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Items: 1 to 20 of 39


Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.

Kraft SA, McMullen C, Lindberg NM, Bui D, Shipman K, Anderson K, Joseph G, Duenas DM, Porter KM, Kauffman TL, Koomas A, Ransom CL, Jackson P, Goddard KAB, Wilfond BS, Lee SS.

Genet Med. 2020 Feb 24. doi: 10.1038/s41436-020-0763-z. [Epub ahead of print]


Translating genomic testing results for pediatric critical care: Opportunities for genetic counselors.

Deuitch N, Soo-Jin Lee S, Char D.

J Genet Couns. 2020 Feb;29(1):78-87. doi: 10.1002/jgc4.1182. Epub 2019 Nov 7.


Ethics of inclusion: Cultivate trust in precision medicine.

Lee SS, Fullerton SM, Saperstein A, Shim JK.

Science. 2019 Jun 7;364(6444):941-942. doi: 10.1126/science.aaw8299. No abstract available.


Trustworthiness in Untrustworthy Times: Response to Open Peer Commentaries on Beyond Consent.

Kraft SA, Cho MK, Gillespie K, Varsava N, Ormond KE, Wilfond BS, Lee SS.

Am J Bioeth. 2018 May;18(5):W6-W8. doi: 10.1080/15265161.2018.1461953. No abstract available.


Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.

Kraft SA, Cho MK, Gillespie K, Halley M, Varsava N, Ormond KE, Luft HS, Wilfond BS, Soo-Jin Lee S.

Am J Bioeth. 2018 Apr;18(4):3-20. doi: 10.1080/15265161.2018.1431322.


Anticipating uncertainty and irrevocable decisions: provider perspectives on implementing whole-genome sequencing in critically ill children with heart disease.

Char DS, Lee SS, Magnus D, Cho M.

Genet Med. 2018 Nov;20(11):1455-1461. doi: 10.1038/gim.2018.25. Epub 2018 Mar 1.


Institutional culture is the key to team science.

Lee SS, Jabloner A.

Nat Biotechnol. 2017 Dec 8;35(12):1212-1214. doi: 10.1038/nbt.4026. No abstract available.


Research on Medical Practices: Why Patients Consider Participating and the Investigational Misconception.

Kraft SA, Porter KM, Korngiebel DM, James C, Constantine M, Kelley M, Capron AM, Diekema D, Lee SS, Cho MK, Magnus D, Wilfond BS.

IRB. 2017 Jul-Aug;39(4):10-16.


Studying "Friends": The Ethics of Using Social Media as Research Platforms.

Lee SS.

Am J Bioeth. 2017 Mar;17(3):1-2. doi: 10.1080/15265161.2017.1288969. No abstract available.


Research on Medical Practices (ROMP): Attitudes of IRB Personnel about Randomization and Informed Consent.

Porter KM, Cho MK, Kraft SA, Korngiebel DM, Constantine M, Lee SS, Kelley M, James C, Kuwana E, Meyer A, Diekema D, Capron AM, Magnus D, Wilfond BS.

IRB. 2017 Jan-Feb;39(1):10-6. No abstract available.


Adrift in the Gray Zone: IRB Perspectives on Research in the Learning Health System.

Lee SS, Kelley M, Cho MK, Kraft SA, James C, Constantine M, Meyer AN, Diekema D, Capron AM, Wilfond BS, Magnus D.

AJOB Empir Bioeth. 2016;7(2):125-134. Epub 2016 Mar 2.


A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent.

Kraft SA, Constantine M, Magnus D, Porter KM, Lee SS, Green M, Kass NE, Wilfond BS, Cho MK.

Clin Trials. 2017 Feb;14(1):94-102. doi: 10.1177/1740774516669352. Epub 2016 Sep 23.


A comparison of institutional review board professionals' and patients' views on consent for research on medical practices.

Kraft SA, Cho MK, Constantine M, Lee SS, Kelley M, Korngiebel D, James C, Kuwana E, Meyer A, Porter K, Diekema D, Capron AM, Alicic R, Wilfond BS, Magnus D.

Clin Trials. 2016 Oct;13(5):555-65. doi: 10.1177/1740774516648907. Epub 2016 Jun 1.


Strategies for recruiting representative samples of Asian Americans for a population-based case-control study.

Wong CK, Horn-Ross PL, Gee GC, Shariff-Marco S, Quach T, Allen L, Bautista R, La Chica PQ, Tseng W, Chang P, Clarke CA, Yang J, Le GM, Canchola A, Irwin ML, Lee SS, Gomez SL.

J Epidemiol Community Health. 2016 Oct;70(10):974-82. doi: 10.1136/jech-2015-206905. Epub 2016 Apr 6.


Enacting the molecular imperative: How gene-environment interaction research links bodies and environments in the post-genomic age.

Darling KW, Ackerman SL, Hiatt RH, Lee SS, Shim JK.

Soc Sci Med. 2016 Apr;155:51-60. doi: 10.1016/j.socscimed.2016.03.007. Epub 2016 Mar 9.


The Role of Patient Perspectives in Clinical Research Ethics and Policy: Response to Open Peer Commentaries on "Patient Perspectives on the Learning Health System".

Kelley M, James C, Alessi Kraft S, Korngiebel D, Wijangco I, Joffe S, Cho MK, Wilfond B, Lee SS.

Am J Bioeth. 2016;16(2):W7-9. doi: 10.1080/15265161.2015.1125967. No abstract available.


Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making.

Kelley M, James C, Alessi Kraft S, Korngiebel D, Wijangco I, Rosenthal E, Joffe S, Cho MK, Wilfond B, Lee SS.

Am J Bioeth. 2015;15(9):4-17. doi: 10.1080/15265161.2015.1062163.


Attitudes Toward Risk and Informed Consent for Research on Medical Practices: A Cross-sectional Survey.

Cho MK, Magnus D, Constantine M, Lee SS, Kelley M, Alessi S, Korngiebel D, James C, Kuwana E, Gallagher TH, Diekema D, Capron AM, Joffe S, Wilfond BS.

Ann Intern Med. 2015 May 19;162(10):690-6. doi: 10.7326/M15-0166.


Race and ancestry in the age of inclusion: technique and meaning in post-genomic science.

Shim JK, Ackerman SL, Darling KW, Hiatt RA, Lee SS.

J Health Soc Behav. 2014 Dec;55(4):504-18. doi: 10.1177/0022146514555224. Epub 2014 Nov 6.

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