Format

Send to

Choose Destination
See comment in PubMed Commons below
JAMA. 1999 Jan 13;281(2):163-8.

Quality end-of-life care: patients' perspectives.

Author information

1
Toronto Hospital and the Department of Medicine, Joint Centre for Bioethics, University of Toronto, Ontario, Canada. peter.singer@utoronto.ca

Abstract

CONTEXT:

Quality end-of-life care is increasingly recognized as an ethical obligation of health care providers, both clinicians and organizations. However, this concept has not been examined from the perspective of patients.

OBJECTIVE:

To identify and describe elements of quality end-of-life care from the patient's perspective.

DESIGN:

Qualitative study using in-depth, open-ended, face-to-face interviews and content analysis.

SETTING:

Toronto, Ontario.

PARTICIPANTS:

A total of 126 participants from 3 patient groups: dialysis patients (n = 48), people with human immunodeficiency virus infection (n = 40), and residents of a long-term care facility (n = 38).

OUTCOME MEASURES:

Participants' views on end-of-life issues.

RESULTS:

Participants identified 5 domains of quality end-of-life care: receiving adequate pain and symptom management, avoiding inappropriate prolongation of dying, achieving a sense of control, relieving burden, and strengthening relationships with loved ones.

CONCLUSION:

These domains, which characterize patients' perspectives on end-of-life care, can serve as focal points for improving the quality of end-of-life care.

Comment in

PMID:
9917120
[Indexed for MEDLINE]
PubMed Commons home

PubMed Commons

0 comments
How to join PubMed Commons

    Supplemental Content

    Full text links

    Icon for Silverchair Information Systems
    Loading ...
    Support Center