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J Am Board Fam Med. 2019 Sep-Oct;32(5):674-684. doi: 10.3122/jabfm.2019.05.190028.

Patient-Centered Research Priorities: A Mixed-Methods Approach from the Colorado Children's Outcomes Network (COCONet).

Author information

1
From the Adult and Child Center for Health Outcomes Research and Delivery Science, Children's Hospital Colorado and University of Colorado-Anschutz Medical Campus, Aurora, CO (SEB, STO); Department of Family Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO (SEB); Health and Behavioral Sciences, University of Colorado-Denver, Denver, CO (SEB); Colorado Children's Outcomes Network (COCONet) Network Advisory Board, Aurora, CO (NMC); Department of Pediatrics, University of Colorado-Anschutz Medical Campus, Aurora, CO (STO). Sarah.Brewer@CUAnschutz.edu.
2
From the Adult and Child Center for Health Outcomes Research and Delivery Science, Children's Hospital Colorado and University of Colorado-Anschutz Medical Campus, Aurora, CO (SEB, STO); Department of Family Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO (SEB); Health and Behavioral Sciences, University of Colorado-Denver, Denver, CO (SEB); Colorado Children's Outcomes Network (COCONet) Network Advisory Board, Aurora, CO (NMC); Department of Pediatrics, University of Colorado-Anschutz Medical Campus, Aurora, CO (STO).

Abstract

BACKGROUND:

Practice-based research networks (PBRNs) perform clinically relevant research designed for immediate translation to patient care. Research questions developed with patients and parents are more likely to be relevant to stakeholders. This case study developed priority areas for patient-centered outcomes research in pediatric health within the context of the Colorado Children's Outcomes Network, a statewide pediatric PBRN, and in collaboration with stakeholders.

METHODS:

We undertook a mixed-methods, community-engaged process to understand and develop a research agenda for our pediatric PBRN. With a stakeholder-engaged research team, we conducted 52 stakeholder interviews and 1 focus group (n = 9) addressing topics including child health issues, personal health care experiences, community health, and the health care system. Transcripts were coded and analyzed by researchers and parent advisors. We conducted a Web-based survey of PBRN stakeholders (n = 75) to rate priority issues identified in qualitative findings. Finally, we facilitated a community-engaged mixed-methods interpretation and issue selection process with our Network Advisory Board to identify issues of highest importance for Colorado Children's Outcomes Network.

RESULTS:

Six topic areas of importance to pediatric health stakeholders emerged from qualitative work. Participating stakeholders used rating surveys to rank these 6 topics. Pediatric mental health coordination and communication/integration with primary care was ranked as the most important and highest research priority. The Network Advisory Board additionally identified immunization uptake and transition from pediatric to adult health care as research priority areas.

CONCLUSIONS:

This pediatric PBRN identified numerous research priorities in pediatric health and selected 3 for immediate research action. PBRNs can use community-engaged, mixed-methods research approaches to set research priorities and develop patient-centered pediatric research agendas.

KEYWORDS:

Child Health; Colorado; Focus Groups; Parents; Patient Care; Patient Outcome Assessment; Practice-based Research; Primary Health Care; Qualitative Research; Surveys and Questionnaires

PMID:
31506363
DOI:
10.3122/jabfm.2019.05.190028
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Conflict of interest statement

Conflict of interest: none declared.

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