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Items: 1 to 20 of 95

1.

Genes wide open: Data sharing and the social gradient of genomic privacy.

Haeusermann T, Fadda M, Blasimme A, Tzovaras BG, Vayena E.

AJOB Empir Bioeth. 2018 Dec 31:1-15. doi: 10.1080/23294515.2018.1550123. [Epub ahead of print]

PMID:
30596357
2.

Open sharing of genomic data: Who does it and why?

Haeusermann T, Greshake B, Blasimme A, Irdam D, Richards M, Vayena E.

PLoS One. 2017 May 9;12(5):e0177158. doi: 10.1371/journal.pone.0177158. eCollection 2017.

5.

Anonymity versus privacy: selective information sharing in online cancer communities.

Frost J, Vermeulen IE, Beekers N.

J Med Internet Res. 2014 May 14;16(5):e126. doi: 10.2196/jmir.2684.

6.

Attitudes towards Social Networking and Sharing Behaviors among Consumers of Direct-to-Consumer Personal Genomics.

Lee SS, Vernez SL, Ormond KE, Granovetter M.

J Pers Med. 2013 Oct 14;3(4):275-87. doi: 10.3390/jpm3040275.

7.

Attitudes towards Personal Genomics and Sharing of Genetic Data among Older Swiss Adults: A Qualitative Study.

Mählmann L, Schee Gen Halfmann S, von Wyl A, Brand A.

Public Health Genomics. 2017;20(5):293-306. doi: 10.1159/000486588. Epub 2018 Feb 7. Erratum in: Public Health Genomics. 2017;20(5):306.

PMID:
29414817
8.

Public perspectives regarding data-sharing practices in genomics research.

Haga SB, O'Daniel J.

Public Health Genomics. 2011;14(6):319-24. doi: 10.1159/000324705. Epub 2011 Mar 24.

9.

Challenges of web-based personal genomic data sharing.

Shabani M, Borry P.

Life Sci Soc Policy. 2015;11:3. doi: 10.1186/s40504-014-0022-7. Epub 2015 Mar 27.

10.

Sexual Health Research With Young Black Men Who Have Sex With Men: Experiences of Benefits and Harms.

Arrington-Sanders R, Morgan A, Oidtman J, Dao A, Moon M, Fortenberry JD, Ott MA.

Arch Sex Behav. 2017 May;46(4):937-946. doi: 10.1007/s10508-016-0715-5. Epub 2016 Apr 4.

11.

It Starts With Me: Privacy concerns and stigma in the evaluation of a Facebook health promotion intervention.

Witzel TC, Guise A, Nutland W, Bourne A.

Sex Health. 2016 Jun;13(3):228-33. doi: 10.1071/SH15231.

12.

Patients' Perception of Privacy of Personal Data, Shared in Online Communities: Are We in the Presence of a Paradox?

Lamas E, Coquedano C, Bousquet C, Ferrer M, Chekroun M, Zorrilla S, Salinas R.

Stud Health Technol Inform. 2018;251:237-240.

PMID:
29968647
13.

A systematic literature review of individuals' perspectives on privacy and genetic information in the United States.

Clayton EW, Halverson CM, Sathe NA, Malin BA.

PLoS One. 2018 Oct 31;13(10):e0204417. doi: 10.1371/journal.pone.0204417. eCollection 2018.

14.

Sharing privacy-sensitive access to neuroimaging and genetics data: a review and preliminary validation.

Sarwate AD, Plis SM, Turner JA, Arbabshirani MR, Calhoun VD.

Front Neuroinform. 2014 Apr 7;8:35. doi: 10.3389/fninf.2014.00035. eCollection 2014.

15.

openSNP--a crowdsourced web resource for personal genomics.

Greshake B, Bayer PE, Rausch H, Reda J.

PLoS One. 2014 Mar 19;9(3):e89204. doi: 10.1371/journal.pone.0089204. eCollection 2014.

16.

Putting the Focus Back on the Patient: How Privacy Concerns Affect Personal Health Information Sharing Intentions.

Abdelhamid M, Gaia J, Sanders GL.

J Med Internet Res. 2017 Sep 13;19(9):e169. doi: 10.2196/jmir.6877.

17.

The invisible work of personal health information management among people with multiple chronic conditions: qualitative interview study among patients and providers.

Ancker JS, Witteman HO, Hafeez B, Provencher T, Van de Graaf M, Wei E.

J Med Internet Res. 2015 Jun 4;17(6):e137. doi: 10.2196/jmir.4381.

18.

Knowing who to trust: exploring the role of 'ethical metadata' in mediating risk of harm in collaborative genomics research in Africa.

de Vries J, Williams TN, Bojang K, Kwiatkowski DP, Fitzpatrick R, Parker M.

BMC Med Ethics. 2014 Aug 13;15:62. doi: 10.1186/1472-6939-15-62.

19.

Palliative care experiences of adult cancer patients from ethnocultural groups: a qualitative systematic review protocol.

Busolo D, Woodgate R.

JBI Database System Rev Implement Rep. 2015 Jan;13(1):99-111. doi: 10.11124/jbisrir-2015-1809.

PMID:
26447011
20.

An overview of human genetic privacy.

Shi X, Wu X.

Ann N Y Acad Sci. 2017 Jan;1387(1):61-72. doi: 10.1111/nyas.13211. Epub 2016 Sep 14. Review.

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