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Items: 1 to 20 of 240

1.

Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey.

Bombard Y, Veenstra G, Friedman JM, Creighton S, Currie L, Paulsen JS, Bottorff JL, Hayden MR; Canadian Respond-HD Collaborative Research Group.

BMJ. 2009 Jun 9;338:b2175. doi: 10.1136/bmj.b2175.

2.

Genetic discrimination in Huntington's disease.

Tibben A.

BMJ. 2009 Jun 9;338:b1281. doi: 10.1136/bmj.b1281. No abstract available.

PMID:
19509423
3.

Perception, experience, and response to genetic discrimination in Huntington's disease: the Australian results of The International RESPOND-HD study.

Goh AM, Chiu E, Yastrubetskaya O, Erwin C, Williams JK, Juhl AR, Paulsen JS; I-Respond-Hd Investigators Of The Huntington Study Group.

Genet Test Mol Biomarkers. 2013 Feb;17(2):115-21. doi: 10.1089/gtmb.2012.0288. Epub 2013 Jan 4.

4.

Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease.

Penziner E, Williams JK, Erwin C, Bombard Y, Wallis A, Beglinger LJ, Hayden MR, Paulsen JS.

Am J Med Genet B Neuropsychiatr Genet. 2008 Apr 5;147(3):320-5.

5.

Beyond the patient: the broader impact of genetic discrimination among individuals at risk of Huntington disease.

Bombard Y, Palin J, Friedman JM, Veenstra G, Creighton S, Bottorff JL, Hayden MR; Canadian Respond-HD Collaborative Research Group.

Am J Med Genet B Neuropsychiatr Genet. 2012 Mar;159B(2):217-26. doi: 10.1002/ajmg.b.32016. Epub 2012 Jan 9.

PMID:
22231990
6.

Presymptomatic testing for Huntington's disease. Emotional aspects.

Zak JP, Zaglul JT, Mueller OT, Diamond T.

J Fla Med Assoc. 1994 Feb;81(2):109-12.

PMID:
8169585
7.

Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study.

Erwin C, Williams JK, Juhl AR, Mengeling M, Mills JA, Bombard Y, Hayden MR, Quaid K, Shoulson I, Taylor S, Paulsen JS; I-RESPOND-HD Investigators of the Huntington Study Group.

Am J Med Genet B Neuropsychiatr Genet. 2010 Jul;153B(5):1081-93. doi: 10.1002/ajmg.b.31079.

8.

[Psychosocial consequences of presymptomatic genetic testing. A retrospective study of testing for Huntington disease].

Jakobsen LB, Malt U, Nilsson B, Rosenlund S, Heiberg A.

Tidsskr Nor Laegeforen. 1999 May 20;119(13):1913-6. Norwegian.

PMID:
10382341
9.

The psychological consequences of predictive testing for Huntington's disease. Canadian Collaborative Study of Predictive Testing.

Wiggins S, Whyte P, Huggins M, Adam S, Theilmann J, Bloch M, Sheps SB, Schechter MT, Hayden MR.

N Engl J Med. 1992 Nov 12;327(20):1401-5.

10.

Attitudes regarding molecular diagnosis in Mexican families at risk of inheriting Huntington's disease.

Garcia de la Cadena C, Alonso ME, Ochoa A, Martinez C.

Arch Med Res. 1997 Winter;28(4):513-6.

PMID:
9428575
11.

Predictive testing for Huntington's disease: relationship with partners after testing.

Decruyenaere M, Evers-Kiebooms G, Cloostermans T, Boogaerts A, Demyttenaere K, Dom R, Fryns JP.

Clin Genet. 2004 Jan;65(1):24-31.

PMID:
15032971
12.

Attitudes of patients and their relatives to Huntington's disease.

Stern R, Eldridge R.

J Med Genet. 1975 Sep;12(3):217-23.

13.
14.

Predictive testing for Huntington's disease: risk perception, reasons for testing and psychological profile of test applicants.

Decruyenaere M, Evers-Kiebooms G, Boogaerts A, Cassiman JJ, Cloostermans T, Demyttenaere K, Dom R, Fryns JP, Van den Berghe H.

Genet Couns. 1995;6(1):1-13.

PMID:
7794556
15.

Perception of predictive testing for Huntington's disease by young women: preferring uncertainty to certainty?

Decruyenaere M, Evers-Kiebooms G, Van den Berghe H.

J Med Genet. 1993 Jul;30(7):557-61.

16.

Different options for prenatal testing for Huntington's disease using DNA probes.

Fahy M, Robbins C, Bloch M, Turnell RW, Hayden MR.

J Med Genet. 1989 Jun;26(6):353-7.

17.

Personal factors associated with reported benefits of Huntington disease family history or genetic testing.

Williams JK, Erwin C, Juhl A, Mills J, Brossman B, Paulsen JS; I-RESPOND-HD Investigators of the Huntington Study Group.

Genet Test Mol Biomarkers. 2010 Oct;14(5):629-36. doi: 10.1089/gtmb.2010.0065. Epub 2010 Aug 19.

18.

[Psychosocial aspects in presymptomatic testing for genetic diseases. Experiences after 2 years of counseling in Huntington disease].

Blomhoff S, Malt U, Weisaeth L.

Tidsskr Nor Laegeforen. 1995 Jan 10;115(1):27-9. Norwegian.

PMID:
7846655
19.

Factors associated with experiences of genetic discrimination among individuals at risk for Huntington disease.

Bombard Y, Palin J, Friedman JM, Veenstra G, Creighton S, Paulsen JS, Bottorff JL, Hayden MR; Canadian Respond-HD Collaborative Research Group.

Am J Med Genet B Neuropsychiatr Genet. 2011 Jan;156B(1):19-27. doi: 10.1002/ajmg.b.31130. Epub 2010 Nov 10.

20.

Adoption and the communication of genetic risk: experiences in Huntington disease.

Bombard Y, Semaka A, Hayden MR.

Clin Genet. 2012 Jan;81(1):64-9. doi: 10.1111/j.1399-0004.2010.01614.x. Epub 2011 Jan 9.

PMID:
21204796

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