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Items: 13

1.

Comprehensive care for hemophilia and other inherited bleeding disorders.

Page D.

Transfus Apher Sci. 2019 Aug 6. pii: S1473-0502(19)30150-8. doi: 10.1016/j.transci.2019.08.005. [Epub ahead of print]

PMID:
31427262
2.

From the voices of people with haemophilia A and their caregivers: Challenges with current treatment, their impact on quality of life and desired improvements in future therapies.

Wiley RE, Khoury CP, Snihur AWK, Williams M, Page D, Graham N, Laudenbach L, Milne-Wren C, Stoffman JM.

Haemophilia. 2019 May;25(3):433-440. doi: 10.1111/hae.13754. Epub 2019 Apr 23.

PMID:
31016823
3.

Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study.

Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A.

Haemophilia. 2019 May;25(3):365-372. doi: 10.1111/hae.13703. Epub 2019 Mar 12.

PMID:
30861270
4.

The 1st WFH Gene Therapy Round Table: Understanding the landscape and challenges of gene therapy for haemophilia around the world.

Pierce GF, Coffin D; Members of the WFH Gene Therapy Round Table Program Committee and Organizing Committee.

Haemophilia. 2019 Mar;25(2):189-194. doi: 10.1111/hae.13673. Epub 2019 Jan 3. Review.

PMID:
30604914
5.

Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains.

Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A.

Haemophilia. 2019 Jan;25(1):75-83. doi: 10.1111/hae.13649. Epub 2018 Dec 6.

PMID:
30520534
6.

Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire.

Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther M, Iorio A.

BMJ Open. 2018 Aug 8;8(8):e021900. doi: 10.1136/bmjopen-2018-021900.

7.

The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia.

Skinner MW, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, Noone D, O'Mahony B, Page D, Stonebraker JS, Iorio A.

Pilot Feasibility Stud. 2018 Feb 27;4:58. doi: 10.1186/s40814-018-0253-0. eCollection 2018.

8.

Assessments of outcome in haemophilia - a patient perspective.

O'Mahony B, Skinner MW, Noone D, Page D, O'Hara J.

Haemophilia. 2016 May;22(3):e208-9. doi: 10.1111/hae.12922. Epub 2016 Mar 14. No abstract available.

PMID:
26988632
9.

Penny wise, pound foolish: an assessment of Canadian Hemophilia/inherited bleeding disorder comprehensive care program services and resources.

Page D, Crymble S, Lawday K, Long M, Stoffman J, Waterhouse L, Wilton P.

Haemophilia. 2016 Jul;22(4):531-6. doi: 10.1111/hae.12913. Epub 2016 Mar 3.

PMID:
26936440
10.

The haemophilia certification system in Canada.

Matino D, Teitel J, Page D, Keepanasseril A, Iorio A, Walker I.

Blood Transfus. 2014 Apr;12 Suppl 3:e531-41. doi: 10.2450/2014.0032-14s. Review. No abstract available.

11.

Hemophilia comprehensive care model waiting to be duplicated for other rare chronic conditions.

Page D.

Transfus Apher Sci. 2013 Apr;48(2):119-21. Review. No abstract available.

PMID:
23785715
12.

Integrated specialty service readiness in health reform: connections in haemophilia comprehensive care.

Pritchard AM, Page D.

Haemophilia. 2008 May;14(3):436-43. doi: 10.1111/j.1365-2516.2008.01657.x. Epub 2008 Mar 10.

PMID:
18331561
13.

Hemophilia and HIV infection.

Page D.

CMAJ. 1993 Jun 1;148(11):1870-1. No abstract available.

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