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J Int Assoc Provid AIDS Care. 2020 Jan-Dec;19:2325958220903574. doi: 10.1177/2325958220903574.

Transition from Pediatric to Adult HIV Care for Young Women Living with HIV.

Author information

1
Women's College Research Institute, Women's College Hospital, Toronto, Ontario, Canada.
2
Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
3
Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada.
4
Department of Pediatrics, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada.
5
British Columbia Women's Hospital and Health Centre, Vancouver, British Columbia, Canada.
6
Faculté de médecine, Université de Montréal, Montreal, Quebec, Canada.
7
Centre Hospitalier Universitaire Sainte-Justine, Montreal, Quebec, Canada.
8
Factor-Inwentash Faculty of Social Work, University of Toronto, Toronto, Ontario Canada.
9
Faculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia, Canada.
10
Chronic Viral Illness Service, McGill University Health Centre, Montreal, Quebec, Canada.
11
British Columbia Centre for Excellence in HIV/AIDS, Vancouver, British Columbia, Canada.
12
Department of Family Medicine, McGill University, Montreal, Quebec, Canada.

Abstract

Transitioning from pediatric to adult care is a complicated process for youth with chronic illnesses. This study elucidates the unique factors affecting transition preparedness and perception of adult HIV care among a cohort of young women with HIV. Between 2013 and 2015, 48 women with HIV, who had experience with pediatric HIV care, were enrolled in a large Canadian cohort study. Variables were self-reported during peer-administered surveys. Only 60% reported feeling prepared for transition. Having never had contact with child protection services (P = .049), never been in foster care (P = .011), never been in a group home (P = .036), reporting a higher current CD4 count (P = .033), and reporting a younger ideal age for transition (P = .041) were associated with transition preparedness. Eighty-four percent reported equivalent or better HIV care following transition. Correlates of equivalent/better care following transition included lower personal income (P = .023), higher CD4 count (P = .021), care by an adult infectious diseases specialist (P = .002), and transition preparedness (P = .005). Our findings highlight the importance of adequate transition preparation and its effect on perception of care following transition.

KEYWORDS:

CHIWOS; cohort; community-based research; transition; women; young women

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