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Public and biobank participant attitudes toward genetic research participation and data sharing.

Lemke AA, Wolf WA, Hebert-Beirne J, Smith ME.

Public Health Genomics. 2010;13(6):368-77. doi: 10.1159/000276767. Epub 2010 Jan 15.


Forty-three loci associated with plasma lipoprotein size, concentration, and cholesterol content in genome-wide analysis.

Chasman DI, Paré G, Mora S, Hopewell JC, Peloso G, Clarke R, Cupples LA, Hamsten A, Kathiresan S, Mälarstig A, Ordovas JM, Ripatti S, Parker AN, Miletich JP, Ridker PM.

PLoS Genet. 2009 Nov;5(11):e1000730. doi: 10.1371/journal.pgen.1000730. Epub 2009 Nov 20.


Public opinion about the importance of privacy in biobank research.

Kaufman DJ, Murphy-Bollinger J, Scott J, Hudson KL.

Am J Hum Genet. 2009 Nov;85(5):643-54. doi: 10.1016/j.ajhg.2009.10.002. Epub 2009 Oct 29.


Multiple loci influence erythrocyte phenotypes in the CHARGE Consortium.

Ganesh SK, Zakai NA, van Rooij FJ, Soranzo N, Smith AV, Nalls MA, Chen MH, Kottgen A, Glazer NL, Dehghan A, Kuhnel B, Aspelund T, Yang Q, Tanaka T, Jaffe A, Bis JC, Verwoert GC, Teumer A, Fox CS, Guralnik JM, Ehret GB, Rice K, Felix JF, Rendon A, Eiriksdottir G, Levy D, Patel KV, Boerwinkle E, Rotter JI, Hofman A, Sambrook JG, Hernandez DG, Zheng G, Bandinelli S, Singleton AB, Coresh J, Lumley T, Uitterlinden AG, Vangils JM, Launer LJ, Cupples LA, Oostra BA, Zwaginga JJ, Ouwehand WH, Thein SL, Meisinger C, Deloukas P, Nauck M, Spector TD, Gieger C, Gudnason V, van Duijn CM, Psaty BM, Ferrucci L, Chakravarti A, Greinacher A, O'Donnell CJ, Witteman JC, Furth S, Cushman M, Harris TB, Lin JP.

Nat Genet. 2009 Nov;41(11):1191-8. doi: 10.1038/ng.466. Epub 2009 Oct 11.


Public access to genome-wide data: five views on balancing research with privacy and protection.

P3G Consortium, Church G, Heeney C, Hawkins N, de Vries J, Boddington P, Kaye J, Bobrow M, Weir B.

PLoS Genet. 2009 Oct;5(10):e1000665. doi: 10.1371/journal.pgen.1000665. Epub 2009 Oct 2. No abstract available.


The ethical use of existing samples for genome research.

Bathe OF, McGuire AL.

Genet Med. 2009 Oct;11(10):712-5. doi: 10.1097/GIM.0b013e3181b2e168. Review.


Trust in health research relationships: accounts of human subjects.

McDonald M, Townsend A, Cox SM, Paterson ND, Lafrenière D.

J Empir Res Hum Res Ethics. 2008 Dec;3(4):35-47. doi: 10.1525/jer.2008.3.4.35.


Transforming the culture of biomedical research from compliance to trustworthiness: insights from nonmedical sectors.

Yarborough M, Fryer-Edwards K, Geller G, Sharp RR.

Acad Med. 2009 Apr;84(4):472-7. doi: 10.1097/ACM.0b013e31819a8aa6.


Data sharing in genomics--re-shaping scientific practice.

Kaye J, Heeney C, Hawkins N, de Vries J, Boddington P.

Nat Rev Genet. 2009 May;10(5):331-5. doi: 10.1038/nrg2573. Review.


Different patterns of cerebral injury in dementia with or without diabetes.

Sonnen JA, Larson EB, Brickell K, Crane PK, Woltjer R, Montine TJ, Craft S.

Arch Neurol. 2009 Mar;66(3):315-22. doi: 10.1001/archneurol.2008.579. Epub 2009 Jan 12.


Public attitudes to the storage of blood left over from routine general practice tests and its use in research.

Treweek S, Doney A, Leiman D.

J Health Serv Res Policy. 2009 Jan;14(1):13-9. doi: 10.1258/jhsrp.2008.008016.


Subjects matter: a survey of public opinions about a large genetic cohort study.

Kaufman D, Murphy J, Scott J, Hudson K.

Genet Med. 2008 Nov;10(11):831-9. doi: 10.1097/GIM.0b013e31818bb3ab.


Ethical and practical issues associated with aggregating databases.

Karp DR, Carlin S, Cook-Deegan R, Ford DE, Geller G, Glass DN, Greely H, Guthridge J, Kahn J, Kaslow R, Kraft C, Macqueen K, Malin B, Scheuerman RH, Sugarman J.

PLoS Med. 2008 Sep 23;5(9):e190. doi: 10.1371/journal.pmed.0050190. No abstract available.


Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.

Homer N, Szelinger S, Redman M, Duggan D, Tembe W, Muehling J, Pearson JV, Stephan DA, Nelson SF, Craig DW.

PLoS Genet. 2008 Aug 29;4(8):e1000167. doi: 10.1371/journal.pgen.1000167.


Research ethics recommendations for whole-genome research: consensus statement.

Caulfield T, McGuire AL, Cho M, Buchanan JA, Burgess MM, Danilczyk U, Diaz CM, Fryer-Edwards K, Green SK, Hodosh MA, Juengst ET, Kaye J, Kedes L, Knoppers BM, Lemmens T, Meslin EM, Murphy J, Nussbaum RL, Otlowski M, Pullman D, Ray PN, Sugarman J, Timmons M.

PLoS Biol. 2008 Mar 25;6(3):e73. doi: 10.1371/journal.pbio.0060073. No abstract available.


DNA data sharing: research participants' perspectives.

McGuire AL, Hamilton JA, Lunstroth R, McCullough LB, Goldman A.

Genet Med. 2008 Jan;10(1):46-53. doi: 10.1097/GIM.0b013e31815f1e00.


Attitudes and perceptions of patients towards methods of establishing a DNA biobank.

Pulley JM, Brace MM, Bernard GR, Masys DR.

Cell Tissue Bank. 2008 Mar;9(1):55-65. Epub 2007 Oct 25.


The uneasy ethical and legal underpinnings of large-scale genomic biobanks.

Greely HT.

Annu Rev Genomics Hum Genet. 2007;8:343-64. Review.


Field notes and theoretical memos in grounded theory.

Montgomery P, Bailey PH.

West J Nurs Res. 2007 Feb;29(1):65-79. Review.


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