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Items: 1 to 20 of 171

1.

Psychosocial issues in families affected by maple syrup urine disease.

Packman W, Henderson SL, Mehta I, Ronen R, Danner D, Chesterman B, Packman S.

J Genet Couns. 2007 Dec;16(6):799-809. Epub 2007 Aug 17.

PMID:
17703353
2.

Quality of life in children with heart disease as perceived by children and parents.

Uzark K, Jones K, Slusher J, Limbers CA, Burwinkle TM, Varni JW.

Pediatrics. 2008 May;121(5):e1060-7. doi: 10.1542/peds.2006-3778.

PMID:
18450848
3.

Measuring health-related quality of life in children with ESRD: performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory (PedsQL).

Goldstein SL, Graham N, Warady BA, Seikaly M, McDonald R, Burwinkle TM, Limbers CA, Varni JW.

Am J Kidney Dis. 2008 Feb;51(2):285-97. doi: 10.1053/j.ajkd.2007.09.021.

PMID:
18215706
4.

Young adults with MSUD and their transition to adulthood: psychosocial issues.

Packman W, Mehta I, Rafie S, Mehta J, Naldi M, Mooney KH.

J Genet Couns. 2012 Oct;21(5):692-703. doi: 10.1007/s10897-012-9490-1. Epub 2012 Feb 17.

PMID:
22350623
5.

Intellectual outcome in children with maple syrup urine disease.

Kaplan P, Mazur A, Field M, Berlin JA, Berry GT, Heidenreich R, Yudkoff M, Segal S.

J Pediatr. 1991 Jul;119(1 Pt 1):46-50.

PMID:
2066858
6.

Prospective evaluation of health related quality of life for pediatric patients with ureteropelvic junction obstruction.

Parekh AD, Thomas JC, Trusler L, Ankerst DP, Deshpande JK, Adams MC, Pope JC 4th, Brock JW 3rd.

J Urol. 2008 Nov;180(5):2171-5; discussion 2175-6. doi: 10.1016/j.juro.2008.07.064. Epub 2008 Sep 20.

PMID:
18804796
7.

Measuring health-related quality of life in Greek children: psychometric properties of the Greek version of the Pediatric Quality of Life Inventory(TM) 4.0 Generic Core Scales.

Gkoltsiou K, Dimitrakaki C, Tzavara C, Papaevangelou V, Varni JW, Tountas Y.

Qual Life Res. 2008 Mar;17(2):299-305. Epub 2007 Dec 15.

PMID:
18080786
8.

Psychosocial functioning of pediatric renal and liver transplant recipients.

Wu YP, Aylward BS, Steele RG, Maikranz JM, Dreyer ML.

Pediatr Transplant. 2008 Aug;12(5):582-7. doi: 10.1111/j.1399-3046.2007.00895.x. Epub 2008 Jan 14.

PMID:
18208436
9.
10.

Health-related quality of life, physical function, fatigue, and disease activity in children with established polyarticular juvenile idiopathic arthritis.

Ringold S, Wallace CA, Rivara FP.

J Rheumatol. 2009 Jun;36(6):1330-6. doi: 10.3899/jrheum.081028. Epub 2009 May 1.

PMID:
19411394
11.

[The quality of life of children suffering from oncologic diseases in Lithuania].

Makari J, Zaborskis A, Labanauskas L, Rageliene L.

Medicina (Kaunas). 2007;43(9):726-35. Lithuanian.

12.

Factors influencing parent reports on quality of life for children with asthma.

Annett RD, Bender BG, DuHamel TR, Lapidus J.

J Asthma. 2003;40(5):577-87.

PMID:
14529108
13.

Quality of life of children and adolescents from São Paulo: reliability and validity of the Brazilian version of the Pediatric Quality of Life Inventory version 4.0 Generic Core Scales.

Klatchoian DA, Len CA, Terreri MT, Silva M, Itamoto C, Ciconelli RM, Varni JW, Hilário MO.

J Pediatr (Rio J). 2008 Jul-Aug;84(4):308-15. doi: doi:10.2223/JPED.1788. Epub 2008 Aug 1.

14.

Assessment of quality of life of the children and parents affected by inborn errors of metabolism with restricted diet: preliminary results of a cross-sectional study.

Fabre A, Baumstarck K, Cano A, Loundou A, Berbis J, Chabrol B, Auquier P.

Health Qual Life Outcomes. 2013 Sep 19;11:158. doi: 10.1186/1477-7525-11-158.

15.

Psychosocial adjustment and quality of life after renal transplantation in early childhood.

Qvist E, Närhi V, Apajasalo M, Rönnholm K, Jalanko H, Almqvist F, Holmberg C.

Pediatr Transplant. 2004 Apr;8(2):120-5.

PMID:
15049791
16.

Intellectual and motor performance, quality of life and psychosocial adjustment in children with cystinosis.

Ulmer FF, Landolt MA, Vinh RH, Huisman TA, Neuhaus TJ, Latal B, Laube GF.

Pediatr Nephrol. 2009 Jul;24(7):1371-8. doi: 10.1007/s00467-009-1149-2. Epub 2009 Mar 18.

PMID:
19294426
17.

Health-related quality of life and family function following pediatric liver transplantation.

Alonso EM, Neighbors K, Barton FB, McDiarmid SV, Dunn SP, Mazariegos GV, Landgraf JM, Bucuvalas JC; Studies of Pediatric Liver Transplant Research Group.

Liver Transpl. 2008 Apr;14(4):460-8. doi: 10.1002/lt.21352.

18.

The pediatric quality of life inventory (PedsQL) family impact module: reliability and validity of the Brazilian version.

Scarpelli AC, Paiva SM, Pordeus IA, Varni JW, Viegas CM, Allison PJ.

Health Qual Life Outcomes. 2008 May 20;6:35. doi: 10.1186/1477-7525-6-35.

19.

Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease.

Brosig CL, Mussatto KA, Kuhn EM, Tweddell JS.

Pediatr Cardiol. 2007 Jul-Aug;28(4):255-62. Epub 2007 May 5.

PMID:
17486393
20.

Psychosocial problems in families of disabled children.

Singhi PD, Goyal L, Pershad D, Singhi S, Walia BN.

Br J Med Psychol. 1990 Jun;63 ( Pt 2):173-82.

PMID:
2142891

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