Format

Send to

Choose Destination
Qual Life Res. 2020 Mar 3. doi: 10.1007/s11136-020-02459-9. [Epub ahead of print]

Core patient-reported outcome domains for routine clinical care in chronic pain management: patients' and healthcare professionals' perspective.

Author information

1
Faculty of Medicine, School of Rehabilitation, Université de Montreal, Montreal, QC, Canada.
2
Institut universitaire sur la réadaptation en déficience physique de Montréal, Centre intégré universitaire de santé et de services sociaux du Centre-Sud-de-l'Île-de-Montréal, Montreal, Canada.
3
Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Montreal, QC, Canada.
4
Faculty of Medicine, Université Laval, Quebec, QC, Canada.
5
McGill Integrated University Health Network (RUIS) Centre of Expertise in Chronic Pain, Montreal, Canada.
6
Clinique d'adaptation à la douleur chronique, Centre intégré universitaire de santé et de services sociaux du Centre-Sud-de-l'Île-de-Montréal, Centre de réadaptation Lucie-Bruneau, Montreal, Canada.
7
Alan Edwards Pain Management Unit, McGill University Health Centre, Montreal, QC, Canada.
8
Direction du soutien de l'autonomie des personnes âgées, Centre intégré universitaire de santé et de services sociaux de l'Ouest-de-l'île-de-Montréal, Montreal, Canada.
9
Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Montreal, QC, Canada. sara.ahmed@mcgill.ca.
10
McGill Integrated University Health Network (RUIS) Centre of Expertise in Chronic Pain, Montreal, Canada. sara.ahmed@mcgill.ca.
11
Faculty of Medicine, School of Physical and Occupational Therapy, McGill University, 3654 Prom. Sir William Osler, Montreal, QC, Canada. sara.ahmed@mcgill.ca.

Abstract

PURPOSE:

To identify a core patient-reported outcome (PRO) domain set to be used in routine clinical care in settings offering specialized and supra-specialized multidisciplinary care to individuals with chronic pain (CP).

METHODS:

Two online cross-sectional surveys were administered: one with healthcare professionals (HCPs) and one with individuals with CP. Both surveys included domains of health-related quality of life (HRQoL) from the Patient-Reported Outcomes Measurement Information System (PROMIS) framework. The patients' survey also included the Patient Generated Index (PGI). Areas affected by CP identified in the PGI were mapped to The International Classification of Functioning, Disability and Health (ICF).

RESULTS:

According to HCPs, the five most relevant HRQoL domains to be assessed in routine clinical care were pain interference, pain intensity, physical function, anxiety and depression. The five areas that were the most valued by individuals with CP were recreation and leisure; global mental function; work and employment; household tasks and walking and moving. In total, these represented 74% of all nominated areas. When triangulating both frameworks (ICF/PROMIS) and perspectives (HCPs/patients), 10 core PRO domains were identified: pain interference, pain intensity, physical function, sleep disturbance, anxiety, depression, ability to participate in social roles and activities, fatigue, sleep-related impairments and self-efficacy.

CONCLUSIONS:

This study identified 10 core PRO domains covering the physical, psychological and social consequences of CP on an individual's life from the perspective of individuals with CP and HCPs. The results can help identify appropriate PRO measures to assess the outcomes of multidisciplinary interventions.

KEYWORDS:

Chronic pain; Core outcome domains; Health-related quality of life; Healthcare professionals; Patients; Survey

PMID:
32125600
DOI:
10.1007/s11136-020-02459-9

Supplemental Content

Full text links

Icon for Springer
Loading ...
Support Center