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Eur J Dermatol. 2019 Oct 1;29(5):518-523. doi: 10.1684/ejd.2019.3639.

Risk behaviour and patient preferences for an improved non-melanoma skin cancer prevention modality for organ-transplanted patients: a European, multi-country, online patient community study.

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Service de Dermatologie, Hôpital Saint-Louis, 1 Avenue Claude Vellefaux, 75010 Paris, France - Université Paris 7, 10 avenue de Verdun, 75010 Paris, France.
Dermatology Department. Hospital Clínic de Barcelona, IDIBAPS, Carrer de Villarroel, 170, 08036, Barcelona, Spain-Universitat de Barcelona, Carrer de Casanova, 143, 08036 Barcelona, Spain.
Pierre Fabre Laboratories, Dermatology innovation unit, Centre de Recherche et Développement, 3, avenue Hubert Curien - BP 13652, 31035 Toulouse, France.


Immunosuppressants used in organ transplant patients increase the risk of non-melanoma skin cancer. This study aimed to evaluate patient behaviours towards skin cancer prevention methods and to understand characteristics of a future prevention strategy based on patients' perspective. Carenity, a global online patient community, enabled the recruitment of 200 adult patients with solid organ transplants from four European countries: France, Italy, Spain and Germany. Most patients were well informed about the risk of skin cancer, but only 27% (53/200) monitored their skin. Most patients exposed themselves to intense sun exposure once a month or more. Nevertheless, more than half of patients were motivated to use additional prevention strategies and limit their sun exposure. The most appropriate prevention strategy was reported to be the use of a cosmetically attractive, water-resistant, paraben/fragrance-free cream. A one-size-fits-all approach is not an appropriate prevention strategy and an adapted approach based on patients' preferences may significantly contribute to better compliance and adherence.


NMSC; keratinocyte cancer; non-melanoma skin cancer; organ transplantation; preventive treatment; skin protection


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