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Items: 1 to 20 of 28


Ethical data release in genome-wide association studies in developing countries.

Parker M, Bull SJ, de Vries J, Agbenyega T, Doumbo OK, Kwiatkowski DP.

PLoS Med. 2009 Nov;6(11):e1000143. doi: 10.1371/journal.pmed.1000143. Epub 2009 Nov 24. No abstract available.


The ethical use of existing samples for genome research.

Bathe OF, McGuire AL.

Genet Med. 2009 Oct;11(10):712-5. doi: 10.1097/GIM.0b013e3181b2e168. Review.


Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study.

Tekola F, Bull S, Farsides B, Newport MJ, Adeyemo A, Rotimi CN, Davey G.

BMC Med Ethics. 2009 Aug 22;10:13. doi: 10.1186/1472-6939-10-13.


Tailoring consent to context: designing an appropriate consent process for a biomedical study in a low income setting.

Tekola F, Bull SJ, Farsides B, Newport MJ, Adeyemo A, Rotimi CN, Davey G.

PLoS Negl Trop Dis. 2009 Jul 21;3(7):e482. doi: 10.1371/journal.pntd.0000482.


The ClinSeq Project: piloting large-scale genome sequencing for research in genomic medicine.

Biesecker LG, Mullikin JC, Facio FM, Turner C, Cherukuri PF, Blakesley RW, Bouffard GG, Chines PS, Cruz P, Hansen NF, Teer JK, Maskeri B, Young AC; NISC Comparative Sequencing Program, Manolio TA, Wilson AF, Finkel T, Hwang P, Arai A, Remaley AT, Sachdev V, Shamburek R, Cannon RO, Green ED.

Genome Res. 2009 Sep;19(9):1665-74. doi: 10.1101/gr.092841.109. Epub 2009 Jul 14.


Informed consent in international health research.

Marshall PA.

J Empir Res Hum Res Ethics. 2006 Mar;1(1):25-42. doi: 10.1525/jer.2006.1.1.25.


Public expectations for return of results from large-cohort genetic research.

Murphy J, Scott J, Kaufman D, Geller G, LeRoy L, Hudson K.

Am J Bioeth. 2008 Nov;8(11):36-43. doi: 10.1080/15265160802513093.


Informed consent in the genomics era.

Mascalzoni D, Hicks A, Pramstaller P, Wjst M.

PLoS Med. 2008 Sep 16;5(9):e192. doi: 10.1371/journal.pmed.0050192. No abstract available.


The future of incidental findings: should they be viewed as benefits?

Parker LS.

J Law Med Ethics. 2008 Summer;36(2):341-51, 213. doi: 10.1111/j.1748-720X.2008.00278.x.


Incidental findings in genetics research using archived DNA.

Clayton EW.

J Law Med Ethics. 2008 Summer;36(2):286-91, 212. doi: 10.1111/j.1748-720X.2008.00271.x.


Understanding incidental findings in the context of genetics and genomics.

Cho MK.

J Law Med Ethics. 2008 Summer;36(2):280-5, 212. doi: 10.1111/j.1748-720X.2008.00270.x.


Research ethics recommendations for whole-genome research: consensus statement.

Caulfield T, McGuire AL, Cho M, Buchanan JA, Burgess MM, Danilczyk U, Diaz CM, Fryer-Edwards K, Green SK, Hodosh MA, Juengst ET, Kaye J, Kedes L, Knoppers BM, Lemmens T, Meslin EM, Murphy J, Nussbaum RL, Otlowski M, Pullman D, Ray PN, Sugarman J, Timmons M.

PLoS Biol. 2008 Mar 25;6(3):e73. doi: 10.1371/journal.pbio.0060073. No abstract available.


Research ethics and the challenge of whole-genome sequencing.

McGuire AL, Caulfield T, Cho MK.

Nat Rev Genet. 2008 Feb;9(2):152-6. doi: 10.1038/nrg2302. Review.


Proposing modesty for informed consent.

Burgess MM.

Soc Sci Med. 2007 Dec;65(11):2284-95. Epub 2007 Sep 19.


New models of collaboration in genome-wide association studies: the Genetic Association Information Network.

GAIN Collaborative Research Group, Manolio TA, Rodriguez LL, Brooks L, Abecasis G; Collaborative Association Study of Psoriasis, Ballinger D, Daly M, Donnelly P, Faraone SV; International Multi-Center ADHD Genetics Project, Frazer K, Gabriel S, Gejman P; Molecular Genetics of Schizophrenia Collaboration, Guttmacher A, Harris EL, Insel T, Kelsoe JR; Bipolar Genome Study, Lander E, McCowin N, Mailman MD, Nabel E, Ostell J, Pugh E, Sherry S, Sullivan PF; Major Depression Stage 1 Genomewide Association in Population-Based Samples Study, Thompson JF, Warram J; Genetics of Kidneys in Diabetes (GoKinD) Study, Wholley D, Milos PM, Collins FS.

Nat Genet. 2007 Sep;39(9):1045-51.


The incidentalome.

Kruer M.

JAMA. 2006 Dec 20;296(23):2801; author reply 2801-2. No abstract available.


The informed consent process in a rural African setting: a case study of the Kassena-Nankana district of Northern Ghana.

Onvomaha Tindana P, Kass N, Akweongo P.

IRB. 2006 May-Jun;28(3):1-6. No abstract available.


Voluntary participation and informed consent to international genetic research.

Marshall PA, Adebamowo CA, Adeyemo AA, Ogundiran TO, Vekich M, Strenski T, Zhou J, Prewitt TE, Cooper RS, Rotimi CN.

Am J Public Health. 2006 Nov;96(11):1989-95. Epub 2006 Oct 3.


Views of US researchers about informed consent in international collaborative research.

Dawson L, Kass NE.

Soc Sci Med. 2005 Sep;61(6):1211-22. Epub 2005 Apr 9.


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