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Items: 1 to 20 of 229

1.

Health information management and perceptions of the quality of care for children with tracheotomy: a qualitative study.

Berry JG, Goldmann DA, Mandl KD, Putney H, Helm D, O'Brien J, Antonelli R, Weinick RM.

BMC Health Serv Res. 2011 May 23;11:117. doi: 10.1186/1472-6963-11-117.

2.

Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home.

Carnevale FA, Alexander E, Davis M, Rennick J, Troini R.

Pediatrics. 2006 Jan;117(1):e48-60.

PMID:
16396848
3.

The invisible work of personal health information management among people with multiple chronic conditions: qualitative interview study among patients and providers.

Ancker JS, Witteman HO, Hafeez B, Provencher T, Van de Graaf M, Wei E.

J Med Internet Res. 2015 Jun 4;17(6):e137. doi: 10.2196/jmir.4381.

4.
6.

The experiences of family members in the year following the diagnosis of a child or adolescent with cancer: a qualitative systematic review.

Mu PF, Lee MY, Sheng CC, Tung PC, Huang LY, Chen YW.

JBI Database System Rev Implement Rep. 2015 Jun 12;13(5):293-329. doi: 10.11124/jbisrir-2015-1698. Review.

PMID:
26455612
7.
8.

Exploring the usefulness of comprehensive care plans for children with medical complexity (CMC): a qualitative study.

Adams S, Cohen E, Mahant S, Friedman JN, Macculloch R, Nicholas DB.

BMC Pediatr. 2013 Jan 19;13:10. doi: 10.1186/1471-2431-13-10.

9.
10.

Cultural competence policies and other predictors of asthma care quality for Medicaid-insured children.

Lieu TA, Finkelstein JA, Lozano P, Capra AM, Chi FW, Jensvold N, Quesenberry CP, Farber HJ.

Pediatrics. 2004 Jul;114(1):e102-10.

PMID:
15231981
11.

Creating value-focused healthcare delivery systems: Part three--Core competencies.

Beveridge RN.

J Oncol Manag. 1997 Nov-Dec;6(6):16-23.

PMID:
10174597
12.

Chronic ventilator need in the community: a 2005 pediatric census of Massachusetts.

Graham RJ, Fleegler EW, Robinson WM.

Pediatrics. 2007 Jun;119(6):e1280-7. Epub 2007 May 7.

PMID:
17485451
13.

Internet use and eHealth literacy of low-income parents whose children have special health care needs.

Knapp C, Madden V, Wang H, Sloyer P, Shenkman E.

J Med Internet Res. 2011 Sep 29;13(3):e75. doi: 10.2196/jmir.1697.

14.

[Perception and use of an electronic medical record system by professionals of a public psychiatric hospital].

Boyer L, Renaud MH, Limousin S, Henry JM, Caïetta P, Fieschi M, Samuelian JC.

Encephale. 2009 Oct;35(5):454-60. doi: 10.1016/j.encep.2008.06.010. Epub 2008 Sep 30. French.

PMID:
19853719
15.

Impact of patient-centered decision support on quality of asthma care in the emergency department.

Porter SC, Forbes P, Feldman HA, Goldmann DA.

Pediatrics. 2006 Jan;117(1):e33-42.

PMID:
16396846
16.

Two sides of the mirror: parents' and service providers' view on the family-centredness of care for children with cerebral palsy.

Jeglinsky I, Autti-Rämö I, Brogren Carlberg E.

Child Care Health Dev. 2012 Jan;38(1):79-86. doi: 10.1111/j.1365-2214.2011.01305.x. Epub 2011 Sep 9.

PMID:
21902711
17.

Parental and primary care physicians' views on the management of chronic diseases: a study in Italy. The Italian Collaborative Group on Paediatric Chronic Diseases.

Marchetti F, Bonati M, Marfisi RM, La Gamba G, Biasini GC, Tognoni G.

Acta Paediatr. 1995 Oct;84(10):1165-72.

PMID:
8563230
18.

A descriptive study of the experiences of lesbian, gay and transgender parents accessing health services for their children.

Chapman R, Wardrop J, Freeman P, Zappia T, Watkins R, Shields L.

J Clin Nurs. 2012 Apr;21(7-8):1128-35. doi: 10.1111/j.1365-2702.2011.03939.x. Epub 2012 Jan 31.

PMID:
22288982
19.

Planning for health care transitions: results from the 2005-2006 National Survey of Children With Special Health Care Needs.

Lotstein DS, Ghandour R, Cash A, McGuire E, Strickland B, Newacheck P.

Pediatrics. 2009 Jan;123(1):e145-52. doi: 10.1542/peds.2008-1298.

PMID:
19117836
20.

When I go in to wake them ... I wonder: parental perceptions about congenital long QT syndrome.

Farnsworth MM, Fosyth D, Haglund C, Ackerman MJ.

J Am Acad Nurse Pract. 2006 Jun;18(6):284-90.

PMID:
16719847

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