.1016/j.ijnurstu.2018.09.019. Epub 2019 Jan 30.


Barriers to the early integration of palliative home care into the disease trajectory of advanced cancer patients: A focus group study with palliative home care teams.

Dhollander N, De Vleminck A, Deliens L, Van Belle S, Pardon K.

Eur J Cancer Care (Engl). 2019 Jul;28(4):e13024. doi: 10.1111/ecc.13024. Epub 2019 Feb 19.


Impact of palliative home care support on the quality and costs of care at the end of life: a population-level matched cohort study.

Maetens A, Beernaert K, De Schreye R, Faes K, Annemans L, Pardon K, Deliens L, Cohen J.

BMJ Open. 2019 Jan 21;9(1):e025180. doi: 10.1136/bmjopen-2018-025180.


Discontinuation of medications at the end of life: A population study in Belgium, based on linked administrative databases.

Paque K, De Schreye R, Elseviers M, Vander Stichele R, Pardon K, Dilles T, Christiaens T, Deliens L, Cohen J.

Br J Clin Pharmacol. 2019 Apr;85(4):827-837. doi: 10.1111/bcp.13874. Epub 2019 Feb 22.


Assessing Emotional Functioning with Increased Power: Relative Validity of a Customized EORTC Short Form in the International ACTION Trial.

Jabbarian LJ, Groenvold M, Petersen MA, Christensen CA, Deliens L, van der Heide A, Kars MC, Miccinesi G, Payne S, Wilcock A, Korfage IJ; ACTION consortium.

Value Health. 2019 Jan;22(1):92-98. doi: 10.1016/j.jval.2018.07.002. Epub 2018 Aug 20.


Place of death in a small island state: a death certificate population study.

Jennings N, Chambaere K, Deliens L, Cohen J.

BMJ Support Palliat Care. 2019 Jan 18. pii: bmjspcare-2018-001631. doi: 10.1136/bmjspcare-2018-001631. [Epub ahead of print]


Use and timing of referral to specialized palliative care services for people with cancer: A mortality follow-back study among treating physicians in Belgium.

Vanbutsele G, Deliens L, Cocquyt V, Cohen J, Pardon K, Chambaere K.

PLoS One. 2019 Jan 17;14(1):e0210056. doi: 10.1371/journal.pone.0210056. eCollection 2019.


Initiation of advance care planning in newly admitted nursing home residents in Flanders, Belgium: A prospective cohort study.

Paque K, Ivanova I, Elseviers M, Stichele RV, Dilles T, Pardon K, Deliens L, Christiaens T.

Geriatr Gerontol Int. 2019 Feb;19(2):141-146. doi: 10.1111/ggi.13576. Epub 2018 Dec 6.


The liminal space palliative care volunteers occupy and their roles within it: a qualitative study.

Vanderstichelen S, Cohen J, Van Wesemael Y, Deliens L, Chambaere K.

BMJ Support Palliat Care. 2018 Dec 7. pii: bmjspcare-2018-001632. doi: 10.1136/bmjspcare-2018-001632. [Epub ahead of print]


Information provision as evaluated by people with cancer and bereaved relatives: A cross-sectional survey of 34 specialist palliative care teams.

Verkissen MN, Leemans K, Van den Block L, Deliens L, Cohen J.

Patient Educ Couns. 2019 Apr;102(4):768-775. doi: 10.1016/j.pec.2018.11.012. Epub 2018 Nov 19.


Correction: Technical-efficiency analysis of end-of-life care in long-term care facilities within Europe: A cross-sectional study of deceased residents in 6 EU countries (PACE).

Wichmann AB, Adang EMM, Vissers KCP, Szczerbińska K, Kylänen M, Payne S, Gambassi G, Onwuteaka-Philipsen BD, Smets T, Van den Block L, Deliens L, Vernooij-Dassen MJFJ, Engels Y; PACE consortium.

PLoS One. 2018 Nov 21;13(11):e0208199. doi: 10.1371/journal.pone.0208199. eCollection 2018.


Associations of potentially inappropriate medication use with four year survival of an inception cohort of nursing home residents.

Paque K, Elseviers M, Vander Stichele R, Dilles T, Pardon K, Deliens L, Christiaens T.

Arch Gerontol Geriatr. 2019 Jan - Feb;80:82-87. doi: 10.1016/j.archger.2018.10.011. Epub 2018 Oct 26.


Involvement of palliative care in euthanasia practice: Authors' reply to Regnard and Proffitt.

Dierickx S, Deliens L, Cohen J, Chambaere K.

Palliat Med. 2019 Jan;33(1):117. doi: 10.1177/0269216318809581. Epub 2018 Oct 29. No abstract available.


Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries.

Oosterveld-Vlug MG, Pasman HRW, Ten Koppel M, van Hout HPJ, van der Steen JT, Collingridge Moore D, Deliens L, Gambassi G, Kylänen M, Smets T, Szczerbińska K, Van den Block L, Onwuteaka-Philipsen BD; PACE.

J Am Med Dir Assoc. 2019 Jun;20(6):696-702.e1. doi: 10.1016/j.jamda.2018.08.015. Epub 2018 Oct 23.


Integration of oncology and palliative care: a Lancet Oncology Commission.

Kaasa S, Loge JH, Aapro M, Albreht T, Anderson R, Bruera E, Brunelli C, Caraceni A, Cervantes A, Currow DC, Deliens L, Fallon M, Gómez-Batiste X, Grotmol KS, Hannon B, Haugen DF, Higginson IJ, Hjermstad MJ, Hui D, Jordan K, Kurita GP, Larkin PJ, Miccinesi G, Nauck F, Pribakovic R, Rodin G, Sjøgren P, Stone P, Zimmermann C, Lundeby T.

Lancet Oncol. 2018 Nov;19(11):e588-e653. doi: 10.1016/S1470-2045(18)30415-7. Epub 2018 Oct 18. Review.


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