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Items: 1 to 50 of 139

1.

In support of mitochondrial replacement therapy.

Adashi EY, Caplan AL, Capron A, Chapman AR, Cho M, Clayton EW, Cohen IG, Cook-Deegan R, Faden RR, Friedmann T, Gostin LO, Greely HT, Johnston J, Juengst E, King PA, Knowles LP, Lyerly AD, McGuire AL, Moreno JD, Rothenberg K, Truog RD, Walters L.

Nat Med. 2019 Jun;25(6):870-871. doi: 10.1038/s41591-019-0477-4. No abstract available.

PMID:
31160819
2.

Improving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines.

Burke W, Clayton EW, Wolf SM, Berry SA, Evans BJ, Evans JP, Hall R, Korngiebel D, Laberge AM, LeRoy BS, McGuire AL.

Genet Med. 2019 Jun 4. doi: 10.1038/s41436-019-0549-3. [Epub ahead of print] Review.

PMID:
31160753
3.

The Unbearable Requirement of Informed Consent.

Clayton EW.

Am J Bioeth. 2019 May;19(5):19-20. doi: 10.1080/15265161.2019.1587550. No abstract available.

PMID:
31090522
4.

Risks of compulsory genetic databases-Response.

Hazel JW, Clayton EW, Malin BA, Slobogin C.

Science. 2019 Mar 1;363(6430):940. doi: 10.1126/science.aaw8839. No abstract available.

PMID:
30819956
5.

Detecting the Presence of an Individual in Phenotypic Summary Data.

Liu Y, Wan Z, Xia W, Kantarcioglu M, Vorobeychik Y, Clayton EW, Kho A, Carrell D, Malin BA.

AMIA Annu Symp Proc. 2018 Dec 5;2018:760-769. eCollection 2018.

6.

Enrichment sampling for a multi-site patient survey using electronic health records and census data.

Mercaldo ND, Brothers KB, Carrell DS, Clayton EW, Connolly JJ, Holm IA, Horowitz CR, Jarvik GP, Kitchner TE, Li R, McCarty CA, McCormick JB, McManus VD, Myers MF, Pankratz JJ, Shrubsole MJ, Smith ME, Stallings SC, Williams JL, Schildcrout JS.

J Am Med Inform Assoc. 2019 Mar 1;26(3):219-227. doi: 10.1093/jamia/ocy164.

PMID:
30590688
7.

Protecting Life While Preserving Liberty: Ethical Recommendations for Suicide Prevention With Artificial Intelligence.

McKernan LC, Clayton EW, Walsh CG.

Front Psychiatry. 2018 Dec 3;9:650. doi: 10.3389/fpsyt.2018.00650. eCollection 2018.

8.

A genetically augmented future.

Clayton EW.

Nature. 2018 Dec;564(7735):S9. doi: 10.1038/d41586-018-07642-0. No abstract available.

PMID:
30542180
9.

Is it time for a universal genetic forensic database?

Hazel JW, Clayton EW, Malin BA, Slobogin C.

Science. 2018 Nov 23;362(6417):898-900. doi: 10.1126/science.aav5475. No abstract available.

PMID:
30467160
10.

A systematic literature review of individuals' perspectives on privacy and genetic information in the United States.

Clayton EW, Halverson CM, Sathe NA, Malin BA.

PLoS One. 2018 Oct 31;13(10):e0204417. doi: 10.1371/journal.pone.0204417. eCollection 2018.

11.

Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey.

Antommaria AHM, Brothers KB, Myers JA, Feygin YB, Aufox SA, Brilliant MH, Conway P, Fullerton SM, Garrison NA, Horowitz CR, Jarvik GP, Li R, Ludman EJ, McCarty CA, McCormick JB, Mercaldo ND, Myers MF, Sanderson SC, Shrubsole MJ, Schildcrout JS, Williams JL, Smith ME, Clayton EW, Holm IA.

AJOB Empir Bioeth. 2018 Jul-Sep;9(3):128-142. doi: 10.1080/23294515.2018.1505783. Epub 2018 Sep 21.

PMID:
30240342
12.

Commercial Interests, the Technological Imperative, and Advocates: Three Forces Driving Genomic Sequencing in Newborns.

Pereira S, Clayton EW.

Hastings Cent Rep. 2018 Jul;48 Suppl 2:S43-S44. doi: 10.1002/hast.885.

PMID:
30133724
13.

Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience.

