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Items: 21

1.

Interoperable Electronic Health Records and Health Information Exchanges: Systematic Review.

Dobrow MJ, Bytautas JP, Tharmalingam S, Hagens S.

JMIR Med Inform. 2019 Jun 6;7(2):e12607. doi: 10.2196/12607. Review.

2.

How Procurement Judges The Value of Medical Technologies: A Review of Healthcare Tenders.

Miller FA, Lehoux P, Peacock S, Rac VE, Neukomm J, Barg C, Bytautas JP, Krahn M.

Int J Technol Assess Health Care. 2019 Jan;35(1):50-55. doi: 10.1017/S0266462318003756. Epub 2019 Feb 8. Review.

PMID:
30732667
3.

Psychosocial Response to Uncertain Newborn Screening Results for Cystic Fibrosis.

Hayeems RZ, Miller FA, Barg CJ, Bombard Y, Carroll JC, Tam K, Kerr E, Chakraborty P, Potter BK, Patton S, Bytautas JP, Taylor L, Davies C, Milburn J, Price A, Gonska T, Keenan K, Ratjen F, Guttmann A.

J Pediatr. 2017 May;184:165-171.e1. doi: 10.1016/j.jpeds.2017.01.049. Epub 2017 Mar 6.

PMID:
28279431
4.

Parent Experience With False-Positive Newborn Screening Results for Cystic Fibrosis.

Hayeems RZ, Miller FA, Barg CJ, Bombard Y, Kerr E, Tam K, Carroll JC, Potter BK, Chakraborty P, Davies C, Milburn J, Patton S, Bytautas JP, Taylor L, Price A, Gonska T, Keenan K, Ratjen F, Guttmann A.

Pediatrics. 2016 Sep;138(3). pii: e20161052. doi: 10.1542/peds.2016-1052. Epub 2016 Aug 2.

5.

A scoping review of online repositories of quality improvement projects, interventions and initiatives in healthcare.

Bytautas JP, Gheihman G, Dobrow MJ.

BMJ Qual Saf. 2017 Apr;26(4):296-303. doi: 10.1136/bmjqs-2015-005092. Epub 2016 Apr 20. Review.

PMID:
27099359
6.

Primary care role in expanded newborn screening: After the heel prick test.

Hayeems RZ, Miller FA, Carroll JC, Little J, Allanson J, Bytautas JP, Chakraborty P, Wilson BJ.

Can Fam Physician. 2013 Aug;59(8):861-8.

7.

Testing personalized medicine: patient and physician expectations of next-generation genomic sequencing in late-stage cancer care.

Miller FA, Hayeems RZ, Bytautas JP, Bedard PL, Ernst S, Hirte H, Hotte S, Oza A, Razak A, Welch S, Winquist E, Dancey J, Siu LL.

Eur J Hum Genet. 2014 Mar;22(3):391-5. doi: 10.1038/ejhg.2013.158. Epub 2013 Jul 17.

8.

Does a duty of disclosure foster special treatment of genetic research participants?

Hayeems RZ, Miller FA, Bytautas JP, Li L.

J Genet Couns. 2013 Oct;22(5):654-61. doi: 10.1007/s10897-013-9597-z. Epub 2013 May 17.

PMID:
23681280
9.

Do canadian researchers and the lay public prioritize biomedical research outcomes equally? A choice experiment.

Miller FA, Mentzakis E, Axler R, Lehoux P, French M, Tarride JE, Wodchis WP, Wilson BJ, Longo C, Bytautas JP, Slater B.

Acad Med. 2013 Apr;88(4):519-26. doi: 10.1097/ACM.0b013e31828577fe.

PMID:
23425982
10.

One thing leads to another: the cascade of obligations when researchers report genetic research results to study participants.

Miller FA, Hayeems RZ, Li L, Bytautas JP.

Eur J Hum Genet. 2012 Aug;20(8):837-43. doi: 10.1038/ejhg.2012.24. Epub 2012 Feb 15.

11.

