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Items: 1 to 20 of 100

1.

Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors.

SanGiacomo N, Toth J, Hobbie W, Broden E, Ver Hoeve E, Knafl KA, Barakat L, Ogle S, Deatrick JA.

J Pediatr Oncol Nurs. 2019 May 3:1043454219844229. doi: 10.1177/1043454219844229. [Epub ahead of print]

PMID:
31046569
2.

Patterns of family management for adolescent and young adult brain tumor survivors.

Deatrick JA, Barakat LP, Knafl GJ, Hobbie W, Ogle S, Ginsberg JP, Fisher MJ, Hardie T, Reilly M, Broden E, Toth J, SanGiacomo N, Knafl KA.

J Fam Psychol. 2018 Apr;32(3):321-332. doi: 10.1037/fam0000352.

3.

Competence in caregivers of adolescent and young adult childhood brain tumor survivors.

Deatrick JA, Hobbie W, Ogle S, Fisher MJ, Barakat L, Hardie T, Reilly M, Li Y, Ginsberg JP.

Health Psychol. 2014 Oct;33(10):1103-12. doi: 10.1037/a0033756. Epub 2013 Aug 19.

4.

Health-related quality of life of adolescent and young adult survivors of childhood brain tumors.

Barakat LP, Li Y, Hobbie WL, Ogle SK, Hardie T, Volpe EM, Szabo MM, Reilly M, Deatrick JA.

Psychooncology. 2015 Jul;24(7):804-11. doi: 10.1002/pon.3649. Epub 2014 Aug 11.

5.

Long-term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review.

Nicklin E, Velikova G, Hulme C, Rodriguez Lopez R, Glaser A, Kwok-Williams M, Boele F.

Psychooncology. 2019 Mar;28(3):477-487. doi: 10.1002/pon.4989. Epub 2019 Feb 1. Review.

PMID:
30657618
6.

"On Your Own": Adolescent and Young Adult Cancer Survivors' Experience of Managing Return to Secondary or Higher Education in Denmark.

Elsbernd A, Pedersen KJ, Boisen KA, Midtgaard J, Larsen HB.

J Adolesc Young Adult Oncol. 2018 Oct;7(5):618-625. doi: 10.1089/jayao.2018.0058. Epub 2018 Jul 9.

PMID:
29985720
7.

"She Was a Little Social Butterfly": A Qualitative Analysis of Parent Perception of Social Functioning in Adolescent and Young Adult Brain Tumor Survivors.

Wilford J, Buchbinder D, Fortier MA, Osann K, Shen V, Torno L, Sender LS, Parsons SK, Wenzel L.

J Pediatr Oncol Nurs. 2017 Jul/Aug;34(4):239-249. doi: 10.1177/1043454216688660. Epub 2017 Feb 1.

8.

Knowledge of Late Effects Risks and Healthcare Responsibility in Adolescents and Young Adults Treated for Childhood Cancer.

Lee JL, Gutierrez-Colina A, Williamson Lewis R, Wasilewski-Masker K, Meacham LR, Mertens AC, Gilleland Marchak J.

J Pediatr Psychol. 2019 Jun 1;44(5):557-566. doi: 10.1093/jpepsy/jsy102.

PMID:
30624691
9.

Adolescent and Young Adult Survivors of Childhood Brain Tumors: Life After Treatment in Their Own Words.

Hobbie WL, Ogle S, Reilly M, Barakat L, Lucas MS, Ginsberg JP, Fisher MJ, Volpe EM, Deatrick JA.

Cancer Nurs. 2016 Mar-Apr;39(2):134-43. doi: 10.1097/NCC.0000000000000266.

10.

Mother-caregiver expectations for function among survivors of childhood brain tumors.

Lucas MS, Barakat LP, Ulrich CM, Jones NL, Deatrick JA.

Support Care Cancer. 2016 May;24(5):2147-2154. doi: 10.1007/s00520-015-3013-1. Epub 2015 Nov 10.

11.

Development of a Web-Based Psychosocial Intervention for Adolescent and Young Adult Survivors of Pediatric Brain Tumor.

Raj SP, Narad ME, Salloum R, Platt A, Thompson A, Baum KT, Wade SL.

J Adolesc Young Adult Oncol. 2018 Apr;7(2):187-195. doi: 10.1089/jayao.2017.0084. Epub 2017 Dec 6.

PMID:
29211576
12.

The health and well-being of caregivers of children with cerebral palsy.

Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, Swinton M, Zhu B, Wood E.

Pediatrics. 2005 Jun;115(6):e626-36.

PMID:
15930188
13.

Maternal Caregiving Demands for Adolescent and Young Adult Survivors of Pediatric Brain Tumors.

Palma E, Deatrick JA, Hobbie WL, Ogle SK, Kobayashi K, Maldonado L.

Oncol Nurs Forum. 2015 May;42(3):222-9. doi: 10.1188/15.ONF.222-229.

PMID:
25901374
14.

Family Functioning Mediates the Association Between Neurocognitive Functioning and Health-Related Quality of Life in Young Adult Survivors of Childhood Brain Tumors.

Hocking MC, Hobbie WL, Deatrick JA, Hardie TL, Barakat LP.

J Adolesc Young Adult Oncol. 2015 Mar;4(1):18-25. doi: 10.1089/jayao.2014.0022.

15.

Challenges and opportunities in the care of survivors of adolescent and young adult cancers.

Fidler MM, Frobisher C, Hawkins MM, Nathan PC.

Pediatr Blood Cancer. 2019 Jun;66(6):e27668. doi: 10.1002/pbc.27668. Epub 2019 Feb 28. Review.

PMID:
30815985
16.

Innovative educational approaches to engage and empower the adolescent and young adult childhood cancer survivor.

Sadak KT, Connor C, DeLuca H.

Pediatr Blood Cancer. 2013 Dec;60(12):1919-21. doi: 10.1002/pbc.24635. Epub 2013 Aug 17.

PMID:
23956094
17.

Schooling in survivorship: Understanding caregiver challenges when survivors return to school.

Paré-Blagoev EJ, Ruble K, Bryant C, Jacobson L.

Psychooncology. 2019 Apr;28(4):847-853. doi: 10.1002/pon.5026. Epub 2019 Mar 7.

PMID:
30758107
18.

The effectiveness of school-based family asthma educational programs on the quality of life and number of asthma exacerbations of children aged five to 18 years diagnosed with asthma: a systematic review protocol.

Walter H, Sadeque-Iqbal F, Ulysse R, Castillo D, Fitzpatrick A, Singleton J.

JBI Database System Rev Implement Rep. 2015 Oct;13(10):69-81. doi: 10.11124/jbisrir-2015-2335.

PMID:
26571284
19.

Predictors of Posttraumatic Stress Symptoms Among Adolescent and Young Adult Survivors of Childhood Cancer: Importance of Monitoring Survivors' Experiences of Family Functioning.

Kamibeppu K, Murayama S, Ozono S, Sakamoto N, Iwai T, Asami K, Maeda N, Inada H, Kakee N, Okamura J, Horibe K, Ishida Y.

J Fam Nurs. 2015 Nov;21(4):529-50. doi: 10.1177/1074840715606247. Epub 2015 Oct 6.

PMID:
26442952
20.

Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: in their own words.

Wong AWK, Chang TT, Christopher K, Lau SCL, Beaupin LK, Love B, Lipsey KL, Feuerstein M.

J Cancer Surviv. 2017 Dec;11(6):751-764. doi: 10.1007/s11764-017-0613-4. Epub 2017 Mar 29.

PMID:
28357785

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