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J Autism Dev Disord. 2019 Oct 12. doi: 10.1007/s10803-019-04253-0. [Epub ahead of print]

Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives.

Author information

1
Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, 37008, Salamanca, Spain.
2
Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, 37008, Salamanca, Spain. rcanal@usal.es.
3
Research Institute for Developmental Medicine, Johannes Kepler University, Linz, Austria.
4
School of Nursing and Human Sciences, Dublin City University, Glasnevin, Dublin, Ireland.
5
Canary Island Foundation for Health Research (Fundación Canaria de Investigación Sanitaria/FUNCANIS) and Health Service Research Network for Chronic Diseases (Red de Investigación en Servicios de Salud en Enfermedades Crónicas/REDISSEC), Tenerife, Spain.
6
Department of Experimental Clinical and Health Psychology, Ghent University, Ghent, Belgium.
7
iPSYCH, The Lundbeck Foundation Initiative for Integrative Psychiatric Research, Aarhus, Denmark.
8
Department of Economics and Business, National Centre for Register-Based Research, Aarhus University, Aarhus, Denmark.
9
Department of Public Health, Aarhus University, Aarhus, Denmark.
10
Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy.
11
IRCCS Stella Maris Foundation, Pisa, Italy.
12
Research Co-ordination and Support Service, Istituto Superiore di Sanità Viale Regina Elena 299, 00161, Rome, Italy.
13
University of Oulu, Oulu, Finland.
14
Oulu University Hospital, Oulu, Finland.
15
Child Language Research Center, Logopedics, Faculty of Humanities, University of Oulu, Oulu, Finland.
16
State Diagnostic and Counselling Centre, Kópavogur, Iceland.
17
Victor Babes - National Institute of Pathology, Bucharest, Romania.
18
Instituto Nacional de Saúde Doutor Ricardo Jorge, 1649-016, Lisbon, Portugal.
19
CERPPS, Université Toulouse Jean-Jaurès, Toulouse, France.
20
Department of Child and Adolescent Psychiatry, Medical University of Vienna, Vienna, Austria.
21
Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Centre Göttingen, Göttingen, Germany.
22
Faculty of Psychology, University of Warsaw, Warsaw, Poland.
23
National Autistic Society (NAS), London, UK.
24
Institute of Rare Diseases Research (Instituto de Investigación de Enfermedades Raras/IIER), & Consortium for Biomedical Research in Rare Diseases (Centro de Investigación Biomédica en Red de Enfermedades Raras/CIBERER), Carlos III Institute of Health (Instituto de Salud Carlos III), 28029, Madrid, Spain.

Abstract

Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents' opinions were more negative (mean = 4.6; SD 2.2) compared to those of professionals (mean = 4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child's age, delays in accessing services, and active stakeholders' participation when looking to improve services.

KEYWORDS:

Autism spectrum disorder; Diagnosis; Early detection; Mental health services; Patient satisfaction; Survey

PMID:
31606886
DOI:
10.1007/s10803-019-04253-0

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