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Items: 1 to 50 of 80

1.

Ethical considerations for cardiac surgical interventions in children with trisomy 13 and trisomy 18.

Neubauer K, Boss RD.

Am J Med Genet C Semin Med Genet. 2020 Jan 24. doi: 10.1002/ajmg.c.31767. [Epub ahead of print]

PMID:
31975573
2.

Parent preferences for neurodevelopmental screening in the neonatal intensive care unit.

Dorner RA, Boss RD, Burton VJ, Raja K, Lemmon ME.

Dev Med Child Neurol. 2020 Jan 7. doi: 10.1111/dmcn.14457. [Epub ahead of print]

PMID:
31909496
3.

Lived Experience of Pediatric Home Health Care Among Families of Children With Medical Complexity.

Boss RD, Raisanen JC, Detwiler K, Fratantoni K, Huff SM, Neubauer K, Donohue PK.

Clin Pediatr (Phila). 2020 Feb;59(2):178-187. doi: 10.1177/0009922819894006. Epub 2019 Dec 18.

PMID:
31849237
4.

Defining the Boundaries of Palliative Care in Pediatric Oncology.

Cuviello A, Raisanen JC, Donohue PK, Wiener L, Boss RD.

J Pain Symptom Manage. 2019 Dec 12. pii: S0885-3924(19)30677-3. doi: 10.1016/j.jpainsymman.2019.11.022. [Epub ahead of print]

PMID:
31838131
5.

Medical Decision-Making in Foster Care: Considerations for the Care of Children With Medical Complexity.

Seltzer RR, Raisanen JC, da Silva T, Donohue PK, Williams EP, Shepard J, Boss RD.

Acad Pediatr. 2019 Dec 4. pii: S1876-2859(19)30502-9. doi: 10.1016/j.acap.2019.11.018. [Epub ahead of print]

PMID:
31809809
6.

Pediatric Chronic Critical Illness: Gaps in Inpatient Intrateam Communication.

Hirschfeld RS, Barone S, Johnson E, Boss RD.

Pediatr Crit Care Med. 2019 Dec;20(12):e546-e555. doi: 10.1097/PCC.0000000000002150.

PMID:
31634307
7.

The Pediatric Home Health Care Process: Perspectives of Prescribers, Providers, and Recipients.

Fratantoni K, Raisanen JC, Boss RD, Miller J, Detwiler K, Huff SM, Neubauer K, Donohue PK.

Pediatrics. 2019 Sep;144(3). pii: e20190897. doi: 10.1542/peds.2019-0897.

PMID:
31467245
8.

Challenges and Priorities for Pediatric Palliative Care Research in the U.S. and Similar Practice Settings: Report From a Pediatric Palliative Care Research Network Workshop.

Feudtner C, Rosenberg AR, Boss RD, Wiener L, Lyon ME, Hinds PS, Bluebond-Langner M, Wolfe J.

J Pain Symptom Manage. 2019 Nov;58(5):909-917.e3. doi: 10.1016/j.jpainsymman.2019.08.011. Epub 2019 Aug 21.

PMID:
31445136
9.

Exploring Medical Foster Care as a Placement Option for Children With Medical Complexity.

Seltzer RR, Raisanen JC, Williams EP, Da Silva T, Donohue PK, Boss RD.

Hosp Pediatr. 2019 Sep;9(9):697-706. doi: 10.1542/hpeds.2018-0229. Epub 2019 Aug 19.

PMID:
31427371
10.

Neurodevelopmental Risk: A Tool to Enhance Conversations With Families of Infants.

Lemmon ME, Huffstetler HE, Donohue P, Katz M, Barks MC, Schindler E, Brandon D, Boss RD, Ubel PA.

J Child Neurol. 2019 Oct;34(11):653-659. doi: 10.1177/0883073819844927. Epub 2019 May 29.

PMID:
31137987
11.

Social Disparities and Death Among Children With Complex Chronic Conditions.

Boss RD.

Pediatrics. 2019 May;143(5). pii: e20190511. doi: 10.1542/peds.2019-0511. Epub 2019 Apr 10. No abstract available.

PMID:
30971432
12.

Child Abuse, Incarceration, and Decisions About Life-sustaining Treatment.

Mann PC, Weiss EM, Seltzer RR, Dodge RAB, Boss RD, Lantos JD.

Pediatrics. 2018 Dec;142(6). pii: e20180430. doi: 10.1542/peds.2018-0430. Epub 2018 Nov 8.

