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Items: 1 to 20 of 102


The humanistic and economic burden of Dravet syndrome on caregivers and families: Implications for future research.

Jensen MP, Brunklaus A, Dorris L, Zuberi SM, Knupp KG, Galer BS, Gammaitoni AR.

Epilepsy Behav. 2017 May;70(Pt A):104-109. doi: 10.1016/j.yebeh.2017.02.003. Epub 2017 Apr 18. Review.


The direct and indirect costs of Dravet Syndrome.

Whittington MD, Knupp KG, Vanderveen G, Kim C, Gammaitoni A, Campbell JD.

Epilepsy Behav. 2018 Mar;80:109-113. doi: 10.1016/j.yebeh.2017.12.034. Epub 2018 Feb 2.


Assessing the impact of caring for a child with Dravet syndrome: Results of a caregiver survey.

Campbell JD, Whittington MD, Kim CH, VanderVeen GR, Knupp KG, Gammaitoni A.

Epilepsy Behav. 2018 Mar;80:152-156. doi: 10.1016/j.yebeh.2018.01.003. Epub 2018 Feb 2.


Caregiver impact and health service use in high and low severity Dravet syndrome: A multinational cohort study.

Lagae L, Irwin J, Gibson E, Battersby A.

Seizure. 2019 Feb;65:72-79. doi: 10.1016/j.seizure.2018.12.018. Epub 2018 Dec 19.


Burden-of-illness and cost-driving factors in Dravet syndrome patients and carers: A prospective, multicenter study from Germany.

Strzelczyk A, Kalski M, Bast T, Wiemer-Kruel A, Bettendorf U, Kay L, Kieslich M, Kluger G, Kurlemann G, Mayer T, Neubauer BA, Polster T, Herting A, von Spiczak S, Trollmann R, Wolff M, Irwin J, Carroll J, Macdonald D, Pritchard C, Klein KM, Rosenow F, Schubert-Bast S.

Eur J Paediatr Neurol. 2019 May;23(3):392-403. doi: 10.1016/j.ejpn.2019.02.014. Epub 2019 Feb 28.


Development and content validation of a preliminary core set of patient- and caregiver-relevant outcomes for inclusion in a potential composite endpoint for Dravet Syndrome.

Nabbout R, Auvin S, Chiron C, Irwin J, Mistry A, Bonner N, Williamson N, Bennett B.

Epilepsy Behav. 2018 Jan;78:232-242. doi: 10.1016/j.yebeh.2017.08.029. Epub 2017 Nov 4.


Life impact of caregiving for severe childhood epilepsy: Results of expert panels and caregiver focus groups.

Jensen MP, Liljenquist KS, Bocell F, Gammaitoni AR, Aron CR, Galer BS, Amtmann D.

Epilepsy Behav. 2017 Sep;74:135-143. doi: 10.1016/j.yebeh.2017.06.012. Epub 2017 Jul 19.


The burden of schizophrenia on caregivers: a review.

Awad AG, Voruganti LN.

Pharmacoeconomics. 2008;26(2):149-62. Review.


Modeling costs and burden of informal caregiving for persons with bipolar disorder.

Wolff N, Perlick DA, Kaczynski R, Calabrese J, Nierenberg A, Miklowitz DJ.

J Ment Health Policy Econ. 2006 Jun;9(2):99-110.


A multicenter, matched case-control analysis comparing burden-of-illness in Dravet syndrome to refractory epilepsy and seizure remission in patients and caregivers in Germany.

Strzelczyk A, Schubert-Bast S, Bast T, Bettendorf U, Fiedler B, Hamer HM, Herting A, Kalski M, Kay L, Kieslich M, Klein KM, Kluger G, Kurlemann G, Mayer T, Neubauer BA, Polster T, von Spiczak S, Stephani U, Trollmann R, Wiemer-Kruel A, Wolff M, Irwin J, Carroll J, Pritchard C, Rosenow F.

Epilepsia. 2019 Aug;60(8):1697-1710. doi: 10.1111/epi.16099. Epub 2019 Jun 27.


Evaluation of health-care utilization in patients with Dravet syndrome and on adjunctive treatment with stiripentol and clobazam.

Strzelczyk A, Schubert-Bast S, Reese JP, Rosenow F, Stephani U, Boor R.

Epilepsy Behav. 2014 May;34:86-91. doi: 10.1016/j.yebeh.2014.03.014. Epub 2014 Apr 13.


Dravet syndrome: Characteristics, comorbidities, and caregiver concerns.

Villas N, Meskis MA, Goodliffe S.

Epilepsy Behav. 2017 Sep;74:81-86. doi: 10.1016/j.yebeh.2017.06.031. Epub 2017 Jul 18.


Dementia -- Caring, Ethics, Ethnical and Economical Aspects: A Systematic Review [Internet].

Swedish Council on Health Technology Assessment.

Stockholm: Swedish Council on Health Technology Assessment (SBU); 2008 Jun.


Exploring the financial impact of caring for family members receiving palliative and end-of-life care: a systematic review of the literature.

Gardiner C, Brereton L, Frey R, Wilkinson-Meyers L, Gott M.

Palliat Med. 2014 May;28(5):375-90. doi: 10.1177/0269216313510588. Epub 2013 Nov 7. Review.


Humanistic burden in schizophrenia: a literature review.

Millier A, Schmidt U, Angermeyer MC, Chauhan D, Murthy V, Toumi M, Cadi-Soussi N.

J Psychiatr Res. 2014 Jul;54:85-93. doi: 10.1016/j.jpsychires.2014.03.021. Epub 2014 Apr 4. Review.


The health and well-being of caregivers of children with cerebral palsy.

Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, Swinton M, Zhu B, Wood E.

Pediatrics. 2005 Jun;115(6):e626-36.


Economic burden of family caregiving for elderly population in southern Ghana: the case of a peri-urban district.

Nortey ST, Aryeetey GC, Aikins M, Amendah D, Nonvignon J.

Int J Equity Health. 2017 Jan 14;16(1):16. doi: 10.1186/s12939-016-0511-9.


Fragile X syndrome: economic burden and health-related quality of life of patients and caregivers in France.

Chevreul K, Berg Brigham K, Brunn M, des Portes V; BURQOL-RD Research Network.

J Intellect Disabil Res. 2015 Dec;59(12):1108-20. doi: 10.1111/jir.12215. Epub 2015 Sep 15.


Economic cost and quality of life of family caregivers of schizophrenic patients attending psychiatric hospitals in Ghana.

Opoku-Boateng YN, Kretchy IA, Aryeetey GC, Dwomoh D, Decker S, Agyemang SA, Tozan Y, Aikins M, Nonvignon J.

BMC Health Serv Res. 2017 Dec 4;17(Suppl 2):697. doi: 10.1186/s12913-017-2642-0.


The humanistic and economic burden of providing care for a patient with schizophrenia.

Csoboth C, Witt EA, Villa KF, O'Gorman C.

Int J Soc Psychiatry. 2015 Dec;61(8):754-61. doi: 10.1177/0020764015577844. Epub 2015 Mar 30.


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