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AIDS Res Hum Retroviruses. 2018 Jan;34(1):80-87. doi: 10.1089/AID.2017.0188. Epub 2017 Oct 12.

What Would an HIV Cure Mean to You? Qualitative Analysis from a Crowdsourcing Contest in Guangzhou, China.

Author information

1
1 School of Medicine, University of Maryland-Baltimore , Baltimore, Maryland.
2
2 University of North Carolina Project-China , Guangzhou, China .
3
3 Center for Medical Anthropology and Behavioral Health, School of Anthropology and Sociology, Sun Yat-sen University , Guangzhou, China .
4
4 Department of Infectious Diseases, Guangzhou Eighth People's Hospital, Guangzhou Medical University , Guangzhou, China .
5
5 Institute of Global Health and Infectious Diseases, University of North Carolina at Chapel Hill , Chapel Hill, North Carolina.

Abstract

Much HIV cure social science research has focused on high-income countries. Local key population perspectives, especially from people living with HIV (PLHIV), are needed in low- and middle-income countries. We organized an open contest soliciting responses from key populations, including PLHIV, about what a cure would mean in their lives. Tailored in-person events and social media were used to engage PLHIV, men who have sex with men (MSM), people who inject drugs, and local residents. We received 471 contributions over 4 months. Our thematic analysis showed that many people perceived that a cure would sterilize HIV and bring about new life for PLHIV. Many individuals believed a cure would decrease PLHIV discrimination and many MSM perceived a cure would decrease MSM discrimination. Some participants noted that a cure could help improve interpersonal relations, particularly with families and partners. Many individuals envisioned HIV cure as a panacea to bring about social stability. Some participants also anticipated changes in attitudes toward sex that may result in increased condomless sex. Our findings suggest a continued need for careful management of patient expectations and community engagement.

KEYWORDS:

China; HIV; crowdsourcing; cure; meaning

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