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J Cyst Fibros. 2016 Nov;15(6):791-793. doi: 10.1016/j.jcf.2016.05.007. Epub 2016 Jun 1.

Cystic fibrosis in Latin America-Improving the awareness.

Author information

1
lnstituto da Criança, Hospital das Clinicas, University of São Paulo Medical School (FMUSP), Av. Dr Eneas Carvalho de Aguiar, 647 Cerqueira Cesar, CEP 05403-900 São Paulo, SP, Brazil. Electronic address: vicres@usp.br.
2
Pulmonology Department, Hospital De Pediatria Juan, P. Garrahan, Buenos Aires, Argentina. Electronic address: ccastanos@garrahan.gov.ar.
3
Hospital de Pediatria Centro Medico Nacional de Occidente, IMSS Guadalajara, Jalisco, Belisario Domínguez 735, Colonia independencia Guadalajara, Jalisco, Mexico. Electronic address: hruizgdr@yahoo.com.mx.

Abstract

The burden of cystic fibrosis (CF) in Latin America is being increasingly recognized and is significant compared with other regions of the world. In this short communication, we assess the current situation in some Latin American countries and make suggestions for possible directions for future focus. We discuss the work that remains in deciphering how the various genetic, environmental and medical factors interact and influence outcomes in different ethnic groups. We also consider the need for consistency in both research and access to services across Latin America, including CF registries, neonatal screening programs, access to specialized CF healthcare practitioners, transition to adult clinics and treatment regimens. Progress in these areas is likely to build on the advances to date, and improve the lives of patients in Latin America who are affected by this debilitating and life-limiting disorder.

KEYWORDS:

Awareness; Cystic fibrosis; Diagnosis; Latin America; Management; Progress

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PMID:
27262748
DOI:
10.1016/j.jcf.2016.05.007
[Indexed for MEDLINE]
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