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Neurol India. 2020 Jan-Feb;68(1):154-158. doi: 10.4103/0028-3886.279709.

Neuropsychological Disability: A Hidden Epidemic of Neurological Conditions.

Author information

1
Division of Neuropsychology, Neurosciences Centre, All India Institute of Medical Sciences, New Delhi, India.
2
Department of Neurology, Neurosciences Center, All India Institute of Medical Sciences, New Delhi, India.
3
Head, Department of Neurology, and Chief Neurosciences Center, All India Institute of Medical Sciences, New Delhi, India.

Abstract

Many neurological conditions may result in long-term disability. The measures of prevalence and mortality vastly understate the disability they cause. In the Persons with Disabilities Act 1995 (equal opportunities, protection of rights, and full participation), neurological conditions are ignored. Although Indian Disability Evaluation and Asessment Scale (IDEAS), which assesses psychiatric conditions, does include dementia as one of the neurodegenerative conditions. Additionally, according to the global burden of disease report, 33% of years lived with neurological disability and 13% of disability-adjusted life years (DALYs) are due to neurological and psychiatric disorders. In 2001, the World Health Organization (WHO) established a new definition of disability, declaring it an umbrella term with the following three major components; 1) impairments: problems in body function or structure, 2) activity limitations: difficulties encountered by a person in executing a task or action, and 3) participation restrictions: problems of involvement in life situations experienced by a person. Hence, an attempt was made to rectify the above concerns. To address the above mentioned concerns, we think that there is a need of a comprehensive format for neurological disabilities assessment which would also include objective neuropsychological assessments. As future directions, national level meetings are required to formulate 'Indian Standard Track for Assessing Neurological Disability' (I-STAND) and uniform guidelines for disability assessment in 'chronic neurological conditions' with a special focus on "neuropsychological disability".

KEYWORDS:

Chronic neurological conditions; India; disability; gazette; health care; neuropsychological disability

PMID:
32129266
DOI:
10.4103/0028-3886.279709

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