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Items: 4

1.

Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains.

Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A.

Haemophilia. 2018 Dec 6. doi: 10.1111/hae.13649. [Epub ahead of print]

PMID:
30520534
2.

Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire.

Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther M, Iorio A.

BMJ Open. 2018 Aug 8;8(8):e021900. doi: 10.1136/bmjopen-2018-021900.

3.

Measuring the quality of haemophilia care across different settings: a set of performance indicators derived from demographics data.

Iorio A, Stonebraker JS, Brooker M, Soucie JM; Data and Demographics Committee of the World Federation of Hemophilia.

Haemophilia. 2017 Jan;23(1):e1-e7. doi: 10.1111/hae.13127. Epub 2016 Dec 8.

4.

Issues in assessing products for the treatment of hemophilia - the intersection between efficacy, economics, and ethics.

Farrugia A, Noone D, Schlenkrich U, Schlenkrich S, O'Mahony B, Cassar J.

J Blood Med. 2015 Jun 15;6:185-95. doi: 10.2147/JBM.S79091. eCollection 2015.

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