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Items: 1 to 20 of 97

1.

Ethical and practical issues associated with aggregating databases.

Karp DR, Carlin S, Cook-Deegan R, Ford DE, Geller G, Glass DN, Greely H, Guthridge J, Kahn J, Kaslow R, Kraft C, Macqueen K, Malin B, Scheuerman RH, Sugarman J.

PLoS Med. 2008 Sep 23;5(9):e190. doi: 10.1371/journal.pmed.0050190. No abstract available.

2.
3.

Monitoring ethical, legal, and social issues in developing population genetic databases.

Austin MA, Harding SE, McElroy CE.

Genet Med. 2003 Nov-Dec;5(6):451-7.

PMID:
14614397
4.

Biobanks. Population databases boom, from Iceland to the U.S.

Kaiser J.

Science. 2002 Nov 8;298(5596):1158-61. No abstract available.

PMID:
12424349
5.

Evaluation of biobank constitution and use: multicentre analysis in France and propositions for formalising the activities of research ethics committees.

de Montgolfier S, Moutel G, Duchange N, Callies I, Sharara L, Beaumont C, Feingold J, Hervé C.

Eur J Med Genet. 2006 Mar-Apr;49(2):159-67.

PMID:
16530713
6.

The governance of human genetic research databases in mental health research.

Mc Fleming J.

Int J Law Psychiatry. 2007 May-Jun;30(3):182-90.

PMID:
17449098
7.

NIH seeks input on data sharing policies.

[No authors listed]

Physiologist. 2007 Feb;50(1):22-3. No abstract available.

PMID:
17366942
8.
9.

Practical guidelines addressing ethical issues pertaining to the curation of human locus-specific variation databases (LSDBs).

Povey S, Al Aqeel AI, Cambon-Thomsen A, Dalgleish R, den Dunnen JT, Firth HV, Greenblatt MS, Barash CI, Parker M, Patrinos GP, Savige J, Sobrido MJ, Winship I, Cotton RG; Ethics Committee of the Human Genome Organization (HUGO)..

Hum Mutat. 2010 Nov;31(11):1179-84. doi: 10.1002/humu.21339.

10.

Research ethics committees: the role of ethics in a regulatory authority.

McGuinness S.

J Med Ethics. 2008 Sep;34(9):695-700. doi: 10.1136/jme.2007.021089.

PMID:
18757644
11.

Ethics guidelines for population genetics research.

Deschênes M.

Nat Rev Genet. 2004 Jun;5(6):408. No abstract available.

PMID:
15188778
12.

[The UNESCO international declaration about human genetic data ].

UNESCO..

Rev Derecho Genoma Hum. 2003 Jul-Dec;(19):239-53. Spanish. No abstract available.

PMID:
15032107
13.

Genomic databases access agreements: legal validity and possible sanctions.

Joly Y, Zeps N, Knoppers BM.

Hum Genet. 2011 Sep;130(3):441-9. doi: 10.1007/s00439-011-1044-3.

PMID:
21706183
14.

[National Database of Genotypes--ethical and legal issues].

Franková V, Tesínová J, Brdicka R.

Cas Lek Cesk. 2011;150(7):372-5; discussion 376-7. Czech.

PMID:
22026259
15.

[Baby abandonment and biobanks--with what does the German Ethics Council have to deal?].

Hügler S.

Dtsch Med Wochenschr. 2009 Feb;134(7):p6. doi: 10.1055/s-0028-1124059. German. No abstract available.

PMID:
19219770
16.
17.

The ethics of access to online genetic databases: private or public?

Marks AD, Steinberg KK.

Am J Pharmacogenomics. 2002;2(3):207-12. Review.

PMID:
12383027
18.

Broad data sharing in genetic research: views of institutional review board professionals.

Lemke AA, Smith ME, Wolf WA, Trinidad SB; GRRIP Consortium..

IRB. 2011 May-Jun;33(3):1-5. No abstract available.

19.

Are new laws needed to protect human subjects?

Zucker C.

Account Res. 2001;8(3):235-44. No abstract available.

PMID:
12481767
20.

A biobank management model applicable to biomedical research.

Auray-Blais C, Patenaude J.

BMC Med Ethics. 2006 Apr 6;7:E4.

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