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Items: 10

1.

Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains.

Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A.

Haemophilia. 2018 Dec 6. doi: 10.1111/hae.13649. [Epub ahead of print]

PMID:
30520534
2.

Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire.

Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther M, Iorio A.

BMJ Open. 2018 Aug 8;8(8):e021900. doi: 10.1136/bmjopen-2018-021900.

3.

Treatment outcomes, quality of life, and impact of hemophilia on young adults (aged 18-30 years) with hemophilia.

Witkop M, Guelcher C, Forsyth A, Hawk S, Curtis R, Kelley L, Frick N, Rice M, Rosu G, Cooper DL.

Am J Hematol. 2015 Dec;90 Suppl 2:S3-10. doi: 10.1002/ajh.24220.

4.

Unmet needs in the transition to adulthood: 18- to 30-year-old people with hemophilia.

Quon D, Reding M, Guelcher C, Peltier S, Witkop M, Cutter S, Buranahirun C, Molter D, Frey MJ, Forsyth A, Tran DB, Curtis R, Hiura G, Levesque J, de la Riva D, Compton M, Iyer NN, Holot N, Cooper DL.

Am J Hematol. 2015 Dec;90 Suppl 2:S17-22. doi: 10.1002/ajh.24219. Review.

5.

Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status.

Curtis R, Baker J, Riske B, Ullman M, Niu X, Norton K, Lou M, Nichol MB.

Am J Hematol. 2015 Dec;90 Suppl 2:S11-6. doi: 10.1002/ajh.24218.

6.

Challenges in transition to adulthood for young adult patients with hemophilia: Quantifying the psychosocial issues and developing solutions.

Witkop M, Guelcher C, Forsyth A, Quon D, Hawk S, Curtis R, Cutter S, Molter D, Cooper DL.

Am J Hematol. 2015 Dec;90 Suppl 2:S1-2. doi: 10.1002/ajh.24217. No abstract available.

7.

Burden of illness: direct and indirect costs among persons with hemophilia A in the United States.

Zhou ZY, Koerper MA, Johnson KA, Riske B, Baker JR, Ullman M, Curtis RG, Poon JL, Lou M, Nichol MB.

J Med Econ. 2015 Jun;18(6):457-65. doi: 10.3111/13696998.2015.1016228. Epub 2015 Mar 9.

8.

Self-reported barriers to hemophilia care in people with factor VIII deficiency.

Zhou ZY, Riske B, Forsberg AD, Ullman M, Baker JR, Koerper MA, Curtis RG, Lou M, Joanne W, Johnson KA.

Am J Prev Med. 2011 Dec;41(6 Suppl 4):S346-53. doi: 10.1016/j.amepre.2011.09.003.

PMID:
22099357
9.

Septic arthritis in males with haemophilia.

Ashrani AA, Key NS, Soucie JM, Duffy N, Forsyth A, Geraghty S; Universal Data Collection Project Investigators.

Haemophilia. 2008 May;14(3):494-503. doi: 10.1111/j.1365-2516.2008.01662.x. Epub 2008 Feb 21.

10.

Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors.

Soucie JM, Cianfrini C, Janco RL, Kulkarni R, Hambleton J, Evatt B, Forsyth A, Geraghty S, Hoots K, Abshire T, Curtis R, Forsberg A, Huszti H, Wagner M, White GC 2nd.

Blood. 2004 Apr 1;103(7):2467-73. Epub 2003 Nov 13.

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