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Clin Kidney J. 2019 Feb 26;12(5):702-720. doi: 10.1093/ckj/sfz011. eCollection 2019 Oct.

The European Renal Association - European Dialysis and Transplant Association (ERA-EDTA) Registry Annual Report 2016: a summary.

Author information

1
ERA-EDTA Registry, Department of Medical Informatics, Amsterdam UMC, University of Amsterdam, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
2
State-financed health institution, City Clinical Hospital #52 of Moscow City Health Department, Moscow, Russia.
3
Oficina Regional de Coordinación de Trasplantes de la Comunidad de Madrid, Madrid, Spain.
4
Departamento de Sanidad de Aragón, Dirección General de Asistencia Sanitaria, Zaragoza, Spain.
5
Department of Transplantation Medicine, Oslo University Hospital-Rikshospitalet, Oslo, Norway.
6
Service of Nephrology, UHC "Mother Teresa", Tirana, Albania.
7
Public Health Directorate, Oviedo, Asturias, Spain.
8
ESPN/ERA-EDTA Registry, Department of Medical Informatics, Amsterdam UMC, University of Amsterdam, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
9
UK Renal Registry, Southmead Hospital, Bristol, UK.
10
Population Health Sciences, University of Bristol, Bristol, UK.
11
Information System of the Autonomic Transplant Coordination of Andalucia (SICATA), Seville, Andalucia, Spain.
12
Department of Internal Medicine, Riga Stradins University, Riga, Latvia.
13
Department of Nephrology, Dialysis and Hypertension, Dutch-speaking Belgian Renal Registry (NBVN), Sint-Niklaas, Belgium.
14
Finnish Registry for Kidney Diseases, Helsinki, Finland.
15
Nephrology, Abdominal Center, University of Helsinki, Helsinki University Hospital, Helsinki, Finland.
16
Israel Renal Registry-ISNH, Hemodialysis Unit, Meir Medical Center, Kfar-Saba, Israel.
17
Department of Medicine, Zealand University Hospital, Roskilde, Denmark.
18
Dutch Renal Registry Renine, Nefrovisie Foundation, Utrecht, The Netherlands.
19
Nephrology Department, Apollonion Private Hospital, Nicosia, Cyprus.
20
Nephrology Department, American Medical Center, Nicosia, Cyprus.
21
Georgian Renal Registry, Dialysis, Nephrology, and Transplantation Union of Georgia, Tbilisi State Medical University, Tbilisi, Georgia.
22
Belarusian Medical Academy of Postgraduate Education, Minsk, Belarus.
23
Department of Nephrology, Gdańsk Medical University, Gdansk, Poland.
24
Austrian Dialysis and Transplant Registry, Rohr, Austria.
25
REIN Registry, Agence de la biomédecine, Saint-Denis La Plaine, France.
26
Department of Medicine Prague, General University Hospital, Prague-Strahov, Czech Republic.
27
Nephrology Department, Centro Hospitalar e Universitario de Coimbra, Coimbra, Portugal.
28
Scottish Renal Registry, Glasgow Renal & Transplant Unit, Queen Elizabeth University Hospital, Glasgow, UK.
29
Division of Nephrology, Landspitali - The National University Hospital of Iceland, Reykjavik, Iceland.
30
Faculty of Medicine, School of Health Sciences, University of Iceland, Reykjavik, Iceland.
31
Department of Internal Medicine, Tartu University, Tartu, Estonia.
32
Servicio de Nefrología, Hospital Universitario Valdecilla, Santander, Spain.
33
Registro de Enfermos Renales de la Región de Murcia, Servicio de Epidemiología, Consejería de Sanidad, IMIB-Arrixaca, Murcia, Spain.
34
Catalan Renal Registry Committee, Hospital Arnau de Vilanova, Lleida, Spain.
35
Department of Nephrology, Cerrahpasa Medical Faculty, Istanbul University, Cerrahpaşa, Istanbul, Turkey.
36
Complejo Hospitalario de Navarra, Pamplona, Navarra, Spain.
37
Medical Faculty of Skopje, University Clinic of Nephrology, Skopje, Macedonia.
38
Dialysis Clinic, "Alexandrovska" University Hospital, Sofia Medical University, Sofia, Bulgaria.
39
Institute of Nephrology, Stadtspital Waid Zurich, Zurich, Switzerland.
40
Lithuanian Nephrology, Dialysis and Transplantation Association, Kaunas, Lithuania.
41
Nephrology Department, Medical Academy, Lithuanian University of Health Sciences, Kaunas, Lithuania.
42
Division of Nephrology, Ambroise Paré University Hospital, Boulogne-Billancourt, France.
43
Institut National de la Santé et de la Recherche Médicale (INSERM) Unit 1018 team5, Research Centre in Epidemiology and Population Health (CESP), University of Paris Ouest-Versailles-St Quentin-en-Yveline, Villejuif, France.

Abstract

Background:

This article summarizes the ERA-EDTA Registry's 2016 Annual Report, by describing the epidemiology of renal replacement therapy (RRT) for end-stage renal disease (ESRD) in 2016 within 36 countries.

Methods:

In 2017 and 2018, the ERA-EDTA Registry received data on patients undergoing RRT for ESRD in 2016 from 52 national or regional renal registries. In all, 32 registries provided individual patient data and 20 provided aggregated data. The incidence and prevalence of RRT and the survival probabilities of these patients were determined.

Results:

In 2016, the incidence of RRT for ESRD was 121 per million population (pmp), ranging from 29 pmp in Ukraine to 251 pmp in Greece. Almost two-thirds of patients were men, over half were aged ≥65 years and almost a quarter had diabetes mellitus as their primary renal diagnosis. Treatment modality at the start of RRT was haemodialysis for 84% of patients. On 31 December 2016, the prevalence of RRT was 823 pmp, ranging from 188 pmp in Ukraine to 1906 pmp in Portugal. In 2016, the transplant rate was 32 pmp, varying from 3 pmp in Ukraine to 94 pmp in the Spanish region of Catalonia. For patients commencing RRT during 2007-11, the 5-year unadjusted patient survival probability on all RRT modalities combined was 50.5%. For 2016, the incidence and prevalence of RRT were higher among men (187  and 1381 pmp) than women (101 and 827 pmp), and men had a higher rate of kidney transplantation (59 pmp) compared with women (33 pmp). For patients starting dialysis and for patients receiving a kidney transplant during 2007-11, the adjusted patient survival probabilities appeared to be higher for women than for men.

KEYWORDS:

dialysis; end-stage renal disease; epidemiology; kidney transplantation; survival analysis

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