Porter KM, Kauffman TL, Koenig BA, Lewis KL, Rehm HL, Richards CS, Strande NT, Tabor HK, Wolf SM, Yang Y, Amendola LM, Azzariti DR, Berg JS, Bergstrom K, Biesecker LG, Biswas S, Bowling KM, Chung WK, Clayton EW, Conlin LK, Cooper GM, Dulik MC, Garraway LA, Ghazani AA, Green RC, Hiatt SM, Jamal SM, Jarvik GP, Goddard KAB, Wilfond BS; members of the CSER Actionability and Return of Results Working Group.

Mol Genet Genomic Med. 2018 Nov;6(6):898-909. doi: 10.1002/mgg3.453. Epub 2018 Aug 21.

14.

Physicians' perspectives on receiving unsolicited genomic results.

Pet DB, Holm IA, Williams JL, Myers MF, Novak LL, Brothers KB, Wiesner GL, Clayton EW.

Genet Med. 2019 Feb;21(2):311-318. doi: 10.1038/s41436-018-0047-z. Epub 2018 Jul 5.

15.

Insurance Coverage Policies for Pharmacogenomic and Multi-Gene Testing for Cancer.

Lu CY, Loomer S, Ceccarelli R, Mazor KM, Sabin J, Clayton EW, Ginsburg GS, Wu AC.

J Pers Med. 2018 May 16;8(2). pii: E19. doi: 10.3390/jpm8020019.

16.

Primum non nocere: the case against transplant for children with sickle cell anemia without progressive end-organ disease.

DeBaun MR, Clayton EW.

Blood Adv. 2017 Dec 8;1(26):2568-2571. doi: 10.1182/bloodadvances.2017007690. eCollection 2017 Dec 12.

17.

It's all in the timing: calibrating temporal penalties for biomedical data sharing.

Xia W, Wan Z, Yin Z, Gaupp J, Liu Y, Clayton EW, Kantarcioglu M, Vorobeychik Y, Malin BA.

J Am Med Inform Assoc. 2018 Jan 1;25(1):25-31. doi: 10.1093/jamia/ocx101.

18.

Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium.

Wolf SM, Amendola LM, Berg JS, Chung WK, Clayton EW, Green RC, Harris-Wai J, Henderson GE, Jarvik GP, Koenig BA, Lehmann LS, McGuire AL, O'Rourke P, Somkin C, Wilfond BS, Burke W.

Genet Med. 2018 Apr;20(5):545-553. doi: 10.1038/gim.2017.137. Epub 2017 Aug 31.

19.

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.

Sanderson SC, Brothers KB, Mercaldo ND, Clayton EW, Antommaria AHM, Aufox SA, Brilliant MH, Campos D, Carrell DS, Connolly J, Conway P, Fullerton SM, Garrison NA, Horowitz CR, Jarvik GP, Kaufman D, Kitchner TE, Li R, Ludman EJ, McCarty CA, McCormick JB, McManus VD, Myers MF, Scrol A, Williams JL, Shrubsole MJ, Schildcrout JS, Smith ME, Holm IA.

Am J Hum Genet. 2017 Mar 2;100(3):414-427. doi: 10.1016/j.ajhg.2017.01.021. Epub 2017 Feb 9.

20.

Expanding Access to Large-Scale Genomic Data While Promoting Privacy: A Game Theoretic Approach.

Wan Z, Vorobeychik Y, Xia W, Clayton EW, Kantarcioglu M, Malin B.

Am J Hum Genet. 2017 Feb 2;100(2):316-322. doi: 10.1016/j.ajhg.2016.12.002. Epub 2017 Jan 5.

21.

Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions.

Smith ME, Sanderson SC, Brothers KB, Myers MF, McCormick J, Aufox S, Shrubsole MJ, Garrison NA, Mercaldo ND, Schildcrout JS, Clayton EW, Antommaria AH, Basford M, Brilliant M, Connolly JJ, Fullerton SM, Horowitz CR, Jarvik GP, Kaufman D, Kitchner T, Li R, Ludman EJ, McCarty C, McManus V, Stallings S, Williams JL, Holm IA.

BMC Med Res Methodol. 2016 Nov 24;16(1):162.

22.

Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results.

Brothers KB, East KM, Kelley WV, Wright MF, Westbrook MJ, Rich CA, Bowling KM, Lose EJ, Bebin EM, Simmons S, Myers JA, Barsh G, Myers RM, Cooper GM, Pulley JM, Rothstein MA, Clayton EW.

