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2.

[Parents' experiences with life-and-death decisions concerning their premature infants].

Brinchmann BS, Førde R, Nortvedt P.

Tidsskr Nor Laegeforen. 2002 Sep 10;122(21):2098-101. Norwegian.

PMID:
12555644
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Life support decisions for extremely premature infants: report of a pilot study.

Kavanaugh K, Savage T, Kilpatrick S, Kimura R, Hershberger P.

J Pediatr Nurs. 2005 Oct;20(5):347-59.

PMID:
16182094
5.

Living with grief following removal of infant life support: parents' perspectives.

Armentrout D.

Crit Care Nurs Clin North Am. 2009 Jun;21(2):253-65. doi: 10.1016/j.ccell.2009.01.003.

PMID:
19460667
6.

How nurses assist parents regarding life support decisions for extremely premature infants.

Kavanaugh K, Moro TT, Savage TA.

J Obstet Gynecol Neonatal Nurs. 2010 Mar-Apr;39(2):147-58. doi: 10.1111/j.1552-6909.2010.01105.x.

7.

International comparison of care for very low birth weight infants: parents' perceptions of counseling and decision-making.

Partridge JC, Martinez AM, Nishida H, Boo NY, Tan KW, Yeung CY, Lu JH, Yu VY.

Pediatrics. 2005 Aug;116(2):e263-71.

PMID:
16061579
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Effectiveness of an intervention to improve parent-professional collaboration in neonatal intensive care.

Penticuff JH, Arheart KL.

J Perinat Neonatal Nurs. 2005 Apr-Jun;19(2):187-202.

PMID:
15923969
10.

Parents' experiences of transition when their infants are discharged from the Neonatal Intensive Care Unit: a systematic review protocol.

Aagaard H, Uhrenfeldt L, Spliid M, Fegran L.

JBI Database System Rev Implement Rep. 2015 Oct;13(10):123-32. doi: 10.11124/jbisrir-2015-2287. Review.

PMID:
26571288
11.

Empirically based recommendations to support parents facing the dilemma of paediatric cadaver organ donation.

Bellali T, Papazoglou I, Papadatou D.

Intensive Crit Care Nurs. 2007 Aug;23(4):216-25. Epub 2007 May 1.

PMID:
17475498
12.

The moral experience of parents regarding life-support decisions for their critically-ill children: a preliminary study in France.

Carnevale FA, Canouï P, Hubert P, Farrell C, Leclerc F, Doussau A, Seguin MJ, Lacroix J.

J Child Health Care. 2006 Mar;10(1):69-82.

PMID:
16464934
13.

Living with a crucial decision: a qualitative study of parental narratives three years after the loss of their newborn in the NICU.

Caeymaex L, Speranza M, Vasilescu C, Danan C, Bourrat MM, Garel M, Jousselme C.

PLoS One. 2011;6(12):e28633. doi: 10.1371/journal.pone.0028633. Epub 2011 Dec 14.

14.

Parent decision making for life support for extremely premature infants: from the prenatal through end-of-life period.

Moro TT, Kavanaugh K, Savage TA, Reyes MR, Kimura RE, Bhat R.

J Perinat Neonatal Nurs. 2011 Jan-Mar;25(1):52-60. doi: 10.1097/JPN.0b013e31820377e5.

15.

Holding on: parents' perceptions of premature infants' transfers.

Gibbins SA, Chapman JS.

J Obstet Gynecol Neonatal Nurs. 1996 Feb;25(2):147-53.

PMID:
8656305
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Parental involvement in treatment decisions regarding their critically ill child: a comparative study of France and Quebec.

Carnevale FA, Canoui P, Cremer R, Farrell C, Doussau A, Seguin MJ, Hubert P, Leclerc F, Lacroix J.

Pediatr Crit Care Med. 2007 Jul;8(4):337-42.

PMID:
17545930
19.

What influences parents' decisions to limit or withdraw life support?

Sharman M, Meert KL, Sarnaik AP.

Pediatr Crit Care Med. 2005 Sep;6(5):513-8.

PMID:
16148808
20.

Life support decisions involving imperiled infants.

Wocial LD.

J Perinat Neonatal Nurs. 2000 Sep;14(2):73-86.

PMID:
11930462

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