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Items: 1 to 20 of 93

1.

Bereaved parents' intentions and suggestions about research autopsies in children with lethal brain tumors.

Baker JN, Windham JA, Hinds PS, Gattuso JS, Mandrell B, Gajjar P, West NK, Hammarback T, Broniscer A.

J Pediatr. 2013 Aug;163(2):581-6. doi: 10.1016/j.jpeds.2013.01.015. Epub 2013 Feb 19.

2.

What do parents want to know when considering autopsy for their child with cancer?

Wiener L, Sweeney C, Baird K, Merchant MS, Warren KE, Corner GW, Roberts KE, Lichtenthal WG.

J Pediatr Hematol Oncol. 2014 Aug;36(6):464-70. doi: 10.1097/MPH.0000000000000078.

3.

Meaning making during parent-physician bereavement meetings after a child's death.

Meert KL, Eggly S, Kavanaugh K, Berg RA, Wessel DL, Newth CJ, Shanley TP, Harrison R, Dalton H, Dean JM, Doctor A, Jenkins T, Park CL.

Health Psychol. 2015 Apr;34(4):453-61. doi: 10.1037/hea0000153.

4.

Consent to autopsy for neonates.

McHaffie HE, Fowlie PW, Hume R, Laing IA, Lloyd DJ, Lyon AJ.

Arch Dis Child Fetal Neonatal Ed. 2001 Jul;85(1):F4-7.

5.

Bereaved parents' perceptions of the autopsy examination of their child.

Sullivan J, Monagle P.

Pediatrics. 2011 Apr;127(4):e1013-20. doi: 10.1542/peds.2009-2027. Epub 2011 Mar 14.

PMID:
21402641
6.

Bereaved parents' experience of research participation.

Dyregrov K.

Soc Sci Med. 2004 Jan;58(2):391-400.

PMID:
14604624
7.

Implementation of a multi-institutional diffuse intrinsic pontine glioma autopsy protocol and characterization of a primary cell culture.

Caretti V, Jansen MH, van Vuurden DG, Lagerweij T, Bugiani M, Horsman I, Wessels H, van der Valk P, Cloos J, Noske DP, Vandertop WP, Wesseling P, Wurdinger T, Hulleman E, Kaspers GJ.

Neuropathol Appl Neurobiol. 2013 Jun;39(4):426-36. doi: 10.1111/j.1365-2990.2012.01294.x.

PMID:
22845849
8.

Post mortem examinations in diffuse intrinsic pontine glioma: challenges and chances.

Angelini P, Hawkins C, Laperriere N, Bouffet E, Bartels U.

J Neurooncol. 2011 Jan;101(1):75-81. doi: 10.1007/s11060-010-0224-7. Epub 2010 May 16.

PMID:
20473723
9.
10.

Bereaved parents' perceptions about when their child's cancer-related death would occur.

Pritchard M, Srivastava DK, Okuma JO, Powell B, Burghen E, West NK, Gattuso JS, Spunt SL, Baker JN, Kane J, Furman WL, Hinds PS.

J Pain Symptom Manage. 2009 Oct;38(4):561-7. doi: 10.1016/j.jpainsymman.2009.01.005.

11.

Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer.

Hechler T, Blankenburg M, Friedrichsdorf SJ, Garske D, Hübner B, Menke A, Wamsler C, Wolfe J, Zernikow B.

Klin Padiatr. 2008 May-Jun;220(3):166-74. doi: 10.1055/s-2008-1065347.

PMID:
18478489
12.

Prospective collection of tissue samples at autopsy in children with diffuse intrinsic pontine glioma.

Broniscer A, Baker JN, Baker SJ, Chi SN, Geyer JR, Morris EB, Gajjar A.

Cancer. 2010 Oct 1;116(19):4632-7. doi: 10.1002/cncr.25405.

13.

What do bereaved parents want from professionals after the sudden death of their child: a systematic review of the literature.

Garstang J, Griffiths F, Sidebotham P.

BMC Pediatr. 2014 Oct 15;14:269. doi: 10.1186/1471-2431-14-269. Review.

14.

Research with bereaved parents: a question of how not why.

Hynson JL, Aroni R, Bauld C, Sawyer SM.

Palliat Med. 2006 Dec;20(8):805-11.

PMID:
17148535
15.

Are autopsies of help to the parents of SIDS victims? A follow-up on SIDS families.

Vennemann MM, Rentsch C, Bajanowski T, Zimmer G.

Int J Legal Med. 2006 Nov;120(6):352-4. Epub 2006 May 10.

PMID:
16685560
16.

The Bereaved Parent Needs Assessment: a new instrument to assess the needs of parents whose children died in the pediatric intensive care unit*.

Meert KL, Templin TN, Michelson KN, Morrison WE, Hackbarth R, Custer JR, Schim SM, Briller SH, Thurston CS.

Crit Care Med. 2012 Nov;40(11):3050-7. doi: 10.1097/CCM.0b013e31825fe164.

17.

Bereavement support for families following the death of a child from cancer: experience of bereaved parents.

deCinque N, Monterosso L, Dadd G, Sidhu R, Macpherson R, Aoun S.

J Psychosoc Oncol. 2006;24(2):65-83.

PMID:
17046807
18.

Perinatal pathology in the context of a clinical trial: attitudes of bereaved parents.

Snowdon C, Elbourne DR, Garcia J.

Arch Dis Child Fetal Neonatal Ed. 2004 May;89(3):F208-11.

19.

Interventions for bereaved parents following a child's death: A systematic review.

Endo K, Yonemoto N, Yamada M.

Palliat Med. 2015 Jul;29(7):590-604. doi: 10.1177/0269216315576674. Epub 2015 Mar 24. Review.

PMID:
25805741
20.

A difficult conversation? The views and experiences of parents and professionals on the consent process for perinatal postmortem after stillbirth.

Heazell AE, McLaughlin MJ, Schmidt EB, Cox P, Flenady V, Khong TY, Downe S.

BJOG. 2012 Jul;119(8):987-97. doi: 10.1111/j.1471-0528.2012.03357.x. Epub 2012 May 16.

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