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Int J Environ Res Public Health. 2019 Jun 28;16(13). pii: E2290. doi: 10.3390/ijerph16132290.

The Korea Cancer Big Data Platform (K-CBP) for Cancer Research.

Author information

1
Cancer Big Data Center, National Cancer Control Institute, National Cancer Center, Goyang 10408, Korea.
2
National Cancer Center Hospital, National Cancer Center, Goyang 10408, Korea.
3
Department of Cancer Control and Policy, Graduate School of Cancer Science and Policy, National Cancer Center, Goyang 10408, Korea. kschoi@ncc.re.kr.

Abstract

Data warehousing is the most important technology to address recent advances in precision medicine. However, a generic clinical data warehouse does not address unstructured and insufficient data. In precision medicine, it is essential to develop a platform that can collect and utilize data. Data were collected from electronic medical records, genomic sequences, tumor biopsy specimens, and national cancer control initiative databases in the National Cancer Center (NCC), Korea. Data were de-identified and stored in a safe and independent space. Unstructured clinical data were standardized and incorporated into cancer registries and linked to cancer genome sequences and tumor biopsy specimens. Finally, national cancer control initiative data from the public domain were independently organized and linked to cancer registries. We constructed a system for integrating and providing various cancer data called the Korea Cancer Big Data Platform (K-CBP). Although the K-CBP could be used for cancer research, the legal and regulatory aspects of data distribution and usage need to be addressed first. Nonetheless, the system will continue collecting data from cancer-related resources that will hopefully facilitate precision-based research.

KEYWORDS:

big data platform; cancer data; clinical cancer registry; de-identification

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