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Items: 1 to 20 of 99

1.

New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN).

Thombs BD, Jewett LR, Assassi S, Baron M, Bartlett SJ, Maia AC, El-Baalbaki G, Furst DE, Gottesman K, Haythornthwaite JA, Hudson M, Impens A, Korner A, Leite C, Mayes MD, Malcarne VL, Motivala SJ, Mouthon L, Nielson WR, Plante D, Poiraudeau S, Poole JL, Pope J, Sauve M, Steele RJ, Suarez-Almazor ME, Taillefer S, van den Ende CH, Arthurs E, Bassel M, Delisle V, Milette K, Leavens A, Razykov I, Khanna D.

Clin Exp Rheumatol. 2012 Mar-Apr;30(2 Suppl 71):S23-9. Epub 2012 May 29.

2.

Content of non-pharmacological care for systemic sclerosis and educational needs of European health professionals: a EUSHNet survey.

Willems LM, Redmond AC, Stamm TA, Boström C, Decuman S, Kennedy AT, Brozd J, Roškar S, Smith V, Vliet Vlieland TP, van den Ende CH.

Clin Exp Rheumatol. 2015 Jul-Aug;33(4 Suppl 91):S153-9. Epub 2015 Sep 1.

PMID:
26339894
3.

[The German Network for Systemic Scleroderma].

Moinzadeh P, Fehr A, Damm B, Krieg T, Hunzelmann N.

Hautarzt. 2007 Oct;58(10):858-63. German.

PMID:
17846731
4.

The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context.

Kwakkenbos L, Jewett LR, Baron M, Bartlett SJ, Furst D, Gottesman K, Khanna D, Malcarne VL, Mayes MD, Mouthon L, Poiraudeau S, Sauve M, Nielson WR, Poole JL, Assassi S, Boutron I, Ells C, van den Ende CH, Hudson M, Impens A, Körner A, Leite C, Costa Maia A, Mendelson C, Pope J, Steele RJ, Suarez-Almazor ME, Ahmed S, Coronado-Montoya S, Delisle VC, Gholizadeh S, Jang Y, Levis B, Milette K, Mills SD, Razykov I, Fox RS, Thombs BD.

BMJ Open. 2013 Aug 7;3(8). pii: e003563. doi: 10.1136/bmjopen-2013-003563.

5.

My approach to the treatment of scleroderma.

Shah AA, Wigley FM.

Mayo Clin Proc. 2013 Apr;88(4):377-93. doi: 10.1016/j.mayocp.2013.01.018. Review.

6.

EULAR recommendations for the treatment of systemic sclerosis: a report from the EULAR Scleroderma Trials and Research group (EUSTAR).

Kowal-Bielecka O, Landewé R, Avouac J, Chwiesko S, Miniati I, Czirjak L, Clements P, Denton C, Farge D, Fligelstone K, Földvari I, Furst DE, Müller-Ladner U, Seibold J, Silver RM, Takehara K, Toth BG, Tyndall A, Valentini G, van den Hoogen F, Wigley F, Zulian F, Matucci-Cerinic M; EUSTAR Co-Authors..

Ann Rheum Dis. 2009 May;68(5):620-8. doi: 10.1136/ard.2008.096677. Epub 2009 Jan 15.

PMID:
19147617
7.

Best practices in scleroderma: an analysis of practice variability in SSc centres within the Canadian Scleroderma Research Group (CSRG).

Harding S, Khimdas S, Bonner A, Baron M, Pope J; Canadian Scleroderma Research Group..

Clin Exp Rheumatol. 2012 Mar-Apr;30(2 Suppl 71):S38-43. Epub 2012 May 29.

PMID:
22691207
8.

Reasons for non-participation in scleroderma support groups.

Delisle VC, Gumuchian ST, Pelaez S, Malcarne VL, El-Baalbaki G, Körner A, Hudson M, Baron M, Thombs BD; and the Scleroderma Support Group Project Advisory Team..

Clin Exp Rheumatol. 2016 Sep-Oct;34 Suppl 100(5):56-62. Epub 2016 Feb 25.

PMID:
26950221
9.

Is there a psychiatrist in the house? Integrating child psychiatry into the pediatric medical home.

Keller D, Sarvet B.

J Am Acad Child Adolesc Psychiatry. 2013 Jan;52(1):3-5. doi: 10.1016/j.jaac.2012.10.010. No abstract available.

PMID:
23265627
10.

Systemic sclerosis/scleroderma: a treatable multisystem disease.

Hinchcliff M, Varga J.

Am Fam Physician. 2008 Oct 15;78(8):961-8.

11.

Needs and preferences regarding health care delivery as perceived by patients with systemic sclerosis.

Schouffoer AA, Zirkzee EJ, Henquet SM, Caljouw MA, Steup-Beekman GM, van Laar JM, Vlieland TP.

Clin Rheumatol. 2011 Jun;30(6):815-24. doi: 10.1007/s10067-010-1645-6. Epub 2011 Jan 18.

12.

[Lung involvement in systemic sclerosis].

Posa M, Stelle M, Lador F, Chizzolini C.

Rev Med Suisse. 2015 Apr 8;11(469):802-6. French.

PMID:
26040160
13.

Functioning and health-related quality of life in Chinese patients with systemic sclerosis: a case-control study.

Chan PT, Mok CC, Chan KL, Ho LY.

Clin Rheumatol. 2014 May;33(5):659-66. doi: 10.1007/s10067-014-2525-2. Epub 2014 Feb 16.

PMID:
24531870
14.

[Systemic sclerosis--clinical course and treatment possibilities].

Szymańska E, Maj M, Rudnicka L.

Przegl Lek. 2005;62(12):1538-41. Review. Polish.

PMID:
16786791
15.

The impact of psychological functioning upon systemic sclerosis patients' quality of life.

Hyphantis TN, Tsifetaki N, Siafaka V, Voulgari PV, Pappa C, Bai M, Palieraki K, Venetsanopoulou A, Mavreas V, Drosos AA.

Semin Arthritis Rheum. 2007 Oct;37(2):81-92. Epub 2007 May 21.

PMID:
17512572
16.

Pharmacotherapy of systemic sclerosis.

Postlethwaite AE, Harris LJ, Raza SH, Kodura S, Akhigbe T.

Expert Opin Pharmacother. 2010 Apr;11(5):789-806. doi: 10.1517/14656561003592177. Review.

17.

A systematic review of the clinical effectiveness and cost-effectiveness of sensory, psychological and behavioural interventions for managing agitation in older adults with dementia.

Livingston G, Kelly L, Lewis-Holmes E, Baio G, Morris S, Patel N, Omar RZ, Katona C, Cooper C.

Health Technol Assess. 2014 Jun;18(39):1-226, v-vi. doi: 10.3310/hta18390. Review.

18.

The role of nursing in meeting the healthcare needs of diverse populations.

Wilson-Stronks AL.

J Nurs Care Qual. 2008 Oct-Dec;23(4):289-91. doi: 10.1097/01.NCQ.0000336669.79853.38. Review. No abstract available.

PMID:
18806642
19.

[Cardiopathy in systemic sclerosis].

Valentini G, Maione S.

Recenti Prog Med. 1996 Nov;87(11):557-63. Review. Italian.

PMID:
9122540
20.

[Psychiatric manifestations of systemic sclerosis].

Baubet T, Brunet M, Garcia De La Peña-Lefebvre P, Taïeb O, Moro MR, Guillevin L, Mouthon L.

Ann Med Interne (Paris). 2002 Jun;153(4):237-41. Review. French.

PMID:
12218889

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