Format

Send to

Choose Destination
Brain Inj. 2018;32(4):431-441. doi: 10.1080/02699052.2018.1429024. Epub 2018 Feb 1.

Patient perspectives on quality and access to healthcare after brain injury.

Author information

1
a Department of Rehabilitation Medicine , Icahn School of Medicine at Mount Sinai , New York , NY , USA.
2
b Department of Rehabilitation Medicine , University of Washington , Seattle , WA , USA.
3
c Department of Neurological Surgery , University of Washington , Seattle , WA , USA.

Abstract

PRIMARY OBJECTIVE:

To gather information about brain injury (BI) survivors' long-term healthcare needs, quality, barriers and facilitators.

RESEARCH DESIGN:

Qualitative content analysis of data gathered in focus groups using semi-structured interviews.

METHODS:

Forty-four community-dwelling adults participated at two clinical research centres in Seattle, Washington and New York, New York. Participants were asked open-ended questions about their experiences with healthcare in the community with regard to care needs, utilization, access, barriers and facilitators to health management.

RESULTS:

Central themes emerged across three categories: 1) barriers to healthcare access/utilization, 2) facilitators to healthcare access/utilization, and 3) suggestions for improving healthcare after BI. The importance of communication as both a facilitator and barrier to care was mentioned by most participants. Compensatory strategies and external tools were identified as key facilitators of medical self-management. Finally, improving clinicians' knowledge about BI emerged as a potential solution to address health needs of individuals with chronic BI.

CONCLUSIONS:

Additional efforts need to be made to improve access to appropriate healthcare and increase the ability for individuals to successfully navigate the healthcare system. Findings suggest several specific, low-cost modifications to healthcare delivery and strategies for improving medical self-management that can maximize long-term health maintenance for BI survivors.

KEYWORDS:

Traumatic brain injury; acquired brain injury; chronic health; qualitative research

Supplemental Content

Full text links

Icon for Taylor & Francis
Loading ...
Support Center