Gaps in clinical research in frontotemporal dementia: A call for diversity and disparities-focused research

Affiliations

• ¹ Department of Neurology and Alzheimer Center, Erasmus MC University Medical Center, Rotterdam, the Netherlands.
• ² John P. Hussman Institute for Human Genomics and Dr. John T. Macdonald Department of Human Genetics, University of Miami, Miller School of Medicine, Miami, Florida, USA.
• ³ Laboratoire Mémoire Cerveau et Cognition (UR 7536), Institut de Psychologie, Université Paris Cité, Boulogne-Billancourt, France.
• ⁴ Behavioral and Cognitive Neurology Research Group, Faculdade de Medicina, Universidade Federal de Minas Gerais, Belo Horizonte (MG), Brazil.
• ⁵ Manipal Hospitals, Bangalore and Annasawmy Mudaliar Hospital, Bangalore, India.
• ⁶ Manipal Academy of Higher Education (MAHE), Manipal, India.
• ⁷ Parkwood Institute Research, London, Ontario, Canada.
• ⁸ Robarts Research Institute, University of Western Ontario, London, Ontario, Canada.
• ⁹ Department of Clinical Neurological Sciences, Schulich School of Medicine and Dentistry, University of Western Ontario, London, Ontario, Canada.
• ¹⁰ Sant Pau Memory Unit, Department of Neurology, Hospital de la Santa Creu i Sant Pau, Biomedical Research Institute Sant Pau, Universitat Autònoma de Barcelona, Barcelona, Spain.
• ¹¹ Centro de Investigación en Red-Enfermedades Neurodegenerativas (CIBERNED), Barcelona, Spain.
• ¹² Neuropsychiatry, Royal Melbourne Hospital, Parkville, Victoria, Australia.
• ¹³ Department of Psychiatry, University of Melbourne, Parkville, Victoria, Australia.
• ¹⁴ Mesulam Center for Cognitive Neurology and Alzheimer's Disease and Department of Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
• ¹⁵ Alzheimer Center Amsterdam, Neurology, Vrije Universiteit Amsterdam, Amsterdam UMC location VUmc, Amsterdam, the Netherlands.
• ¹⁶ Amsterdam Neuroscience, Neurodegeneration, Amsterdam, the Netherlands.
• ¹⁷ Department of Neurology and Penn Frontotemporal Degeneration Center, University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, USA.
• ¹⁸ St. Louis Oak Street Health, St. Louis, Missouri, USA.
• ¹⁹ Memory and Aging Center, Department of Neurology, Weill Institute for Neurosciences, University of California, San Francisco, California, USA.
• ²⁰ Department of Radiology and Biomedical Imaging, University of California, San Francisco, California, USA.
• ²¹ National Institute of Mental Health and Neurosciences, Bangalore, India.
• ²² Faculty of Medicine, Department of Psychiatry, Hacettepe University, Ankara, Turkey.
• ²³ Department of Neurosciences, University of California, San Diego, La Jolla, California, USA.
• ²⁴ CBI en Demencias y Enfermedades Desmielinizantes del Sistema Nervioso, Instituto Nacional de Ciencias Neurológicas, Lima, Peru.
• ²⁵ Global Brain Health Institute, University of California San Francisco, San Francisco, California, USA and Trinity College, Dublin, Ireland.
• ²⁶ Department of Internal Medicine, Faculdade de Medicina, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.
• ²⁷ The Association for Frontotemporal Degeneration, King of Prussia, Pennsylvania, USA.
• ²⁸ Speech, Language and Hearing Sciences, The University of Texas at Austin, Austin, Texas, USA.
• ²⁹ IMPACT-The Institute for Mental and Physical Health and Clinical Translation, School of Medicine, Deakin University, Geelong, Victoria, Australia.
• ³⁰ Macquarie Medical School, Faculty of Medicine, Health and Human Sciences, Macquarie University, Sydney, New South Wales, Australia.
• ³¹ Departments of Neurology and Psychiatry, Knight Alzheimer Disease Research Center, Washington University School of Medicine, St. Louis, Missouri, USA.
• ³² Department of Psychiatry and Behavioral Sciences, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
• ³³ Brain & Mind Centre and the School of Psychology, The University of Sydney, Sydney, New South Wales, Australia.
• ³⁴ Department of Neurology, Hospital Clinico San Carlos, San Carlos Institute for Health Research (IdiSSC), Universidad Complutense, Madrid, Spain.
• ³⁵ Danish Dementia Research Center, Department of Neurology, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.
• ³⁶ Department of Cell Biology and Genetics, University of Lagos, Lagos, Nigeria.
• ³⁷ Department of Comparative Biosciences, University of Wisconsin-Madison, Madison, Wisconsin, USA.
• ³⁸ National Institute of Neurology and Neurosurgery, Mexico City, Mexico.
• ³⁹ Department of Neurology, Ghent University Hospital, Ghent, Belgium.
• ⁴⁰ Geroscience Center for Brain Health and Metabolism (GERO), Santiago, Chile.
• ⁴¹ Neuropsychology and Clinical Neuroscience Laboratory (LANNEC), Physiopathology Department - Intitute of Biomedical Sciences (ICBM), Neuroscience and East Neuroscience Departments, Faculty of Medicine, University of Chile, Santiago, Chile.
• ⁴² Memory and Neuropsychiatric Center (CMYN), Memory Unit, Neurology Department, Hospital del Salvador and Faculty of Medicine, University of Chile, Santiago, Chile.
• ⁴³ Servicio de Neurología, Departamento de Medicina, Clínica Alemana-Universidad del Desarrollo, Santiago, Chile.
• ⁴⁴ Dementia Research Centre, UCL Queen Square Institute of Neurology, University College London, London, UK.
• ⁴⁵ Department of Neurology, Dyslexia Center, University of California, San Francisco, California, USA.
• ⁴⁶ Department of Neurology, Washington University in St. Louis, St. Louis, Missouri, USA.
• ⁴⁷ Institute of Public Health, Washington University in St. Louis, St. Louis, Missouri, USA.
• ⁴⁸ Department of Psychology, Faculty of Humanities, University of Johannesburg, Johannesburg, South Africa.
• ⁴⁹ Department of Clinical Research and Leadership, The George Washington University School of Medicine and Health Sciences, Washington, District of Columbia, USA.