Format

Send to

Choose Destination
J Pediatr Nurs. 1997 Feb;12(1):3-12.

The child's eye: memories of growing up with cystic fibrosis.

Author information

1
University of North Carolina at Chapel Hill 27599-7460, USA.

Abstract

This qualitative study used a grounded theory approach to explore adolescent conceptualizations of their chronic illness experience and related life events. A purposive sample of 20 adolescents (12-18 years of age) with cystic fibrosis were interviewed. Adolescents used three protective strategies for reducing a sense of difference from peers: (1) keeping secrets, (2) hiding visible differences, and (3) discovering a new baseline. "Good friends" were a critical source of support and decreased the importance of differences in their social world. Interventions should focus on strategies for dealing with difficult peer situations and the negative reactions of others.

PMID:
9037958
DOI:
10.1016/S0882-5963(97)80016-4
[Indexed for MEDLINE]

Supplemental Content

Full text links

Icon for Elsevier Science
Loading ...
Support Center