Citizens' values regarding research with stored samples from newborn screening in Canada.

Bombard Y, Miller FA, Hayeems RZ, Carroll JC, Avard D, Wilson BJ, Little J, Bytautas JP, Allanson J, Axler R, Giguere Y, Chakraborty P.

Pediatrics. 2012 Feb;129(2):239-47. doi: 10.1542/peds.2011-2572. Epub 2012 Jan 16.

PMID:
22250019
12.

Health-care providers' views on pursuing reproductive benefit through newborn screening: the case of sickle cell disorders.

Bombard Y, Miller FA, Hayeems RZ, Wilson BJ, Carroll JC, Paynter M, Little J, Allanson J, Bytautas JP, Chakraborty P.

Eur J Hum Genet. 2012 May;20(5):498-504. doi: 10.1038/ejhg.2011.188. Epub 2011 Nov 9.

13.

What does 'respect for persons' require? Attitudes and reported practices of genetics researchers in informing research participants about research.

Miller FA, Hayeems RZ, Li L, Bytautas JP.

J Med Ethics. 2012 Jan;38(1):48-52. doi: 10.1136/jme.2010.041350. Epub 2011 Jun 17.

PMID:
21685149
14.

Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results.

Hayeems RZ, Miller FA, Li L, Bytautas JP.

Eur J Hum Genet. 2011 Jul;19(7):740-7. doi: 10.1038/ejhg.2011.34. Epub 2011 Mar 16.

15.

The primary care physician role in cancer genetics: a qualitative study of patient experience.

Miller FA, Carroll JC, Wilson BJ, Bytautas JP, Allanson J, Cappelli M, de Laat S, Saibil F.

Fam Pract. 2010 Oct;27(5):563-9. doi: 10.1093/fampra/cmq035. Epub 2010 Jun 9.

PMID:
20534792
16.

What is a meaningful result? Disclosing the results of genomic research in autism to research participants.

Miller FA, Hayeems RZ, Bytautas JP.

Eur J Hum Genet. 2010 Aug;18(8):867-71. doi: 10.1038/ejhg.2010.34. Epub 2010 Mar 17.

17.

Understanding sickle cell carrier status identified through newborn screening: a qualitative study.

Miller FA, Paynter M, Hayeems RZ, Little J, Carroll JC, Wilson BJ, Allanson J, Bytautas JP, Chakraborty P.

Eur J Hum Genet. 2010 Mar;18(3):303-8. doi: 10.1038/ejhg.2009.173. Epub 2009 Oct 7.

18.

Clinical obligations and public health programmes: healthcare provider reasoning about managing the incidental results of newborn screening.

Miller FA, Hayeems RZ, Bombard Y, Little J, Carroll JC, Wilson B, Allanson J, Paynter M, Bytautas JP, Christensen R, Chakraborty P.

J Med Ethics. 2009 Oct;35(10):626-34. doi: 10.1136/jme.2009.030346.

PMID:
19793944
19.

Consent for newborn screening: the attitudes of health care providers.

Miller FA, Hayeems RZ, Carroll JC, Wilson B, Little J, Allanson J, Bytautas JP, Paynter M, Christensen R, Chaktraborty P.

Public Health Genomics. 2010;13(3):181-90. doi: 10.1159/000240966. Epub 2009 Sep 22.

PMID:
19776551
20.

Informing parents about expanded newborn screening: influences on provider involvement.

Hayeems RZ, Miller FA, Little J, Carroll JC, Allanson J, Chakraborty P, Wilson BJ, Bytautas JP, Christensen RJ.

Pediatrics. 2009 Sep;124(3):950-8. doi: 10.1542/peds.2008-3148. Epub 2009 Aug 10.

PMID:
19706578
21.

A systematic review of the effects of disclosing carrier results generated through newborn screening.

Hayeems RZ, Bytautas JP, Miller FA.

J Genet Couns. 2008 Dec;17(6):538-49. doi: 10.1007/s10897-008-9180-1. Epub 2008 Oct 28. Review.

PMID:
18956236

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