13.

Medically Complex Children in Foster Care: Do Research "Protections" Make This "Vulnerable Population" More Vulnerable?

Seltzer RR, Kasimatis Singleton M, Williams EP, Boss RD.

J Clin Ethics. 2018 Summer;29(2):145-9.

PMID:
30129744
14.

Medical Decision Making for Medically Complex Children in Foster Care: Who Knows the Child’s Best Interests?

Seltzer RR, Dodge RAB, Boss RD.

J Clin Ethics. Summer 2018;29(2):139-44.

PMID:
30129740
15.

Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences.

Neubauer K, Williams EP, Donohue PK, Boss RD.

Cardiol Young. 2018 Oct;28(10):1088-1092. doi: 10.1017/S1047951118001233. Epub 2018 Jul 31. Review.

PMID:
30062980
16.

Low prevalence of palliative care and ethics consultations for children with chronic critical illness.

Boss RD, Falck A, Goloff N, Hutton N, Miles A, Shapiro M, Weiss EM, Donohue PK; Pediatric Chronic Critical Illness Collaborative.

Acta Paediatr. 2018 Oct;107(10):1832-1833. doi: 10.1111/apa.14394. Epub 2018 May 30. No abstract available.

PMID:
29751362
17.

"It's Relentless": Providers' Experience of Pediatric Chronic Critical Illness.

Donohue PK, Williams EP, Wright-Sexton L, Boss RD.

J Palliat Med. 2018 Jul;21(7):940-946. doi: 10.1089/jpm.2017.0397. Epub 2018 Mar 23.

PMID:
29570427
18.

No question too small: development of a question prompt list for parents of critically ill infants.

Lemmon ME, Donohue PK, Williams EP, Brandon D, Ubel PA, Boss RD.

J Perinatol. 2018 Apr;38(4):386-391. doi: 10.1038/s41372-017-0029-z. Epub 2018 Feb 22.

PMID:
29472708
19.

Bringing Social Context Into the Conversation About Pediatric Long-term Ventilation.

Henderson CM, Wilfond BS, Boss RD.

Hosp Pediatr. 2018 Jan 11. pii: hpeds.2016-0168. doi: 10.1542/hpeds.2016-0168. [Epub ahead of print] No abstract available.

20.

Education Research: Difficult conversations in neurology: Lessons learned from medical students.

Lemmon ME, Gamaldo C, Salas RME, Saxena A, Cruz TE, Boss RD, Strowd RE.

Neurology. 2018 Jan 9;90(2):93-97. doi: 10.1212/WNL.0000000000004794.

PMID:
29311368
21.

Enhancing Pediatric Palliative Care for Latino Children and Their Families: A Review of the Literature and Recommendations for Research and Practice in the United States.

Muñoz-Blanco S, Raisanen JC, Donohue PK, Boss RD.

Children (Basel). 2017 Dec 22;5(1). pii: E2. doi: 10.3390/children5010002. Review.

22.

"Stuck in the ICU": Caring for Children With Chronic Critical Illness.

Henderson CM, Williams EP, Shapiro MC, Hahn E, Wright-Sexton L, Hutton N, Boss RD.

Pediatr Crit Care Med. 2017 Nov;18(11):e561-e568. doi: 10.1097/PCC.0000000000001332.

PMID:
28922265
23.

Values-based shared decision-making in the antenatal period.

Kukora SK, Boss RD.

Semin Fetal Neonatal Med. 2018 Feb;23(1):17-24. doi: 10.1016/j.siny.2017.09.003. Epub 2017 Sep 13. Review.

PMID:
28917833
24.

Language Matters: Identifying Medically Complex Children in Foster Care.

Williams EP, Seltzer RR, Boss RD.

Pediatrics. 2017 Oct;140(4). pii: e20163692. doi: 10.1542/peds.2016-3692. Epub 2017 Sep 1. No abstract available.

25.

"I don't know what I was expecting": Home visits by neonatology fellows for infants discharged from the NICU.

Hobbs JE, Tschudy MM, Hussey-Gardner B, Jennings JM, Boss RD.

Birth. 2017 Dec;44(4):331-336. doi: 10.1111/birt.12301. Epub 2017 Aug 22.

PMID:
28833441
26.

Pediatric Chronic Critical Illness: Reducing Excess Hospitalizations.

Boss RD, Williams EP, Henderson CM, Seltzer RR, Shapiro MC, Hahn E, Hutton N.