Genet Med. 2017 Mar;19(3):337-344. doi: 10.1038/gim.2016.110. Epub 2016 Aug 25.

23.

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium.

Am J Hum Genet. 2016 Jul 7;99(1):246. doi: 10.1016/j.ajhg.2016.06.002. No abstract available.

24.

Response to Patryn and Zagaja.

Garrison NA, Clayton EW, Smith ME, Holm IA.

Genet Med. 2016 Jul;18(7):751. doi: 10.1038/gim.2016.27. Epub 2016 Apr 14. No abstract available.

PMID:
27359094
25.

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium.

Am J Hum Genet. 2016 Jun 2;98(6):1051-1066. doi: 10.1016/j.ajhg.2016.04.011. Epub 2016 May 12. Erratum in: Am J Hum Genet. 2016 Jul 7;99(1):246.

26.

Childhood Vaccine Exemptions: A Broader Perspective Is Required.

Byington CL, Clayton EW, Edwards KM.

Pediatrics. 2016 Apr;137(4). pii: e20160189. doi: 10.1542/peds.2016-0189. Epub 2016 Mar 18. No abstract available.

27.

Doping Doctors: The Influence of the Marketing Departments of Pharmaceutical Companies on Physician and Researcher Behavior in Japan.

Ichikawa I, Clayton EW.

Account Res. 2016;23(4):245-53. doi: 10.1080/08989621.2016.1144478. No abstract available.

28.

Privacy in the Genomic Era.

Naveed M, Ayday E, Clayton EW, Fellay J, Gunter CA, Hubaux JP, Malin BA, Wang X.

ACM Comput Surv. 2015 Sep;48(1). pii: 6.

29.

A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

Garrison NA, Sathe NA, Antommaria AH, Holm IA, Sanderson SC, Smith ME, McPheeters ML, Clayton EW.

Genet Med. 2016 Jul;18(7):663-71. doi: 10.1038/gim.2015.138. Epub 2015 Nov 19.

31.

When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority.

Brothers KB, Holm IA, Childerhose JE, Antommaria AH, Bernhardt BA, Clayton EW, Gelb BD, Joffe S, Lynch JA, McCormick JB, McCullough LB, Parsons DW, Sundaresan AS, Wolf WA, Yu JH, Wilfond BS; Pediatrics Workgroup of the Clinical Sequencing Exploratory Research (CSER) Consortium; Pediatrics Workgroup of the Clinical Sequencing Exploratory Research CSER Consortium.

J Pediatr. 2016 Jan;168:226-31.e1. doi: 10.1016/j.jpeds.2015.09.020. Epub 2015 Oct 23. No abstract available.

32.

Attitudes of clinicians following large-scale pharmacogenomics implementation.

Peterson JF, Field JR, Shi Y, Schildcrout JS, Denny JC, McGregor TL, Van Driest SL, Pulley JM, Lubin IM, Laposata M, Roden DM, Clayton EW.

Pharmacogenomics J. 2016 Aug;16(4):393-8. doi: 10.1038/tpj.2015.57. Epub 2015 Aug 11.

33.

Redefining Myalgic Encephalomyelitis/Chronic Fatigue Syndrome--Reply.

Clayton EW.

JAMA. 2015 Jul 7;314(1):85-6. doi: 10.1001/jama.2015.5760. No abstract available.

PMID:
26151278
34.

Why the Americans with Disabilities Act Matters for genetics.

Clayton EW.

JAMA. 2015 Jun 9;313(22):2225-6. doi: 10.1001/jama.2015.3419. No abstract available.

PMID:
26057280
35.

State-offered ethnically targeted reproductive genetic testing.

Clayton EW, Brothers KB.

Genet Med. 2016 Feb;18(2):126-7. doi: 10.1038/gim.2015.74. Epub 2015 Jun 4. No abstract available.

PMID:
26043291
36.

A game theoretic framework for analyzing re-identification risk.

Wan Z, Vorobeychik Y, Xia W, Clayton EW, Kantarcioglu M, Ganta R, Heatherly R, Malin BA.

PLoS One. 2015 Mar 25;10(3):e0120592. doi: 10.1371/journal.pone.0120592. eCollection 2015.

37.

Beyond myalgic encephalomyelitis/chronic fatigue syndrome: an IOM report on redefining an illness.

