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Items: 1 to 20 of 126

1.

The law of incidental findings in human subjects research: establishing researchers' duties.

Wolf SM, Paradise J, Caga-anan C.

J Law Med Ethics. 2008 Summer;36(2):361-83, 214. doi: 10.1111/j.1748-720X.2008.00281.x. Review.

2.

To know or not to know.

Ballantyne C.

Nat Med. 2008 Aug;14(8):797. doi: 10.1038/nm0808-797b. No abstract available.

PMID:
18685585
3.

Incidental findings: a common law approach.

Tovino SA.

Account Res. 2008 Oct-Dec;15(4):242-61. doi: 10.1080/08989620802388705.

PMID:
18972265
4.

Secondary researchers' duties to return incidental findings and individual research results: a partial-entrustment account.

Richardson HS, Cho MK.

Genet Med. 2012 Apr;14(4):467-72. doi: 10.1038/gim.2012.12. Epub 2012 Feb 23.

PMID:
22361900
5.

Managing incidental findings in human subjects research: analysis and recommendations.

Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, McFarland EG, Paradise J, Parker LS, Terry SF, Van Ness B, Wilfond BS.

J Law Med Ethics. 2008 Summer;36(2):219-48, 211. doi: 10.1111/j.1748-720X.2008.00266.x. Review.

6.
7.

Institutional review board approaches to the incidental findings problem.

Keane MA.

J Law Med Ethics. 2008 Summer;36(2):352-5, 213. doi: 10.1111/j.1748-720X.2008.00279.x.

8.

Ethical framework for the detection, management and communication of incidental findings in imaging studies, building on an interview study of researchers' practices and perspectives.

Bunnik EM, van Bodegom L, Pinxten W, de Beaufort ID, Vernooij MW.

BMC Med Ethics. 2017 Feb 6;18(1):10. doi: 10.1186/s12910-017-0168-y.

9.

Finding Fault? Exploring Legal Duties to Return Incidental Findings in Genomic Research.

Pike ER, Rothenberg KH, Berkman BE.

Georgetown Law J. 2014;102:795-843.

10.

Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance.

Simon C, Shinkunas LA, Brandt D, Williams JK.

J Med Ethics. 2012 Jul;38(7):417-22. doi: 10.1136/medethics-2011-100273. Epub 2012 Mar 5.

11.

Taking aims seriously: repository research and limits on the duty to return individual research findings.

Ossorio P.

Genet Med. 2012 Apr;14(4):461-6. doi: 10.1038/gim.2012.5. Epub 2012 Mar 8.

12.

Incidental findings in genetics research using archived DNA.

Clayton EW.

J Law Med Ethics. 2008 Summer;36(2):286-91, 212. doi: 10.1111/j.1748-720X.2008.00271.x.

13.

Incidental findings in human subjects research: what do investigators owe research participants?

Miller FG, Mello MM, Joffe S.

J Law Med Ethics. 2008 Summer;36(2):271-9, 211. doi: 10.1111/j.1748-720X.2008.00269.x.

14.

To disclose, or not to disclose? Context matters.

Rahimzadeh V, Avard D, Sénécal K, Knoppers BM, Sinnett D.

Eur J Hum Genet. 2015 Mar;23(3):279-84. doi: 10.1038/ejhg.2014.108. Epub 2014 Jun 11.

15.

Do researchers have an obligation to actively look for genetic incidental findings?

Gliwa C, Berkman BE.

Am J Bioeth. 2013;13(2):32-42. doi: 10.1080/15265161.2012.754062.

16.

The future of incidental findings: should they be viewed as benefits?

Parker LS.

J Law Med Ethics. 2008 Summer;36(2):341-51, 213. doi: 10.1111/j.1748-720X.2008.00278.x.

17.

Dissemination to research subjects: operationalizing investigator accountability.

Zlotnik Shaul R, Reid L, Essue B, Gibson J, Marzinotto V, Daneman D.

Account Res. 2005 Jan-Mar;12(1):1-16.

PMID:
16021788
18.
19.

Researcher perspectives on disclosure of incidental findings in genetic research.

Meacham MC, Starks H, Burke W, Edwards K.

J Empir Res Hum Res Ethics. 2010 Sep;5(3):31-41. doi: 10.1525/jer.2010.5.3.31.

20.

Research participants in NGS studies want to know about incidental findings.

Jelsig AM, Qvist N, Brusgaard K, Ousager LB.

Eur J Hum Genet. 2015 Oct;23(10):1423-6. doi: 10.1038/ejhg.2014.298. Epub 2015 Jan 21.

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