Send to

Choose Destination

See 1 citation found by title matching your search:

Epilepsia. 2015 Aug;56(8):1264-74. doi: 10.1111/epi.13052. Epub 2015 Jun 29.

PACES in epilepsy: Results of a self-management randomized controlled trial.

Author information

Rehabilitation Medicine, University of Washington, Seattle, Washington, U.S.A.
Health Promotion Research Center, University of Washington, Seattle, Washington, U.S.A.
Neurology Vocational Services Unit, University of Washington, Seattle, Washington, U.S.A.
Neurological Surgery, University of Washington, Seattle, Washington, U.S.A.
Neurology, University of Washington, Seattle, Washington, U.S.A.
Psychiatry and Behavioral Sciences, University of Washington, Seattle, Washington, U.S.A.
Biostatistics, University of Washington, Seattle, Washington, U.S.A.
Swedish Neuroscience Institute, Seattle, Washington, U.S.A.



Self-management challenges facing adults with epilepsy include limited understanding of the condition and treatment, associated psychosocial issues, and lack of community integration. Self-management interventions improve patients' medical, life role, and emotional management. Previous interventions, developed from expert opinion, indicated issues with participant engagement/retention, and limited follow-up periods. PACES in Epilepsy addressed methodologic concerns by utilizing patient needs assessment data (n = 165) to derive self-management content and program features for evaluation via randomized controlled trial (RCT).


Participants were adults with chronic epilepsy (n = 83), without serious mental illness or substantive intellectual impairment, who were recruited from two epilepsy centers. Participants were assigned randomly to intervention or treatment-as-usual groups. Outcomes included the Epilepsy Self-Management Scale (ESMS), Epilepsy Self-Efficacy Scale (ESES), Quality of Life in Epilepsy-31 (QOLIE-31), Patient Health Questionnaire-9 (PHQ-9), and the Generalized Anxiety Disorder-7 (GAD-7), administered at baseline, postintervention (8 weeks), and 6 months postintervention. The intervention was an 8-week group of 6-8 adults co-led by a psychologist and trained peer with epilepsy that met one evening per week at a hospital for 75 min. Topics included medical, psychosocial, cognitive, and self-management aspects of epilepsy, in addition to community integration and optimizing epilepsy-related communication. The treatment group provided satisfaction ratings regarding program features.


PACES participants (n = 38) improved relative to controls (n = 40) on the ESMS (p < 0.001) and subscales [Information (p < 0.001); Lifestyle (p < 0.002)]; ESES (p < 0.001); and QOLIE-31 (p = 0.002). At 6-month follow up, PACES participants remained improved on the ESMS (p = 0.004) and Information subscale (p = 0.009); and Energy/Fatigue (p = 0.032) and Medication Effects (p = 0.005) of the QOLIE-31. Attrition in both groups was low (8% in each group) and all program satisfaction ratings exceeded 4.0/5.0, with leadership (4.76), topics (4.53), and location (4.30) as the most highly rated aspects.


A consumer generated epilepsy self-management program appears to be a promising intervention from multiple perspectives, particularly in relation to disability management.


Consumer-generated intervention; Depression; Epilepsy; Quality of life; Self-efficacy; Self-management

[Indexed for MEDLINE]
Free full text

Supplemental Content

Full text links

Icon for Wiley
Loading ...
Support Center