Hosp Pediatr. 2017 Jul 27. pii: hpeds.2016-0185. doi: 10.1542/hpeds.2016-0185. [Epub ahead of print]

27.

Communicating prognosis with parents of critically ill infants: direct observation of clinician behaviors.

Boss RD, Lemmon ME, Arnold RM, Donohue PK.

J Perinatol. 2017 Nov;37(11):1224-1229. doi: 10.1038/jp.2017.118. Epub 2017 Jul 27.

28.

Reflective practice: Guarded.

Boss RD.

Patient Educ Couns. 2018 Jan;101(1):171-172. doi: 10.1016/j.pec.2017.06.031. Epub 2017 Jul 5. No abstract available.

PMID:
28711414
29.

Professional Responsibility, Consensus, and Conflict: A Survey of Physician Decisions for the Chronically Critically Ill in Neonatal and Pediatric Intensive Care Units.

Shapiro MC, Donohue PK, Kudchadkar SR, Hutton N, Boss RD.

Pediatr Crit Care Med. 2017 Sep;18(9):e415-e422. doi: 10.1097/PCC.0000000000001247.

PMID:
28658198
30.

Hospital Chaplains: Through the Eyes of Parents of Hospitalized Children.

Donohue PK, Norvell M, Boss RD, Shepard J, Frank K, Patron C, Crowe TY 2nd.

J Palliat Med. 2017 Dec;20(12):1352-1358. doi: 10.1089/jpm.2016.0547. Epub 2017 Jun 26.

PMID:
28650723
31.

Care of the Critically Ill Burn Patient. An Overview from the Perspective of Optimizing Palliative Care.

Ray DE, Karlekar MB, Crouse DL, Campbell M, Curtis JR, Edwards J, Frontera J, Lustbader DR, Mosenthal AC, Mulkerin C, Puntillo KA, Weissman DE, Boss RD, Brasel KJ, Nelson JE; Improving Palliative Care in the Intensive Care Unit (IPAL-ICU) Project Advisory Board.

Ann Am Thorac Soc. 2017 Jul;14(7):1094-1102. doi: 10.1513/AnnalsATS.201607-577PS. Review. Erratum in: Ann Am Thorac Soc. 2017 Dec;14(12):1866.

PMID:
28590164
32.

Caring for Families at the Limits of Viability: The Education of Dr Green.

Stokes TA, Kukora SK, Boss RD.

Clin Perinatol. 2017 Jun;44(2):447-459. doi: 10.1016/j.clp.2017.01.007. Epub 2017 Mar 18. Review.

PMID:
28477671
33.

Defining Pediatric Chronic Critical Illness for Clinical Care, Research, and Policy.

Shapiro MC, Henderson CM, Hutton N, Boss RD.

Hosp Pediatr. 2017 Apr;7(4):236-244. doi: 10.1542/hpeds.2016-0107. Review.

34.

Characterization of Death in Neonatal Encephalopathy in the Hypothermia Era.

Lemmon ME, Boss RD, Bonifacio SL, Foster-Barber A, Barkovich AJ, Glass HC.

J Child Neurol. 2017 Mar;32(4):360-365. doi: 10.1177/0883073816681904. Epub 2016 Dec 20.

35.

Neonatologist training in communication and palliative care.

Henner N, Boss RD.

Semin Perinatol. 2017 Mar;41(2):106-110. doi: 10.1053/j.semperi.2016.11.003. Epub 2017 Feb 4.

PMID:
28168998
36.

Red flags: a case series of clinician-family communication challenges in the context of CHD.

Sekar P, Marcus KL, Williams EP, Boss RD.

Cardiol Young. 2017 Jul;27(5):1000-1003. doi: 10.1017/S1047951116002730. Epub 2017 Jan 16.

PMID:
28088921
37.

Parent Experience of Neonatal Encephalopathy.

Lemmon ME, Donohue PK, Parkinson C, Northington FJ, Boss RD.

J Child Neurol. 2017 Mar;32(3):286-292. doi: 10.1177/0883073816680747. Epub 2016 Dec 8.

38.

Ethical Questions about Platelet Transfusions at the End of Life.

Sherbeck JP, Boss RD.

AMA J Ethics. 2016 Aug 1;18(8):764-70. doi: 10.1001/journalofethics.2016.18.8.ecas1-1608.

39.

Communication Challenges in Neonatal Encephalopathy.

