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Items: 1 to 20 of 158

1.

It is time for an organised, scientific approach to the application of patient-reported outcome measures in clinical studies and trials.

McKenna SP.

Clin Rheumatol. 2018 Dec 18. doi: 10.1007/s10067-018-04403-2. [Epub ahead of print]

PMID:
30564944
2.

Measurement of patient-reported outcomes. 2: Are current measures failing us?

McKenna SP, Heaney A, Wilburn J.

J Med Econ. 2018 Dec 17:1. doi: 10.1080/13696998.2018.1560304. [Epub ahead of print]

PMID:
30556787
3.

Measurement of patient-reported outcomes. 1: The search for the Holy Grail.

McKenna SP, Heaney A, Wilburn J, Stenner AJ.

J Med Econ. 2018 Dec 17:1. doi: 10.1080/13696998.2018.1560303. [Epub ahead of print]

PMID:
30556774
4.

Translation, cross-cultural adaptation and validation of the Osteoarthritis Quality of Life (OAQoL) questionnaire for use in Portugal.

Gomes JL, Águeda AF, Heaney A, Duarte C, Lopes C, Costa T, Marona J, Rodrigues-Manica S, Maia S, Costa M, Branco JC, McKenna SP, Barcelos A, Pimentel-Santos FM.

Rheumatol Int. 2018 Nov 10. doi: 10.1007/s00296-018-4197-8. [Epub ahead of print]

PMID:
30415453
5.

The Polish adaptation of the CAMbridge Pulmonary Hypertension Outcome Review (CAMPHOR).

Małaczynska-Rajpold K, Smukowska-Gorynia A, Heaney A, McKenna SP, Janus M, Araszkiewicz A, Jankiewicz S, Slawek-Szmyt S, Tomaszewska I, Mularek-Kubzdela T.

Cardiol J. 2018 Oct 19. doi: 10.5603/CJ.a2018.0119. [Epub ahead of print]

7.

​ Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.

Duarte C, Barcelos A, Lagoas Gomes J, Stepanous J, Wilburn J, Heaney A, McKenna SP.

Acta Reumatol Port. 2018 Apr-Jun;43(2):132-136.

8.

The impact of Home Parenteral Nutrition on the lives of adults with Type 3 Intestinal Failure.

Heaney A, McKenna SP, Wilburn J, Rouse M, Taylor M, Burden S, Lal S.

Clin Nutr ESPEN. 2018 Apr;24:35-40. doi: 10.1016/j.clnesp.2018.02.003. Epub 2018 Feb 23.

PMID:
29576360
9.

Patient value: its nature, measurement, and role in real world evidence studies and outcomes-based reimbursement.

McKenna SP, Wilburn J.

J Med Econ. 2018 May;21(5):474-480. doi: 10.1080/13696998.2018.1450260. Epub 2018 Mar 23.

PMID:
29514528
10.

Translation and validation of the greek Psoriatic Arthritis Quality of Life Scale.

Heaney Α, Stepanous J, McKenna SP, Athanassiou P, Vidalis AA.

Psychiatriki. 2017 Jul-Sep;28(3):219-225. doi: 10.22365/jpsych.2017.283.219.

PMID:
29072185
11.

A qualitative study of the impact of Crohn's disease from a patient's perspective.

Wilburn J, Twiss J, Kemp K, McKenna SP.

Frontline Gastroenterol. 2017 Jan;8(1):68-73. doi: 10.1136/flgastro-2015-100678. Epub 2016 May 12.

12.

Adaptation of Chinese and English versions of the Ankylosing Spondylitis quality of life (ASQoL) scale for use in Singapore.

Leung YY, Lee W, Lui NL, Rouse M, McKenna SP, Thumboo J.

BMC Musculoskelet Disord. 2017 Aug 17;18(1):353. doi: 10.1186/s12891-017-1715-x.

13.

A Review of the Psychometric Properties and Use of the Rheumatoid Arthritis Quality of Life Questionnaire (RAQoL) in Clinical Research.

Heaney A, Stepanous J, Rouse M, McKenna SP.

Curr Rheumatol Rev. 2017;13(3):197-205. doi: 10.2174/1573396313666170615092324. Review.

PMID:
28641552
14.

Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition.

Wilburn J, McKenna SP, Heaney A, Rouse M, Taylor M, Culkin A, Gabe S, Burden S, Lal S.

Clin Nutr. 2018 Jun;37(3):978-983. doi: 10.1016/j.clnu.2017.04.004. Epub 2017 Apr 12.

PMID:
28446383
15.

Adaptation of the osteoarthritis-specific quality of life scale (the OAQoL) for use in Germany, Hungary, Italy, Spain and Turkey.

Wilburn J, McKenna SP, Kutlay Ş, Bender T, Braun J, Castillo-Gallego C, Favero M, Geher P, Kiltz U, Martin-Mola E, Ramonda R, Rouse M, Tennant A, Küçükdeveci AA.

Rheumatol Int. 2017 May;37(5):727-734. doi: 10.1007/s00296-017-3664-y. Epub 2017 Feb 15.

PMID:
28197718
16.

Adaptation and Validation of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for Use in Spain.

Aguirre-Camacho A, Stepanous J, Blanco-Donoso LM, Moreno-Jiménez B, Wilburn J, González-Saiz L, McKenna SP.

Rev Esp Cardiol (Engl Ed). 2017 Jun;70(6):467-473. doi: 10.1016/j.rec.2016.11.007. Epub 2016 Dec 15. Review. English, Spanish.

PMID:
27989660
17.

Adaptation and validation of the Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire for use in Serbia.

Zlatkovic-Svenda M, Rouse M, Radak-Perovic M, Stojanovic R, Vujasinovic-Stupar N, Lazovic-Popovic B, Wilburn J, McKenna SP.

Rheumatol Int. 2017 Apr;37(4):641-646. doi: 10.1007/s00296-016-3586-0. Epub 2016 Oct 31.

PMID:
27796523
18.

Adaptation of Chinese and English versions of the Psoriatic Arthritis Quality of Life (PsAQoL) scale for use in Singapore.

Leung YY, Thumboo J, Rouse M, McKenna SP.

BMC Musculoskelet Disord. 2016 Oct 18;17(1):432.

19.

Portuguese validation of the Cambridge pulmonary hypertension outcome review (CAMPHOR) questionnaire.

Reis A, Twiss J, Vicente M, Gonçalves F, Carvalho L, Meireles J, Melo A, McKenna SP, Almeida L.

Health Qual Life Outcomes. 2016 Jul 26;14(1):110. doi: 10.1186/s12955-016-0513-8.

20.

Applying Rasch analysis to evaluate measurement equivalence of different administration formats of the Activity Limitation scale of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR).

Twiss J, McKenna SP, Graham J, Swetz K, Sloan J, Gomberg-Maitland M.

Health Qual Life Outcomes. 2016 Apr 9;14:57. doi: 10.1186/s12955-016-0462-2.

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