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Bioethics. 2019 Nov 7. doi: 10.1111/bioe.12690. [Epub ahead of print]

Improving the justice-based argument for conducting human gene editing research to cure sickle cell disease.

Author information

1
Department of Philosophy, Purdue University, West Lafayette, Indiana.

Abstract

In a recent article, Marilyn Baffoe-Bonnie offers three arguments that conducting CRISPR/Cas9 biotechnology research to cure sickle cell disease (SCD) would help address historical and current injustices in SCD research and care. I will grant that the first argument is sound, but show that the second and third arguments suffer from roughly the same defect, which is that they really argue for something else rather than for conducting CRISPR/Cas9 research to cure SCD. I conclude that a better justice-based argument would use only Baffoe-Bonnie's first argument.

KEYWORDS:

CRISPR; benefit-sharing; biotechnology; distributive justice; gene therapy; sickle cell disease

PMID:
31697407
DOI:
10.1111/bioe.12690

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