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Disabil Rehabil. 2011;33(17-18):1650-8. doi: 10.3109/09638288.2010.542875. Epub 2010 Dec 31.

Comparing the priorities of parents and young people with cerebral palsy.

Author information

1
Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, Pennsylvania 19102, USA. jillmmaggs@gmail.com

Abstract

PURPOSE:

Adolescence is a period of change and transition that may pose unique challenges for young people with cerebral palsy (CP). We compared statements of priorities, i.e. what adolescents (13-17) and youth (18-21) and their parents would like to be able to do to enable greater activity and participation.

METHODS:

Participants were 198 parents and 135 young people with CP (45% males) from seven Children's Hospitals in the United States. The interviews were structured using The Canadian Occupational Performance Measure. Priority statements were categorised as Adult Tasks, Biology, Self-Identity or Physical Activity.

RESULTS:

All parents identified more priorities for Biology and Adult Tasks (p  <  0.001). Adolescents identified the fewest priorities for Self-Identity (p  <  0.01). Youth identified, in descending order of frequency, priorities in Adult Tasks, Biology, Self-Identity and Physical Activity (p  <  0.05). In the parent-young people dyads when disagreements occurred, Self-Identity issues were identified more often by parents (p  <  0.05) and priorities for Physical Activity were identified more often by young people (p  <  0.01).

CONCLUSIONS:

The shared and differing priorities of parents and young people with CP may reflect different roles, perceptions and experiences. The findings have implications for healthcare professionals, providing a framework to compare and contrast the priorities of young people and their parents.

PMID:
21192775
DOI:
10.3109/09638288.2010.542875
[Indexed for MEDLINE]

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