Family perceptions of living with Alzheimer's disease

Fam Process. 1994 Sep;33(3):327-40. doi: 10.1111/j.1545-5300.1994.00327.x.

Abstract

The purpose of this study was to identify the major themes that 38 multigenerational families emphasized in their conversations about living with Alzheimer's disease. Interviews were conducted with families that were providing home care in the early stages of the disease. Family perceptions were analyzed with the aid of a computer content analysis program. Families emphasized four themes: (a) the awareness that something was "wrong"; (b) the uncertain nature of the diagnosis; (c) excluding a family member; and (d) the ambiguous nature of family life with Alzheimer's disease.

Publication types

  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Adaptation, Psychological*
  • Adult
  • Aged
  • Aged, 80 and over
  • Alzheimer Disease / psychology*
  • Caregivers / psychology*
  • Cost of Illness
  • Family / psychology*
  • Family Therapy*
  • Female
  • Gender Identity
  • Humans
  • Longitudinal Studies
  • Male
  • Marriage / psychology
  • Middle Aged
  • Sick Role