Clayton EW.

JAMA. 2015 Mar 17;313(11):1101-2. doi: 10.1001/jama.2015.1346. No abstract available.

PMID:
25668027
38.

Practical guidance on informed consent for pediatric participants in a biorepository.

Brothers KB, Lynch JA, Aufox SA, Connolly JJ, Gelb BD, Holm IA, Sanderson SC, McCormick JB, Williams JL, Wolf WA, Antommaria AH, Clayton EW.

Mayo Clin Proc. 2014 Nov;89(11):1471-80. doi: 10.1016/j.mayocp.2014.07.006. Epub 2014 Sep 26. No abstract available.

39.

Confronting commercial sexual exploitation and sex trafficking of minors.

Diaz A, Clayton EW, Simon P.

JAMA Pediatr. 2014 Sep;168(9):791-2. doi: 10.1001/jamapediatrics.2014.1002. No abstract available.

PMID:
25048823
40.

Return of genomic results to research participants: the floor, the ceiling, and the choices in between.

Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA; eMERGE Act-ROR Committee and CERC Committee; CSER Act-ROR Working Group, Burke W.

Am J Hum Genet. 2014 Jun 5;94(6):818-26. doi: 10.1016/j.ajhg.2014.04.009. Epub 2014 May 8.

41.

Responding to the sexual exploitation of minors.

Todres J, Clayton EW.

N Engl J Med. 2014 Apr 3;370(14):1282-3. doi: 10.1056/NEJMp1314927. No abstract available.

PMID:
24693888
42.

Seeking Genomic Knowledge: The Case for Clinical Restraint.

Burke W, Trinidad SB, Clayton EW.

Hastings Law J. 2013 Aug 1;64(6):1650-1664.

43.

Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings.

McGuire AL, Knoppers BM, Zawati MH, Clayton EW.

Genome Res. 2014 May;24(5):719-23. doi: 10.1101/gr.170514.113. Epub 2014 Mar 27.

44.

Addressing the ethical challenges in genetic testing and sequencing of children.

Clayton EW, McCullough LB, Biesecker LG, Joffe S, Ross LF, Wolf SM; Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group.

Am J Bioeth. 2014;14(3):3-9. doi: 10.1080/15265161.2013.879945.

45.

Patient awareness and approval for an opt-out genomic biorepository.

Brothers KB, Westbrook MJ, Wright MF, Myers JA, Morrison DR, Madison JL, Pulley JM, Clayton EW.

Per Med. 2013 Jun;10(4). doi: 10.2217/pme.13.34.

46.

Premature guidance about whole-genome sequencing.

Ross LF, Rothstein MA, Clayton EW.

Per Med. 2013 Aug 1;10(6):523-526. doi: 10.2217/pme.13.51. No abstract available.

47.

Stakeholder engagement: a key component of integrating genomic information into electronic health records.

Hartzler A, McCarty CA, Rasmussen LV, Williams MS, Brilliant M, Bowton EA, Clayton EW, Faucett WA, Ferryman K, Field JR, Fullerton SM, Horowitz CR, Koenig BA, McCormick JB, Ralston JD, Sanderson SC, Smith ME, Trinidad SB.

Genet Med. 2013 Oct;15(10):792-801. doi: 10.1038/gim.2013.127. Epub 2013 Sep 12. Review.

48.

Ethical, legal, and social implications of incorporating genomic information into electronic health records.

Hazin R, Brothers KB, Malin BA, Koenig BA, Sanderson SC, Rothstein MA, Williams MS, Clayton EW, Kullo IJ.

Genet Med. 2013 Oct;15(10):810-6. doi: 10.1038/gim.2013.117. Epub 2013 Sep 12. Review.

49.

Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making.

Ross LF, Rothstein MA, Clayton EW.

JAMA. 2013 Jul 24;310(4):367-8. doi: 10.1001/jama.2013.41700. No abstract available.

PMID:
23917281
50.

Recommendations for returning genomic incidental findings? We need to talk!

Burke W, Antommaria AH, Bennett R, Botkin J, Clayton EW, Henderson GE, Holm IA, Jarvik GP, Khoury MJ, Knoppers BM, Press NA, Ross LF, Rothstein MA, Saal H, Uhlmann WR, Wilfond B, Wolf SM, Zimmern R.

Genet Med. 2013 Nov;15(11):854-9. doi: 10.1038/gim.2013.113. Epub 2013 Aug 1. Review.

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