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Items: 9

1.

A Transition Toolkit for Duchenne Muscular Dystrophy.

Trout CJ, Case LE, Clemens PR, McArthur A, Noritz G, Ritzo M, Wagner KR, Vroom E, Kennedy A.

Pediatrics. 2018 Oct;142(Suppl 2):S110-S117. doi: 10.1542/peds.2018-0333M.

2.

Health Care Transition Experiences of Males with Childhood-onset Duchenne and Becker Muscular Dystrophy: Findings from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) Health Care Transitions and Other Life Experiences Survey.

Paramsothy P PhD, MPH, Herron AR PhD, MA, Lamb MM PhD, Kinnett K MSN, APRN, Wolff J PhD, Yang ML MD, Oleszek J MD, Pandya S DPT, Kennedy A BS, Cooney D MS, Fox D MPH, Sheehan D PhD, MD.

PLoS Curr. 2018 Aug 21;10. pii: ecurrents.md.7de8a1c6798d7a48d38ea09bd624e1cd. doi: 10.1371/currents.md.7de8a1c6798d7a48d38ea09bd624e1cd.

3.

Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan.

Birnkrant DJ, Bushby K, Bann CM, Apkon SD, Blackwell A, Colvin MK, Cripe L, Herron AR, Kennedy A, Kinnett K, Naprawa J, Noritz G, Poysky J, Street N, Trout CJ, Weber DR, Ward LM; DMD Care Considerations Working Group.

Lancet Neurol. 2018 May;17(5):445-455. doi: 10.1016/S1474-4422(18)30026-7. Epub 2018 Feb 2. Review.

4.

A Roadmap to Newborn Screening for Duchenne Muscular Dystrophy.

Al-Zaidy SA, Lloyd-Puryear M, Kennedy A, Lopez V, Mendell JR.

Int J Neonatal Screen. 2017 Jun;3(2):8. doi: 10.3390/ijns3020008. Epub 2017 Apr 7.

5.

Clinical Follow-Up for Duchenne Muscular Dystrophy Newborn Screening: A Proposal.

Kwon JM, Abdel-Hamid HZ, Al-Zaidy SA, Mendell JR, Kennedy A, Kinnett K, Cwik VA, Street N, Bolen J, Day JW, Connolly AM.

Muscle Nerve. 2016 Aug;54(2):186-91. doi: 10.1002/mus.25185. Epub 2016 Jun 13.

6.

1st Workshop on Upper-Extremity Assistive Technology for People with Duchenne: State of the art, emerging avenues, and challenges: April 27th 2015, London, United Kingdom.

Bergsma A, Lobo-Prat J, Vroom E, Furlong P, Herder JL; Workshop Participants.

Neuromuscul Disord. 2016 Jun;26(6):386-93. doi: 10.1016/j.nmd.2016.04.005. Epub 2016 Apr 8. No abstract available.

PMID:
27133663
7.

Diagnostic approach to the congenital muscular dystrophies.

Bönnemann CG, Wang CH, Quijano-Roy S, Deconinck N, Bertini E, Ferreiro A, Muntoni F, Sewry C, Béroud C, Mathews KD, Moore SA, Bellini J, Rutkowski A, North KN; Members of International Standard of Care Committee for Congenital Muscular Dystrophies.

Neuromuscul Disord. 2014 Apr;24(4):289-311. doi: 10.1016/j.nmd.2013.12.011. Epub 2014 Jan 9.

8.

Childbirth freedom fighters.

Gordon W, Menzel A, McCulloch J, Roach JM, Booker C, Joseph J, Greenwood N, Wood LS, Robinson TG, Gerke N, Kennedy A, van Roojen M, Aurilio D, Kass E, Basile M, Phillips A, Casey B, Spicer G, Raum C, Novak M, Heffernan A, Linstad J, Corcoran D, Lawler RT, Corbeil E, Kali K, Moffat A, Hill M, Ebers B, Zaslow R, Kimball O, Cherney AM, Hannon G, Scar D, Folin A, Potter B, Vergo A, Lucido-Conate J, Hydeman T, Fontaine M, Kinne MH, Hirsch A, Haines K, Ceremy J, Davis S, Goldberger J, Herman D, Kamara M, Cockrill M, Carnesciali M, Hill T, Plaskett N, Fairman A, Darlin J, Morales N, Islam T, Effland K, Viehmann K, German E, Tenney E, Churness D, Myers S, Jones S, Burke B, McLaughlin EY, Pickard K, Cook SS, Kreuger J, Muza S, Hart L, Parsons M, Hodges S, Four R, Bey A, Clem L, Payne S, Phoenix A, Wilkes A, Reiner ES, Ryerson G, Tanner SL, Francis B, Palagi T, Whitley L, Chorley H, Porter M, Moore L, Sampson A, Seruntine L, Levine A, Everett L, Lawlor M, Simkins G, Cole ER, Lane E, Maisonville M, Pretlow A, Deggins N.

Midwifery Today Int Midwife. 2013 Summer;(106):62-3. No abstract available.

PMID:
23847907
9.

Cost of illness for neuromuscular diseases in the United States.

Larkindale J, Yang W, Hogan PF, Simon CJ, Zhang Y, Jain A, Habeeb-Louks EM, Kennedy A, Cwik VA.

Muscle Nerve. 2014 Mar;49(3):431-8. doi: 10.1002/mus.23942. Epub 2014 Jan 28.

PMID:
23836444

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