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Eur J Pediatr. 2019 Nov 18. doi: 10.1007/s00431-019-03450-4. [Epub ahead of print]

Validation of the "Good2Go": the first French-language transition readiness questionnaire.

Mellerio H1,2,3,4,5,6, Jacquin P7,8, Trelles N9, Le Roux E10,11,12,13, Belanger R14,15, Alberti C10,11,12,13, Tubiana-Rufi N16, Stheneur C17,18, Guilmin-Crépon S7,10,11,12,16, Devilliers H13,19.

Author information

1
Plateforme de transition Ad'venir, Unité de médecine d'adolescent, Assistance Publique-Hôpitaux de Paris, Hôpital Robert Debré, 75019, Paris, France. helene.mellerio@inserm.fr.
2
Université Paris Diderot, Sorbonne Paris Cité, ECEVE, UMRS 1123, 75010, Paris, France. helene.mellerio@inserm.fr.
3
INSERM, ECEVE U1123 and CIC-EC, CIC 1426, 75010, Paris, France. helene.mellerio@inserm.fr.
4
Unité d'épidémiologie clinique, Assistance Publique-Hôpitaux de Paris, Hôpital Robert Debré, 75019, Paris, France. helene.mellerio@inserm.fr.
5
French Clinical Research Group in Adolescent Medicine and Health, 75014, Paris, France. helene.mellerio@inserm.fr.
6
RECaP Network-Perceived health measurement Working Group, Paris, France. helene.mellerio@inserm.fr.
7
Plateforme de transition Ad'venir, Unité de médecine d'adolescent, Assistance Publique-Hôpitaux de Paris, Hôpital Robert Debré, 75019, Paris, France.
8
French Clinical Research Group in Adolescent Medicine and Health, 75014, Paris, France.
9
Service de chirurgie viscérale et digestive, Centre Hospitalier René Dubos, 95303, Pontoise, France.
10
Université Paris Diderot, Sorbonne Paris Cité, ECEVE, UMRS 1123, 75010, Paris, France.
11
INSERM, ECEVE U1123 and CIC-EC, CIC 1426, 75010, Paris, France.
12
Unité d'épidémiologie clinique, Assistance Publique-Hôpitaux de Paris, Hôpital Robert Debré, 75019, Paris, France.
13
RECaP Network-Perceived health measurement Working Group, Paris, France.
14
Axe Santé des Populations et Pratiques Optimales en Santé, Centre de recherche du CHU de Québec, Québec, QC, G1E 6W2, Canada.
15
Département de pédiatrie, Centre mère-enfant Soleil du CHU de Québec, Université Laval, Quebec, Canada.
16
Service d'Endocrinologie et de Diabétologie pédiatrique, Assistance Publique-Hôpitaux de Paris, Hôpital Robert Debré, 75019, Paris, France.
17
Département de pédiatrie, CHU Saint Justine, Montréal, QC, Canada.
18
Faculté de médecine, Université de Montréal, Quebec, Canada.
19
Service de Médecine interne et Maladies systémiques (Médecine interne 2), Hôpital François-Mitterrand, 21079, Dijon cedex, France.

Abstract

The use of transition readiness questionnaires is strongly recommended in adolescents with chronic conditions. The aim of our study was to validate "Good2Go," the first French-language transition readiness questionnaire. We analyzed the data from 2 multicentric studies (Canada and France) involving adolescents with chronic conditions (type 1 diabetes, inflammatory bowel disease, cystic fibrosis, epilepsy, juvenile idiopathic arthritis). Content and construct validity were examined using factorial and Rasch analysis (structural validity), Spearman's correlation, and Mann-Whitney test (external validity). Cronbach's α and intra-class correlation coefficients explored reliability. Cognitive interviews assessed wording comprehension and item appropriateness. Good2Go was completed by 321 participants (boys = 51%; mean age = 16.4 years (standard deviation = 1.5; min = 14.0; max = 18.0); Canada = 51.1%). Factor analysis identified 3 domains: "health self-advocacy," "knowledge about chronic conditions," and "self-management skills." The 3-domain structure showed a satisfying Rasch fit, internal consistency, and test-retest reliability. Good2Go domain scores were significantly higher in participants over 17 years of age, indicating satisfactory external validity.Conclusion: Good2Go is a valid 20-item questionnaire to assess transition readiness in adolescents with chronic conditions and may be useful in routine care to propose individually tailored preparation for their transfer to adult healthcare. Further research is now needed to analyze correlation between domain scores and success of transition.What is Known:• In adolescents with chronic conditions, the use of transition readiness questionnaires is recommended to propose individually tailored preparation for their transfer to adult healthcare.• However, no French-language questionnaire has been so far validated.What is New:• Based on a complete validation methodology, this study highlights that the French-language 20-items Good2Go questionnaire has good psychometric properties.• It explores all transition key points though 3 scored domains: "health self-advocacy", "knowledge about chronic disease" and "self-management skills".

KEYWORDS:

Adolescent; Chronic condition; Chronic disease; Patient-reported outcomes; Psychometric proprieties; Tools validation

PMID:
31515671
DOI:
10.1007/s00431-019-03450-4

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