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J Diabetes Sci Technol. 2019 Dec 25:1932296819895290. doi: 10.1177/1932296819895290. [Epub ahead of print]

Exploring Parental Experiences of Using a Do-It-Yourself Solution for Continuous Glucose Monitoring Among Children and Adolescents With Type 1 Diabetes: A Qualitative Study.

Author information

1
Department of Women's and Children's Health, Dunedin School of Medicine, University of Otago, New Zealand.
2
Te Huataki Waiora School of Health, Sport & Human Performance, University of Waikato, Dunedin, New Zealand.
3
Pharmacy Department, Southern District Health Board, Dunedin, New Zealand.
4
Department of Paediatrics, University of Otago, Christchurch, New Zealand.
5
Department of Paediatrics, Canterbury District Health Board, Christchurch, New Zealand.
6
Paediatric Endocrinology, Starship Children's Health, Auckland, New Zealand.
7
Liggins Institute, University of Auckland, New Zealand.
8
Department of Paediatrics and Child Health, University of Otago, Wellington, New Zealand.
9
Paediatrics and Child Health, Capital and Coast District Health Board, Wellington, New Zealand.
10
Paediatric Endocrinology, Southern District Health Board, Dunedin, New Zealand.

Abstract

BACKGROUND:

MiaoMiao (MM) is a Bluetooth transmitter, which when paired with a smart phone/device, converts the Abbott FreeStyle Libre flash glucose monitoring system into a Do-It-Yourself (DIY) continuous glucose monitor (CGM). Families are increasingly adopting DIY CGM solutions, but little is known about parent and child experiences with these add-on technologies. We aimed to explore experiences of families using MM-CGM including challenges faced and their advice to others who may choose to use the technology.

METHODS:

Between May and July 2019, we conducted 12 semistructured interviews (in person or via video conference) with parents of children (aged ≤16 years) with type 1 diabetes using MM-CGM. Interviews were audio recorded; professionally transcribed and key themes were identified through thematic analysis.

RESULTS:

Overall, parents used MM-CGM to proactively manage their child's blood glucose. In all participants, this led to a perceived decrease in frequency of hypoglycemia. Participants reported that the visibility and easy access to blood glucose readings, glucose trends, and customized alarms on parent's phones decreased their disease burden and improved their sleep quality. Common barriers to using MM-CGM included difficulty of the setting up process, connectivity issues, and lack of support from medical teams.

CONCLUSION:

This study highlights the potential feasibility of using a DIY CGM system like MM-CGM, which could be an empowering and cost-effective tool for enabling remote monitoring of blood glucose in real time.

KEYWORDS:

Do-It-Yourself; continuous glucose monitoring; glycemic control; sleep quality; type 1 diabetes mellitus

PMID:
31875411
DOI:
10.1177/1932296819895290

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