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Items: 1 to 20 of 47

1.

Considering Equity in Assessing Familial Benefit From the Return of Genomic Research Results.

Goldenberg AJ.

Pediatrics. 2019 Dec;144(6). pii: e20193111. doi: 10.1542/peds.2019-3111. Epub 2019 Nov 12. No abstract available.

PMID:
31719122
2.

A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century.

Brothers KB, Rivera SM, Cadigan RJ, Sharp RR, Goldenberg AJ.

J Law Med Ethics. 2019 Mar;47(1):165-172. doi: 10.1177/1073110519840497. No abstract available.

3.

Exploring prenatal genetic counselors' perceptions of abortion laws in restrictive states.

Koenig S, Simi E, Goldenberg A, Magasi S, Wicklund C.

J Genet Couns. 2019 Aug;28(4):790-801. doi: 10.1002/jgc4.1120. Epub 2019 Mar 25.

PMID:
30908831
4.

Correction: Experiences and perspectives on the return of secondary findings among genetic epidemiologists.

Stein CM, Ponsaran R, Trapl ES, Goldenberg AJ.

Genet Med. 2019 Jun;21(6):1463. doi: 10.1038/s41436-019-0462-9.

PMID:
30792497
5.

Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism.

Garrison NA, Brothers KB, Goldenberg AJ, Lynch JA.

Am J Bioeth. 2019 Jan;19(1):51-63. doi: 10.1080/15265161.2018.1544304.

PMID:
30676903
6.

Experiences and perspectives on the return of secondary findings among genetic epidemiologists.

Stein CM, Ponsaran R, Trapl ES, Goldenberg AJ.

Genet Med. 2019 Jul;21(7):1541-1547. doi: 10.1038/s41436-018-0369-x. Epub 2018 Nov 23. Erratum in: Genet Med. 2019 Feb 22;:.

PMID:
30467403
7.

What Precision Medicine Can Learn from Rare Genetic Disease Research and Translation.

Tabor HK, Goldenberg A.

AMA J Ethics. 2018 Sep 1;20(9):E834-840. doi: 10.1001/amajethics.2018.834.

8.

Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.

Johnston J, Lantos JD, Goldenberg A, Chen F, Parens E, Koenig BA; members of the NSIGHT Ethics and Policy Advisory Board.

Hastings Cent Rep. 2018 Jul;48 Suppl 2:S2-S6. doi: 10.1002/hast.874.

PMID:
30133723
9.

Including ELSI research questions in newborn screening pilot studies.

Goldenberg AJ, Lloyd-Puryear M, Brosco JP, Therrell B, Bush L, Berry S, Brower A, Bonhomme N, Bowdish B, Chrysler D, Clarke A, Crawford T, Goldman E, Hiner S, Howell RR, Orren D, Wilfond BS, Watson M; Bioethics and Legal Workgroup of the Newborn Screening Translational Research Network.

Genet Med. 2019 Mar;21(3):525-533. doi: 10.1038/s41436-018-0101-x. Epub 2018 Aug 13.

PMID:
30100612
10.

Willingness to Participate in a National Precision Medicine Cohort: Attitudes of Chronic Kidney Disease Patients at a Cleveland Public Hospital.

Cooke Bailey JN, Crawford DC, Goldenberg A, Slaven A, Pencak J, Schachere M, Bush WS, Sedor JR, O'Toole JF.

J Pers Med. 2018 Jun 26;8(3). pii: E21. doi: 10.3390/jpm8030021.

11.

Misplaced Trust: Building Research Relationships in the Age of Biorepository Networks.

Goldenberg A, Brothers K.

Am J Bioeth. 2018 Apr;18(4):21-23. doi: 10.1080/15265161.2018.1431330. No abstract available.

PMID:
29621469
12.

Ethical issues related to clinical research and rare diseases: 15th Gordon L. Snider Critical Issues Workshop, April 1, 2016, Bethesda, Maryland.

Coors M, Bauer L, Edwards K, Erickson K, Goldenberg A, Goodale J, Goodman K, Grady C, Mannino D, Wanner A, Wilson T, Yarborough M, Zirkle M.

Transl Sci Rare Dis. 2017 Dec 18;2(3-4):175-194. doi: 10.3233/TRD-170013. No abstract available.

13.

An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots.

Rothwell E, Goldenberg A, Johnson E, Riches N, Tarini B, Botkin JR.

J Empir Res Hum Res Ethics. 2017 Dec;12(5):335-342. doi: 10.1177/1556264617736199. Epub 2017 Oct 26.

14.

Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.

Rivera SM, Brothers KB, Cadigan RJ, Harrell HL, Rothstein MA, Sharp RR, Goldenberg AJ.

Am J Bioeth. 2017 Jul;17(7):1-3. doi: 10.1080/15265161.2017.1328899. No abstract available.

15.

Photo-documentation in the community: reflections on genetics, health and health disparities.

Morello L, Marshall PA, Hartmann CD, Brooks S, Colón-Zimmermann K, Goldenberg AJ.

Int J Epidemiol. 2017 Apr 1;46(2):385-389. doi: 10.1093/ije/dyw334. No abstract available.

16.

Genomic newborn screening: public health policy considerations and recommendations.

Friedman JM, Cornel MC, Goldenberg AJ, Lister KJ, Sénécal K, Vears DF; Global Alliance for Genomics and Health Regulatory and Ethics Working Group Paediatric Task Team.

BMC Med Genomics. 2017 Feb 21;10(1):9. doi: 10.1186/s12920-017-0247-4.

17.

Ethical and legal considerations for pediatric biobank consent: current and future perspectives.

Brothers KB, Goldenberg AJ.

Per Med. 2016 Nov;13(6):597-607. doi: 10.2217/pme-2016-0028. Epub 2016 Oct 13.

PMID:
29754545
18.

Biobank participant support of newborn screening for disorders with variable treatment and intervention options.

Bunnell ME, Tarini BA, Petros M, Goldenberg AJ, Arjunan A, Wicklund C.

J Community Genet. 2016 Oct;7(4):291-302. Epub 2016 Sep 1.

19.

Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial.

Botkin JR, Rothwell E, Anderson RA, Rose NC, Dolan SM, Kuppermann M, Stark LA, Goldenberg A, Wong B.

JAMA Pediatr. 2016 Jun 1;170(6):543-9. doi: 10.1001/jamapediatrics.2015.4850.

PMID:
27043416
20.

Evaluating Harms in the Assessment of Net Benefit: A Framework for Newborn Screening Condition Review.

Goldenberg AJ, Comeau AM, Grosse SD, Tanksley S, Prosser LA, Ojodu J, Botkin JR, Kemper AR, Green NS.

Matern Child Health J. 2016 Mar;20(3):693-700. doi: 10.1007/s10995-015-1869-9.

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