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Patient Perspectives About Decisions to Share Medical Data and Biospecimens for Research.

Kim J, Kim H, Bell E, Bath T, Paul P, Pham A, Jiang X, Zheng K, Ohno-Machado L.

JAMA Netw Open. 2019 Aug 2;2(8):e199550. doi: 10.1001/jamanetworkopen.2019.9550.


Development and implementation of a dynamically updated big data intelligence platform from electronic health records for nasopharyngeal cancer research.

Lin L, Liang W, Li CF, Huang XD, Lv JW, Peng H, Wang BY, Zhu BW, Sun Y.

Br J Radiol. 2019 Aug 20:20190255. doi: 10.1259/bjr.20190255. [Epub ahead of print]


Privacy-Preserving Methods for Feature Engineering Using Blockchain: Review, Evaluation, and Proof of Concept.

Jones M, Johnson M, Shervey M, Dudley JT, Zimmerman N.

J Med Internet Res. 2019 Aug 14;21(8):e13600. doi: 10.2196/13600.


Use of electronic health records from a statewide health information exchange to support public health surveillance of diabetes and hypertension.

Horth RZ, Wagstaff S, Jeppson T, Patel V, McClellan J, Bissonette N, Friedrichs M, Dunn AC.

BMC Public Health. 2019 Aug 14;19(1):1106. doi: 10.1186/s12889-019-7367-z.


Perspective on the Development of a Large-Scale Clinical Data Repository for Pediatric Hearing Research.

Pennington JW, Ruth B, Miller JM, Peterson J, Xu B, Masino AJ, Krantz I, Manganella J, Gomes T, Stiles D, Kenna M, Hood LJ, Germiller J, Crenshaw EB 3rd.

Ear Hear. 2019 Aug 9. doi: 10.1097/AUD.0000000000000779. [Epub ahead of print]


Soil phosphorus dynamics following land application of unsaturated and partially saturated red mud and water treatment residuals.

Brennan RB, Murnane JG, Sharpley AN, Herron S, Brye KR, Simmons T.

J Environ Manage. 2019 Jul 31;248:109296. doi: 10.1016/j.jenvman.2019.109296. [Epub ahead of print]


DataGauge: A Practical Process for Systematically Designing and Implementing Quality Assessments of Repurposed Clinical Data.

Diaz-Garelli JF, Bernstam EV, Lee M, Hwang KO, Rahbar MH, Johnson TR.

EGEMS (Wash DC). 2019 Jul 25;7(1):32. doi: 10.5334/egems.286.


Developing a Regional Distributed Data Network for Surveillance of Chronic Health Conditions: The Colorado Health Observation Regional Data Service.

Bacon E, Budney G, Bondy J, Kahn MG, McCormick EV, Steiner JF, Tabano D, Waxmonsky JA, Zucker R, Davidson AJ.

J Public Health Manag Pract. 2019 Sep/Oct;25(5):498-507. doi: 10.1097/PHH.0000000000000810.


National platform for Rare Diseases Data Registry of Japan.

Furusawa Y, Yamaguchi I, Yagishita N, Tanzawa K, Matsuda F, Yamano Y; RADDAR‐J Research and Development Group.

Learn Health Syst. 2019 Jan 31;3(3):e10080. doi: 10.1002/lrh2.10080. eCollection 2019 Jul.


Digitising an Australian university hospital: qualitative analysis of staff-reported impacts.

Eden R, Burton-Jones A, Grant J, Collins R, Staib A, Sullivan C.

Aust Health Rev. 2019 Jul 18. doi: 10.1071/AH18218. [Epub ahead of print]


The EU’s General Data Protection Regulation (GDPR) in a Research Context.

Mondschein CF, Monda C.

In: Kubben P, Dumontier M, Dekker A, editors. Fundamentals of Clinical Data Science [Internet]. Cham (CH): Springer; 2019. Chapter 5.
2018 Dec 22.


Parental perspectives on retention and secondary use of neonatal dried bloodspots: a Dutch mixed methods study.

Jansen ME, van den Bosch LJM, Hendriks MJ, Scheffer MMJ, Heijnen ML, Douglas CMW, van El CG.

BMC Pediatr. 2019 Jul 9;19(1):230. doi: 10.1186/s12887-019-1590-8.


Lessons Learned in the Development of a Computable Phenotype for Response in Myeloproliferative Neoplasms.

Sholle E, Krichevsky S, Scandura J, Sosner C, Campion TR Jr.

IEEE Int Conf Healthc Inform. 2018 Jun;2018:328-331. doi: 10.1109/ICHI.2018.00045. Epub 2018 Jul 26.


TASKA: A modular task management system to support health research studies.

Almeida JR, Gini R, Roberto G, Rijnbeek P, Oliveira JL.

BMC Med Inform Decis Mak. 2019 Jul 2;19(1):121. doi: 10.1186/s12911-019-0844-6.


Cost-sensitive Active Learning for Phenotyping of Electronic Health Records.

Ji Z, Wei Q, Franklin A, Cohen T, Xu H.

AMIA Jt Summits Transl Sci Proc. 2019 May 6;2019:829-838. eCollection 2019.


Developing a Data-driven Medication Indication Knowledge Base using a Large Scale Medical Claims Database.

Li Y, Xiao C.

AMIA Jt Summits Transl Sci Proc. 2019 May 6;2019:741-750. eCollection 2019.


Factors Affecting Electroconvulsive Therapy Ictal Outcomes: Duration and Postictal Suppression.

Ingram WM, Weston C, Dar Lu W, Hodge C, Poler SM, Nahi F, Larson S.

AMIA Jt Summits Transl Sci Proc. 2019 May 6;2019:672-679. eCollection 2019.


A Framework for Visualizing Data Quality for Predictive Models and Clinical Quality Measures.

Johnson SG, Pruinelli L, Hoff A, Kumar V, Simon GJ, Steinbach M, Westra BL.

AMIA Jt Summits Transl Sci Proc. 2019 May 6;2019:630-638. eCollection 2019.


Lost in Translation: Diagnosis Records Show More Inaccuracies After Biopsy in Oncology Care EHRs.

Diaz-Garelli JF, Strowd R, Wells BJ, Ahmed T, Merrill R, Topaloglu U.

AMIA Jt Summits Transl Sci Proc. 2019 May 6;2019:325-334. eCollection 2019.


Response to "Newborn dried blood spot samples in Denmark: the hidden figures of secondary use and research participation".

Hougaard DM, Bybjerg-Grauholm J, Christiansen M, Nørgaard-Pedersen B.

Eur J Hum Genet. 2019 Jun 28. doi: 10.1038/s41431-019-0437-y. [Epub ahead of print] No abstract available.


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