Lemmon ME, Donohue PK, Parkinson C, Northington FJ, Boss RD.

Pediatrics. 2016 Sep;138(3). pii: e20161234. doi: 10.1542/peds.2016-1234. Epub 2016 Aug 3.

40.

Chronic Critical Illness in Infants and Children: A Speculative Synthesis on Adapting ICU Care to Meet the Needs of Long-Stay Patients.

Marcus KL, Henderson CM, Boss RD.

Pediatr Crit Care Med. 2016 Aug;17(8):743-52. doi: 10.1097/PCC.0000000000000792. Review.

PMID:
27295581
41.

The Cambia Sojourns Scholars Leadership Program: Project Summaries from the Inaugural Scholar Cohort.

Kamal AH, Anderson WG, Boss RD, Brody AA, Campbell TC, Creutzfeldt CJ, Hurd CJ, Kinderman AL, Lindenberger EC, Reinke LF.

J Palliat Med. 2016 Jun;19(6):591-600. doi: 10.1089/jpm.2016.0086. Epub 2016 May 11.

PMID:
27168030
42.

Family Conferences in the Neonatal ICU: Observation of Communication Dynamics and Contributions.

Boss RD, Donohue PK, Larson SM, Arnold RM, Roter DL.

Pediatr Crit Care Med. 2016 Mar;17(3):223-30. doi: 10.1097/PCC.0000000000000617.

43.

Palliative care in neonatal neurology: robust support for infants, families and clinicians.

Lemmon ME, Bidegain M, Boss RD.

J Perinatol. 2016 May;36(5):331-7. doi: 10.1038/jp.2015.188. Epub 2015 Dec 10. Review.

PMID:
26658120
44.

Medical foster care: what happens when children with medical complexity cannot be cared for by their families?

Seltzer RR, Henderson CM, Boss RD.

Pediatr Res. 2016 Jan;79(1-2):191-6. doi: 10.1038/pr.2015.196. Epub 2015 Oct 13. Review.

PMID:
26460524
45.

The decision to donate: helping families make meaning during neonatal loss. In response to: anencephalic organ donation after cardiac death: practicalities and ethics-a case report.

Williams L, Kennedy K, Boss RD.

J Perinatol. 2015 Oct;35(10):777-8. doi: 10.1038/jp.2015.101. No abstract available.

PMID:
26412403
46.

Integrating Palliative Care Into the Care of Neurocritically Ill Patients: A Report From the Improving Palliative Care in the ICU Project Advisory Board and the Center to Advance Palliative Care.

Frontera JA, Curtis JR, Nelson JE, Campbell M, Gabriel M, Mosenthal AC, Mulkerin C, Puntillo KA, Ray DE, Bassett R, Boss RD, Lustbader DR, Brasel KJ, Weiss SP, Weissman DE; Improving Palliative Care in the ICU Project Advisory Board.

Crit Care Med. 2015 Sep;43(9):1964-77. doi: 10.1097/CCM.0000000000001131.

47.

Decisions regarding resuscitation of extremely premature infants: should social context matter?

Boss RD, Henderson CM, Wilfond BS.

JAMA Pediatr. 2015 Jun;169(6):521-2. doi: 10.1001/jamapediatrics.2014.3813. No abstract available.

PMID:
25915579
48.

Novel legislation for pediatric advance directives: surveys and focus groups capture parent and clinician perspectives.

Boss RD, Hutton N, Griffin PL, Wieczorek BH, Donohue PK.

Palliat Med. 2015 Apr;29(4):346-53. doi: 10.1177/0269216315571020. Epub 2015 Feb 10.

PMID:
25670471
49.

Conflicts in Learning to Care for Critically Ill Newborns: "It Makes Me Question My Own Morals".

Boss RD, Geller G, Donohue PK.

J Bioeth Inq. 2015 Sep;12(3):437-48. doi: 10.1007/s11673-015-9609-9. Epub 2015 Feb 6.

PMID:
25656132
50.

Integration of palliative care in the context of rapid response: a report from the Improving Palliative Care in the ICU advisory board.

Nelson JE, Mathews KS, Weissman DE, Brasel KJ, Campbell M, Curtis JR, Frontera JA, Gabriel M, Hays RM, Mosenthal AC, Mulkerin C, Puntillo KA, Ray DE, Weiss SP, Bassett R, Boss RD, Lustbader DR.

Chest. 2015 Feb;147(2):560-569. doi: 10.1378/chest.14-0993. Review.

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