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J Cyst Fibros. 2017 Jan;16(1):85-88. doi: 10.1016/j.jcf.2016.07.001. Epub 2016 Jul 26.

Limitations to providing adult cystic fibrosis care in Europe: Results of a care centre survey.

Author information

  • 1Department of Cystic Fibrosis, Royal Brompton Hospital, London, UK. Electronic address:
  • 2Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia; Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia; School of Medicine, University of Queensland, Brisbane, Australia.
  • 3Department of Respiratory Medicine and Adult Cystic Fibrosis, Assistance Publique Hôpitaux de Paris, Paris, France; Université Paris Descartes, Sorbonne Paris Cité, Paris, France.
  • 4Cystic Fibrosis Europe, Brussels, Belgium.
  • 5Department of Pathophysiology and Transplantation, Università degli Studi di Milano, Fondazione IRCCS Cà Granda Ospedale Maggiore Policlinico Milan, Italy; Cardio-thoracic unit, IRCCS Fondazione Ospedale Maggiore, Milan, Italy.
  • 6Queen's University Belfast, BT9 Room G.16, Health Sciences Building, 97 Lisburn Road, Belfast, UK.



There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe.


An online survey designed by clinicians and patient representatives to explore level of service.


Training opportunities for clinicians and resources (physical and manpower) to provide care to adults with CF are limited in Europe. Although specific adult CF care has been identified, teams continue to be supported by paediatric colleagues and many adults are still being admitted to paediatric wards. In some centres, service delivery, particularly infection control and access to some CF medication is insufficient and in many places poor personnel resources limits access to comprehensive multidisciplinary teams.


This survey shows an urgent need for the development of resources for adult CF care, in both physical space and appropriately trained clinicians.


Adults; Cystic fibrosis; Eastern Europe; Service provision; Western Europe

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